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ds1 got his asd dx

11 replies

hungryhippo21 · 04/03/2009 15:59

ds1 2.6 had his paed app today and although not a formal dx - he will get one next app in july when he has has salt and preschool for a few months- she said yes he is autistic. he has gone with dp to take nanny home who was looking after ds2 so its time for a few tears then wipe them away and let battle commence(with authorities not ds). also when got back had through the post the autism bill transcript from local mp and i could see was more likely to be expelled, bullied, not have a job and commit suicide. i know i am just thinking the worst but fuck me did it have to arrive on the doormat today

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Frasersmum123 · 04/03/2009 16:16

Oh bless you, what awful timing.

How do you feel about the DX?

Marne · 04/03/2009 16:44

Hugs

But well done for getting an early DX, dd2 has been in the system for a year, dd1's dx took 2.5 years .

Bad timing with the autism transcript the awareness of autism is improving each day and i would say that outcome will change as more people understand autism and more people are diognosed as young children.

I hope you are feeling ok.

5inthebed · 04/03/2009 16:51

Not the best of timing was it!

to you. Take a few days out to try get your head around it. I'd say they are the worse, but now he has been dx you can start getting him the help he needs!

jenk1 · 04/03/2009 16:56

its a bittersweet time when you get the dx.

DS was in the system for 2 years before he got his dx, and DD has been in it for coming up to 4 years now!!! and they still wont say yay or nay.

no its not the best of timing but speaking as an adult with AS who is married and has 2 kids i would say the future isnt all bleak.

hungryhippo21 · 04/03/2009 19:56

thanks i know this is the worst time (hopefully) and things will get better. ds1 has been going glutten free for about a week now so he has been behaving quite badly- think that helped and me basically saying he is autistic what makes you say he isnt

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TotalChaos · 05/03/2009 08:10

even if you're expecting it and pushing for it in some ways the DX is still a shock, how you feeling today?

5inthebed · 05/03/2009 08:56

I totally agree with that TC. We were told ds2 was probably autistic in December 07, and we had to wait for his ADOS in Feb 08 before a decision was made. There was always that little voice in my head saying that the proffesionals are wrong, but sadly was not the case. It did come as a big shock, and I cried for days.

How are you doing today HH21?

Tclanger · 05/03/2009 09:12

This reply has been deleted

Message withdrawn at poster's request.

hungryhippo21 · 05/03/2009 13:10

feeling fine today was very tired yesterday as was turfed out of own bed so nanny could sleep in it but had reasonable night sleep so feel alot better. Caught the little bugger eating play-doh earlier he is supposed to be on gluten free diet he has never done that before.
When tired and upset always look at bad side e.g 10% do this dont even stop to think well the other 90 dont iyswim.
Was told yes he is but do they then say mild, moderate etc or just he is somewhere on spectrum sounds like saying he is somewhere over the rainbow

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amber32002 · 05/03/2009 13:37

"more likely to be expelled, bullied, not have a job and commit suicide"

Eek! Not quite the bit of good cheer you're hoping for.

I won't say that life is easy, because it isn't. But if you know that those things are more likely, it gives you a brilliant opportunity to put the help and support in place to stop each one of them. Finding a good school, with a good antibullying policy, and using services like the NAS Prospects employment service to help find a job if necessary - there's ways round a lot of things. Not always easy ways. But there are. As for the suicide thing, they're looking at data on adults with an ASD who have mostly had zero help, zero support all our lives, and lots of us grew up in the "oh it's just a bit of bullying - stand up for yourself!" culture.

Yes, many of us got to the point of wanting the 'pain' to stop. I did at one stage. But remember we've had no help. That won't be the case for him.

I guess they'll say whether it's mild, moderate or severe later on when they do a further assessment.

Meantime, look for the things he can do well. Those are the strengths that will get him through life. Build on those skills, if you can, rather than spend 100% of the effort on social skills. They're important, but they don't need to be world-beating

hungryhippo21 · 05/03/2009 13:57

amber you are right again, i also read as many as 1 in 100 children are affected by as asd so it does seem to be recognised more and yes there will be more things in place to help. Life will not be easy for him but life is not always easy for every one. One of my favourite expressions when something is not going right is the devil has shat in my kettle again - dont know where it came from. yes he has taken a great big dump in my sons but he is still the best big boy in the world (ds2 is bestest little boy) and i have just ordered him some new jigsaws

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