Any advice oh wise mumsnetters?

[flyingmum]

Hi

Well I said last week was going to be a bugger and by golly is was. Spent Sunday in two different hospitals (why do they make you sit in a room on a chair for ages then send you to another room to sit on another chair and then send you back to sit on the original chair???)

My youngest (no sen) has just been diagnosed with type 1 diabetes. He's coping really well and they've let us out of hospital after only a couple of days because he is very healthy so far. He's just gone off to Karate - so here's hoping he's OK.

Any advice nuggets of advice (I know it's not SEN but you are all sooooo knowledgeable and clever).

Seems like I can claim DLA for him too. Blimey 2 'disabled' children - didn't quite mean for that BOGOFF offer. Still they are both fab boys and the eldest seems to be coping - he's made donughts in food tech and has decided to have one now while his brother is out - sweet of him really.

No nuggets here! Sorry for your news and that you have had such a difficult couple of days but glad you are all coping so well. No personel experience of IDDM but any Dx is a shock and it is a sn. Sending a hug!

A good friend of ours has a young dd with diabetes, only discovered last year, so he's also having all the challenges of working out how much insulin, what she can and can't eat or do etc. It's a real 'balancing act'. The diabetes nurse at the hospital has turned out to be just about the only local person worth talking to, they've found.

I'd get hold of the diabetes charities and get all the info you possibly can.

Yes, I think it's possible to claim DLA for some children with diabetes because of the supervision you have to do.

aww {{hugs}} for the 'slap in the face' time you're having. Not much experience here either, my mother has it and has for years - but not as a child... but that said considering shes had it so many years shes doing absolutely fine. Being careful, and like you say a 'balancing act', and regular checkups (which she gets a bit fed up of TBH) and shes fine, so i think what im trying to say is that long term doesnt seem to make the situation any worse. XXX

No advice but hopefully someone with knowledge of diabetes will come along.

Sorry nothing on diabetes. LOL at BOGOFF as i have just had a similar offer. DS(8y) is DS with heart condition, severe learning delay, SPD, fits, challenging behaviour etc etc. DD(11y)just been DX with ADD and ODD and possibly ADHD.

Nother BOGOF here,but same dx (ish)

I dont now if she's about- could probably CAT her- spidermama has a child with diabetes and went through all this. Maybe put a call out?

thanks chaps or rather chapesses.

I went to work today leaving hubby in charge and he's been brilliant and eaten us out of house and home at lunch. We think he has wolves in his tummy! He got sobby today though because for the first time the injection at lunch really hurt him - perhaps a duff needle. I've got him a Star Wars DVD so hopefully that might preoccupy him. I really feel for all you mums who have to regularly do invasive medical stuff for their children - tbh ours is a bugger but not nearly as bad as many have to cope with on a daily basis. I feel a bit more down about it all today - probablly because the kids at school have all been so immature and silly today and obsessed with eating sweets that I felt a bit pissed off. Still it's still not as bad a shock as being told your child is autistic and being sent home with one leaflet and then left to get on with it which we have had in the past. I didn't have mumsnet and the wonderful world of Amber to support me then.

By the way - Amber - if you are reading this - I have had so many comments from staff at school following my autism presentation about how wonderful your musings are - I'm going to cut and paste the recent additions you did last week for them all. I feel a book is needed...

I'm extremely surprised that my words are in the least bit useful to anyone at all, to be honest with you, but thank you . I think I must be learning something about putting phrases together in ways that turn out to be understandable for other people, (rather than giving them the impression they'd rather like to buy me a one way ticket to any country that doesn't have an internet connection)...which must be good. Yes, please do share if they think there's something useful in there for them, as long as they realise this is only my world, not necessarily the world of all people with an ASD.

Hi flyingmum, just seen your post. My DD2 was diagnosed with IDDM in 2007 aged 17months. She now has an insulin pump and is a happy little 3 year old. I can reccomend the online group ukchildrenwithdiabetes group. They've been invaluable to us over the last year or so.

We claim DLA as we test blood sugars at night, there are lots of things you have to do with the pump and its worth it as her cfontrol has improved no end and she is better in herself.

How is your DS now? I remember DD eating like a horse when she came out of hospital, I think that is typical. Any questions please ask xx