DX at birth CP quad my Mummy caught this on video today

[josey]

Olivia will be 9 months this week, I happend to have my camera at hand when she decided to show off at bit.

I would be grateful of any opinions form those of you that have been through it all.

I have to say I am super proud and she isnt using tone either, this is a short clip but she kept this going for a good half hour.

And I have something to show her consultant on Tuesday who only ever sees her sleeping.

Olivia

Would love to see it (ds mild hemiplegia) but not really happy to register with youtube sorry.

oh does it not come up sorry Im not sure what Im doing to upload not done before

Ok Stupid mother with a smart daughter is re loading this on her blog she forgot she had instead of stupid UT which she cant work anyway

I can't see anything.. What has your clever girl been up to??

nope - not working - think you've linked to the site instead of your clip lol.

will be happy to have a look if you can get it sorted
dd2 (5 now) dx spastic quad originally, then athetoid at 4 (still 4 limb, natch, but staggeringly able these days ) birth injury...

here

sorry for the confusion earlier this is a different clip after she had been doing it for a while and got tired. Excuse the drool she is teething.

Hopefully it works

is it a mumsnet blog lol? can't find anything?!

Oh bother why does it work on my PC grrrrrr I will need to get someone else to look for me then

i looked on the other thread lol - stalked ya. should really change my name to madstalkeronthestreet but hey ho.

have answered on the other thread too lol.

No thank you just glad the ruddy thing worked!!!!
I have other clips I wont try and download of the physios with her on a gym ball and she is starting to sit on it but head control isnt as good.

She does use her arms a bit she uses them for balance sometimes. She works her arms better if she has tension/pressure on her hams. If she is flat on her tummy she moves her arms around more at the moment though thats the only way she can get her chubby fist to her mouth to chew on.

I was told by a NNU consultant in December she wouldnt benefit from physio(long story big complaint) I would like to take the video to him with a large 2 fingered sign

dd2 sat at around 12 months with a lot of physio - lots of gym work etc, and she started using her feet and legs way before her hands/ arms. i'm blown away that she can get her hand to her mouth! that's great, and to have the natural reaction to suck/ chew her fist - fab! great that she's using them for balance too - she sounds as though she's doing really well! at her age we used one of those sit in toys (like a walker but without wheels?) padded with towels for trunk support. the physio wasn't keen at first, but when she came round and i showed her, she was amazed, and later on borrowed it to try with some of her other kids - it really helped dd2 to find her feet and improve upright head control, whilst being supportive enough to let her try some stuff with her arms...
dd2 still 'props' with one arm if she doesn't have enough trunk/ pelvic support for fine motor work...

keep up the good work, olivia! mummy is very proud!

Haven't watched video but congratulations Olivia.
DS was diagnosed quad at 10 months (despite it being totally obvious since he was brought out of sedation at 3 weeks old). I still clearly remember sitting on the floor of the consultant's office playing with him whilst listening to everything he wouldn't do. The prognosis was a load of rot. He's fab.
He still sees the same consultant twice a year and it's always great to shoot them the imaginary two fingers.

BTW he's 14.5 now. Bloody teenagers.

Oh wow Olivia that is exciting

she does the same as my ds (13 months) crying with sheer determination of wanting to do something!

Thank You Madwoman I have one of those very things in the Garage from dd1 which I didnt think Id get away with using. She sometimes pushes up on her feet if you stand her up.

I would love for her to sit somewhere between 12-18 months. Her original physio is off long term sick with breast cancer and that would make her day.

Madmouse she gets so annoyed with herself its amasing how crying builds there strengh. Her eyes arent very good, we dont know what she can see yet. Though we have worked out when she wants to do something physical she closes her eyes and she is able to consintrate and do things better. She works very hard to control her eyes where were always rolling in the back of her head.

Thanks Springlamb, her com pead is great, this is one that was in the NNU who kept telling the consultant in the NNU she was under not to treat her it wasnt worth saving her. I saw this guy for her NNU outpatient, he said yes she is doing better than we expected by the way she isnt dead get her a comfortable chair and just worry about your other children she wont benefit from anything

Amazing, I can't believe she is only 9 months.
What a determined little girl.

There's always one isn't there josey!

Our 'one' is the neonatal consultant who said 'we have to talk about X, there's a lot to talk about, we have the start at the brain and work down'.
Then p'd off to play squash for a couple of hours leaving us absolutely distraught.
'Twas fab a few years later when he came across DS walking along the corridor at the hospital. He just stopped dead and said to someone else 'Is that really X?'
Oh, that felt great.
Every single millimetre of progress is fantabulous for our kids. [But I do believe pay particular attention to hand function as that's the key to true independence, I know that to DS's cost]

what a clever girl. xx

Thanks springlamb we are trying to work on the range of her hands and arms at the moment, and trying to her her to hold things.

Consultant in the morning(DD always sleeps through her appointments) will take the clips and see what she has to say. Think she might be supprised sure she thinks CDT and myself make up alot of stories

josey - when she is a little bigger you can uy a cheap glittery dance baton from the pound shop - lie her on her back and put your hands over her hands on the baton (just with it held out straight in front across her body) and do lots of singing - the grand old duke of york is great, you can control the movement and do lots of up/ down etc - we got one for all the kids and they all laid on their backs in the living room and sang nursery rhymes when she was doing her physio lol. really good for getting a big stretch up above the head i think we did it from just over twelve months... be warned though - if you have toddlers as well, they do love to whack them against stuff and (very occasionally) they'll break and spill glittery water all over your house lol.
we also used the cheapy light up wands and stuff from the pound shop (not the sabres lol) - about the size of large pens - lights/ flashy etc and a good size to practise a grip... also light up rubber stars that flash when you bounce - all the really cheap things the idea being that the light will catch the attention of all but the the most VI, and maybe encourage a reach and grasp. those marathon blankets are good for a bit of supervised play - sensory as well as encouraging some fine motor? a lot of kids enjoy the scrunchy rustley noise, but obviously some don't lol...

hope your consultant appointment went well x

Ever seen a consultant with wide eyes and open gob

Thanks they are really good tips, we have the marathon blanket already donated from a paramedic that is a distant relly.

Like the Idea of the glitter hehe my husband would freak

glad you got the consultant's attention