Sometimes I "forget" what NT children are capable of...

[mm22bys]

Sometime I "forget" that even young children (2 years old) speak. I saw a little boy one month younger than DS2 today and he was chattering away, calling out "mummy" and I thought what I would give to be called "mummy".

He also wanted a "puppy"

I forget that 2 year olds can do dot-to-dots.

I forget that 2 year olds can feed themselves using cutlery.

I forget that even 20 month olds imitate their daddy shaving...

Bit of a reality check really....

I guess we are now so far from "normality" that I've forgotten was "normal" is...

Anybody else?

I don't think dh has got to 1000 words yet nah seriously, I think that was quite a horrible piss on bonfire moment there from yr SALT, sc13.

fio - that's really encouraging to hear yr dd spoke at 6. Was she babbling or owt before then? DD has never babbled. She makes 'ah' sounds - happy 'ahh' sounds, cross 'ah' sounds, painful 'ah' sounds... Quite amazing what single sound can communicate really

I work from the pont of expecting very little from dd - then when she does something its all the more lovely and amazing. That's not to say there isn't moments of grrrrrfkfkfkfkhatethiswishitwasn'tlikethis from me tho.

coppertop - I've done stuff like that

lou - I'm t'other way round. My nt toddler would be climbing up the tv seeing if he could stick to it with vaseline whilst me back is turned for a nanosecond whereas I could draw a circle round sn dd, go do me shopping and she'd still be sat there biting the same toy ('cept for any medical dramas that is. She can bum shuffle / roll a bit - just doesn't seem to very much) Er not that I would, like.

When I had my second daughter who does not have special needs I couldn't believe how easy it all was and how different.

Pixie: LOL Piss on bonfire - I've learnt a new word today, very good!

FF, I am not taking it to heart, we have been asked several times, and I think DH was a bit surprised the first time but the dr did tell us that in very many cases they see the parents ARE related.

What I am taking to heart is the fact that we don't know exactly what caused DS2's disorder (Complex 1 deficiency) which makes it really hard to way up the odds.

Put it this way, Complex 1 has 45 components.

7 are controlled by the mitochondria (so directly inherited from the mother)

the other 38 are controlled by the nuclear genes.

There are thousands of nuclear genes.

I have had blood taken, and DS2 has had a muscle and skin biopsy. They are testing it to see if they can determine where the "defect" is, but it is like trying to find a needle in a haystack and it is likely that we will never know exactly what caused it.

Which makes it hard to weigh up the chances of it happening again...

pixie - I guess that's what makes it all so hard, isn't it? Doesn't much matter what makes the 'difference', it is the fact that the 'difference' sticks out so far.

DD1 went from dustbin to dustbin today on the way home from preschool:

Bin 1:
DD: What's that?
Me: It's a dustbin.

Bin 2:
DD: What's that?
Me: It's a dustbin.

....Bin 8:
DD: What's that?
Me: What do you think it is?
DD: A bin?
Me:That's right.
DD: Ah, hello bin!

Bin 9:

DD: Hello bin.
I find next bin, run!

....Last bin

DD: Bye bye Bin! Bye Bye!!

I suppose I should be grateful she found a friend

LOL Lou, that really reminds me of ds2. If we walk a certain way to the shops (I usually avoid it all costs) we go past a looooooooong row of terraced houses, and every 6 foot or so there is a drain pipe. And the whole time ds2 says "Look, a pipe!" In the same exciteable tone every time from the first to the last. He also has to rub each one, to make sure it is really a pipe.

