Please or to access all these features

Add post

Watch this thread

Save thread

Start a new thread

Flip thread

Hide thread

My feed

Active Unanswered threads

Getting started FAQ's

Unanswered threads Acronyms Talk guidelines

Hide shortcut buttons

Talk

SN children

Here are some suggested organisations that offer expert advice on special needs.

Flip

Original poster

repite do you get it, if so how long?

21 replies

trace2 · 02/03/2009 18:04

chloe gets 9 hours a week on two seperate days, because we on 24 hour care we are so tired wouls like a few more hours! would like to know what other get so i have an idea,

OP posts:

sarah293 · 02/03/2009 18:09

This reply has been deleted

Message withdrawn

Original poster

trace2 · 02/03/2009 18:11

oh riven we been told theres not enough cash by our ss!

OP posts:

glitteryb6 · 02/03/2009 18:15

im a single parent and i dont get any! sw said i dont look like someone who needs help!

sarah293 · 02/03/2009 18:15

This reply has been deleted

Message withdrawn

sarah293 · 02/03/2009 18:17

This reply has been deleted

Message withdrawn

glitteryb6 · 02/03/2009 18:26

ours is the only local authority around here without a child disability team and all the current case workers are tied up with the "at risk" clients, apparently im high priority for the next free caseworker tho!

onlyjoking9329 · 02/03/2009 18:28

we have recently been awarded 24 nights a year for each child.
before we used to get day time respite care and i could phone up the families whenever i needed to, thou to be honest, it was only when my DH was DX with terminal cancer and needed 24 hour care that we were allowed to just have whatever we needed, before that it was five hours a month respite and 8 hours per month Direct payments per child. you really do have to push for things.
good luck and don't be fobbed of about budgets, new financial year very soon

Original poster

trace2 · 02/03/2009 18:49

how do they bloody get away with it? it makes me sick seeing so many caring parents not get help, where i now lots who dont care about there children who gets loads of help!!

OP posts:

sarah293 · 02/03/2009 18:56

This reply has been deleted

Message withdrawn

MannyMoeAndJack · 02/03/2009 18:57

Respite care is so random, depends on many things such as where you live, what your dc is dx with, how much you're prepared to fight, and so on.

We have just got our ds into a respite unit but it was a long, 2yr slog to get there.

I was only last week talking to a mum who had battled for years to secure some respite care for her family - to no avail. Finally, she told SS she could go on no longer (dc profoundly disabled) and lo! all manner of respite was suddenly available. In her case, it came too late and her dc has since been in foster care for a long time.

It's worrying really, what you have to actually do to secure help from SS. They will not just hand it out - it seems that you must be driven into threatening (with intent) to do all manner of things before any notice is taken.

daisy5678 · 02/03/2009 19:35

5 hours a week. J has autism and ADHD. Didn't have to push massively but everywhere's different.

sarah293 · 02/03/2009 19:50

This reply has been deleted

Message withdrawn

daisy5678 · 02/03/2009 20:01

Yeah, we had trouble getting an assessment with 'just' the ADHD dx , but the children's disability team takes on anyone with a moderate-severe ASD. He was still the same child with the same needs pre and post the autism dx, so it does annoy me, especially when some people can't get an autism dx for whatever reason.

anonandlikeit · 02/03/2009 20:36

Never had any respite, But i've never really pushed.
Don't have a social worker either.
DS2 dx of mild CP, ASD,OCD, learning difficulties, etc.

onlyjoking9329 · 02/03/2009 22:02

i was amazed that we got the over nights to be honest, i had asked for one overnight as i had to go into hospital for an operation and i don't have any family at all.
they had to go to panel to agree the overnight respite, then they told me the minimum is 24
well i do have 3 with autism and it is only the last few years since their dad was ill and died that we asked for anything, it would cost them a fortune to care for my 3 full time so i think they are putting in what they can to help us, it is bad that it is so different in different areas.

anonandlikeit · 02/03/2009 22:21

OJ you deserve your respite, don't worry about justifying what you get.
When ds2 was younger he was so poorly much of the time all he did was sleep. So we honestly never needed respite.
I think its payback time now (he is 6) as he never sleeps through the night.
Its only recently that his behaviours & lack of sleep has left me wondering maybe we should ask.

Also I think ds1 could do with a bit more of our time. The gulf between ds1 & ds2's needs seems to be growing & I am becoming aware that ds1 is missing out.

2shoes · 02/03/2009 22:45

we get regular respit, overnight at a place at dd's school(no I will not say how much) but as dd is nearly 14 we kind of need it.

finefatmama · 03/03/2009 00:21

We get 12 hours a week for ds1 3.5yrs who has ASD. we were assessed as needing 5hrs each on friday and saturday plus 2 hrs on wednesday evenings. stupid dh said no when she asked if we needed help on sunday. we insisted that ds2 2.5yrs was copying his older brother a lot and at risk of developing social problems if he didn't get undivided attention.

sarah293 · 03/03/2009 08:09

This reply has been deleted

Message withdrawn

sarah293 · 03/03/2009 08:10

This reply has been deleted

Message withdrawn

Original poster

trace2 · 03/03/2009 08:31

yes same here riven ds as aspergers and he as never slept to, i wish you and i could get sorted with some more help.

oj dont explain yourself you deseve it! you have gone through so much

OP posts:

Flip