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Feel like im banging my head against a brick wall!

9 replies

Frasersmum123 · 08/03/2009 09:48

My DH is really getting on my nerves!

I have been trying to teach DS2 some words by constantly parroting the same word again and again.

So far he has picked up Ball, Cup, Drink and Shoes. They are not very clear, but the intent is there, and I can tell what he is saying. But they dont mean anything to him, they are just sounds.

But my DH keeps making comments like 'See, he is alright, just slow', or 'See FrasersMum, your making a fuss over nothing'

I know that he is trying to be positive, but its driving me mad!

Hopefully the Paeds appointment letter will come soon (they send a copy of the letter they send to the GP) and he can see it in black and white.

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5inthebed · 08/03/2009 11:09

Poor you. My DH has these moments every now and again, and ds2 has been dx for over a year now!

I hope he can be more supportive towards your ds2 after he sees it in black and white.

kettlechip · 08/03/2009 12:35

I have this with DH. It feels as though you're being undermined sometimes. I just smile sweetly and bite my tongue unless I'm feeling up for the argument. It's stressful and upsetting to keep pointing out where ds1 struggles though.

Frasersmum123 · 08/03/2009 16:40

Thanks everyone.

What really P1sses me off the most is that he will say all this, but then talk about applying for DLA (which im not going to do because I dont feel DS will be awarded anything and dont want to go through what seems such an ordeal!)

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5inthebed · 08/03/2009 17:43

You should apply for DLA as you WILL be entitled to it. The forms are awful to fill out, I found doing it online easier than paper, as you can delete and go back to it before sending it.

I didn't want to apply for it either, my HV made me do it! To me applying for it made ds2 "officially" disabled iykwim.

Frasersmum123 · 08/03/2009 18:16

I didnt think I would be entitled because DS's problems seem to be social and communication (i.e he doesnt speak and wont socialise!) He isnt worried about routines and is a good walker. He has only had one Paed appointment and so have no supporting evidence.

I suppose the tthings that lso put my off applying is as you say, being officially labelled. I am also worried that it looks like I am cashing in on his problems, as they seem so mild compared to lots of others on here.

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cyberseraphim · 08/03/2009 18:42

I can't remember how old your DS is but the criteria for DLA is that the care is higher than would be needed for a child without communication problems. We had an official DX though when we applied so it was already in black and white for us although like you, we felt our DS was fairly passive and easy to care for in spite of non standard communication. Now, we have DS2, we see what is easy about NT children. Did the Paed mention DLA or someone else ?

Frasersmum123 · 08/03/2009 18:53

My HV mentioned it.

My DS has just turned 2.

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cyberseraphim · 08/03/2009 19:08

You should be more optimistic about the words he has picked up. All children like to repeat new words out of context at first, it does not mean he does not understand their meaning. He's doing well for just turned 2 with speech delay.

Frasersmum123 · 08/03/2009 19:56

Thanks cyberseraphim. I am trying hard to be upbeat but its difficult sometimes as he spends alot of his time wandering round after me and crying/whinging.

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