I'm dreading my ds3 overtaking ds2. I just know for a fact ds3 will be out of nappies before ds2, and ds3 is only 14 weeks! It sounds a bit horrible, but I am glad ds3 reminds me more of ds1 (NT) rather than ds2 as I think I'd be far more panicky and worried about his health and looking for things to pick at iykwim.

oh dear this thread has me worried...
you mean at nearly 14 dd shouldn't still be palying with toys and only have about 11 words and still learning the read (lol)

I always forget that small people can do things like get in a seat I once put my freinds small person into a seat, full suportive like I lift dd....she gave me the oddest look(mall person, not my freind)

How old was she 2shoes? Please don't say 8

mm22bys, (((hugs)))

I remember feeling quite down when other children were able to do more than ds and even more down when younger children overtook him but over the years things have settled and I only look at his personal progress now. The other day I was dusting dd's (15) reading trophy that she won at 8 and it was such a lovely memory but until replying to you it never even occurred to me that ds will never even enter a reading competion, let alone winning one. I am just pleased that ds(8) went from non-verbal (still has speech problems) to being able to read a bit- you never know the writing might come too.
I've also spent yrs wondering why ds is the way he is but one day the penny dropped for me: does it really matter? gene therapy is far from being round the corner.
I always wanted 3 children but after ds I did wonder about weighing the chances about happening again: for us would not have made the difference if we had another SN child but we opted not to have another just so we had enough time for the two we had, if that makes sense.

lol Lou,
ds used to hug every tree and bush, until one day he hugged a rose bush

5inthebed- its horrible when younger ones overtake their older siblings isnt it? dd1 is beginning to overtake ds2 with some things now- he is 7.9 and she is 3.11. i can trust her more to walk by a busy road than him, her vocabulary and understanding of speech mannerisms are far greater than his, the only thing she is behind him on is toilet training- she is dry in the day, but we havnt tried at night yet because she shares a room with dd2 who isnt big enough for me to remove the stairgate yet. she is even doing some of his schoolwork and getting on very well. {he has dyspraxia and possible as/hfa, she is exceptionally bright for her age)

Fava -

For me, receptive language delay is the norm, because DS1 had it too.

This brings many advantages. Firstly, you still worry but you're less afraid. Secondly, you don't have an NT child to compare with. And thirdly, I knew as soon as the delay became evident that I needed to put all my energy into prolonging his nursery education and deferring his start in reception. I could not have known this if he hadn't been my second non-NT child. So thanks DS1.

5inthebed no lol she was only diddy her mum lol at me(she has a dd with cp as well)

Fava.....ouch

haha 2shoes - one of the times I did venture to playgroup with dd and make an effort to be friendly - I couldn't believe that a near 1 year old was sitting up. I was saying to her mom - wow isn't that brilliant etc etc I had no idea what typically developing kids were doing as I'd tried to avoid it all. She looked at me like I was taking the piss

I have this with ds1 and ds2 (3.7 and 1.6). I give ds1 a request to do or bring something and ds2 has shot off to get it practically before I've finished the sentence. It's bittersweet, as while I'm thrilled at how ds2 is progressing, it highlights the areas where ds1 is struggling.

Yes I can relate to that.It often amazes me today we went to the park and I carried dd to the top of the slide.We were followed my an 18 month old little tot who climbed adeptly.The language one too.

Got ed psych report today.DD language is apparently between the level of a 8-20 month old.Shes turned 3 recently

Me too.
When I took DS for his first trial at nursery, a little girl just a bit older than him (but half the size ) had her first trial too.
Lovely as she was, I'm not kidding, she was like an alien to me. Couldn't believe this tiny little thing could sit up, pick up and chew toys, roll over and hold her own bottle!
DS just smiled, laughed, kicked his kick-gym and dribbled a lot .

pixiemason

ds2 is at ms school so its sort of in my face so I guess i've got used to it, but what still gets me is the younger children helping ds2.. just doesn't seem right somehow!
He is still & I guess always will be the baby of the school.

Recently DH and I were at a cafe, and just were wondering (as in, what a wonder she is) at a little girl, I have no idea how old she was, she must have been about 9 months old.

She was sitting there, putting on and taking off the water bottle cap.

Of course her mother and father didn't give her a second glance.

Even today, I was trying to concentrate on what my friend was saying, but out of the corner of my eye I was watching her DS, and what he was up to.

She didn't seem to take any notice or give him any regard.

You don't though, it's only when it's not NT you realise what a a wonder it all is.

I guess that is one advantage, I don't take the simple "miracles" for granted anymore...