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Is this some kind of sensory problem?

16 replies

kickassangel · 27/02/2009 00:50

Am posting at a strange time as I live in the US, but will bump this when I get up.
For the last 2 years I have increasingly felt there is something a little 'different' about dd, and various class teachers have as well.
However, her problems appear to be most noticeable in class, and at home we've learnt how to 'deal' with things, so I'm not sure if there is a 'real' problem, or if this is more emotional/psychological.

I would just like some feedback from anyone who knows as I think we're at the stage of speaking to the doctor to see if she could be diagnosed. If there are any obvious 'red herrings' or something that you think is important that I mention, please let me know.

So, the problems that I would 'list' to a doctor are

  • most noticeably, just does not seem to hear when spoken to. But she can actually hear, she is not responding, we're sure of that. when she was about 18 months she went for a hearing test as her speech didn't seem to be very good. the test showed that she heardeverything (eyes flickered) but she was playing with a toy and didn't want to look round. Since then she has had other hearing tests as school teachers say she does not respond, particularly if there is a noisy background.
  • slightly over sensitive to loud noises, will fake cry, cover ears etc for things like vacuum cleaner.
  • a very fussy eater who is almost phobic about putting things in her mouth that she doesn't like.
  • kept puttin new things into her mouth (like toddlers do) until she was at least 4.6
  • HAS to touch things/people etc. shopping is a nightmare as she just wants to touch every object in the shop. We now go everywhere with toys to keep her distracted, or allow her to hold some food that she has chosen.
  • seems much better at taking in info visually. any thing on tv, or from the computer goes in. her teacher now uses visual cues to help her, e.g. timer for getting ready to go home etc.
  • can make eye contact, but when not wanting to, can really 'blank' someone, even if they are in front of her. has done this from a very early age, about 18 months.
  • very fidgety. almost impossible to get her to sit still, although she can concentrate on a task for a prolonged period (over an hour)

Generally, she is a very sweet, fun outgoing and well behaved child. She is keen to do well, and hates being in trouble. However, she gets into trouble at school (as we've just moved to the US, this is her 2nd school & 3rd teacher, so not a one-off problem teacher) as she doesn't hear instructions, is always last to be ready, and seems to be finding it hard to make new friends.

She is 5.6.
Her reading, writing, maths etc are all good, slightly above average.

There are times when she has appeared to be 'in her own world' and then hours/weeks later, she talks to me about events, and clearly she did see/hear what was happening, but didn't respond properly.

Her 'blanking out' seems to be worse when in noisy/busy situations, e.g. in a crowded town (I have had to pull her back from busy roads, because she did not hear me tell her to stop)and school, or if she is stressed about something.

Really directed instructions, clear boundaries, with known rewards, or punishments, do help, but only for that situation, she doesn't seem to apply the lesson to all areas (e.g. stop playing when told, she will do immediately, then forget by next time)

As I said, I'd just like some feedback from anyone with experience (as parent or professional) who can say whether these seem to be the relevant points to raise.

TIA, will bump at a more suitable hour, just needed to write this when the house was quiet and I could think straight.

OP posts:
kickassangel · 27/02/2009 01:02

oh, and she quite often hums to herself when she is eating

OP posts:
SuperBunny · 27/02/2009 02:07

Ok, here are my initial thoughts, based only on teaching children with special needs and on knowing some of DS's friends. I am in a rush and my eyes hurt so please forgive the brief response. None of this is meant to scare you, I just wanted to mention a couple of things I thought of as I was reading but I don't have time to sugar-coat.

  1. All children switch off sometimes but what you wrote made me remember... I taught a girl who looked like she wasn't paying attention but was actually having small seizures (petite mal? I can't remember the term). You wouldn't know there was anything wrong with her other than a glazed, 'not paying attention' expression. Yet, everything seemed to sink in eventually and she was very bright, top of her set in everything etc. Has epilepsy been ruled out?

  2. The sensitivity to noise, food, wanting to touch things sounds similar to the children at DS's playgroup who I mentioned to you before. They have various forms of autism and/ or speech delay and/ or sensory processing issues. Definitely read a bit about this. Lots of children have sensory difficulties to varying degrees so it isn't uncommon and there is lots of help for this kind of thing.

  3. Selective mutism. Has this been looked into? My friend's DD has this - she was early to talk and used abstract words (for feelings etc) before she was 1. Yet she always appears very shy and will only talk with a select group of adults (her parents, me and her play therapist). Everyone else may as well not exist. TBH, your DD doesn't sound like this is what she has but it might be worth checking.

Both sensory processing problems and selective mutism can be overcome or at least helped significantly with different kinds of therapy (speech, occupational, play etc) and needn't be a big issue later in life, if she learns how to deal with it.

For your peace of mind, I would definitely see her pediatrician and mention everything you put here. Hopefully this is nothing and just some of your DDs quirks but it is definitley best to find out.

I hope other, more knowledgeable people come along soon.

Good Luck.

SuperBunny · 27/02/2009 02:10

I meant to say, she sounds lovely!

jabberwocky · 27/02/2009 02:44

Oh, wow, she is the same age as ds1 and very similar to him in all sorts of ways. He also stayed in the oral stage for way longer than average which drove me to distraction. Vacuum cleaner, disposal etc. were a big problem for him for a long time. OT has helped to desensitize him from some of the major things.

So, in a nutshell, yes I would say she is either:

  1. a Highly Sensitive Child (HSC) - these children adapt much better to their world when certain modifications are put into place

or

  1. a child with Sensory Processing Disorder. In this situation OT and other types of therapy can be extremely beneficial.

I would also check into the possibility that she is a gifted child. These children quite often appear to be tuned out but then answer questions correctly about what was being discussed. Gifted children quite frequently also have sensory issues. This is sometimes referred to as being "twice-exceptional".

kickassangel · 27/02/2009 03:11

thanks, jabber, i'm going to look into some of the books you mentioned on the 'american' thread, and sb, don't worry about sugar coating things. compared to the ballet teacher who told me that dd was 'uncontrollable' you've been more than kind.

also, i don't think this is related, but when she's hungry she goes quite hyper, racing round the house etc, and (she sounds like a puppy) seems to need a lot of exerciese/stimulus to wear her out. i know we all think our kids are exhausting, but my sister, with 2 kids, and a primary teacher, says she is more than ususally active

i'd love to think that she's gifte, but although reasonably bright, she's not mega bright, by any means of measuring that i know of (12 years teaching), but at 5, who can really tell.

jabber, i realised that her & your ds must be practically twins.

OP posts:
kickassangel · 27/02/2009 03:15

the latest prob at school has been not stopping playing & standing up for the pledge etc. she told me she doesn't notice, but i'm sure she must. after threats of no recess, she managed to do this today, but said that she 'accidently' started touching one of the toys again, but she noticed & took her hands off. i have suggested she cross her arms, clasp her hands, to help her remember.

OP posts:
SuperBunny · 27/02/2009 03:32

Sometimes children do forget not to touch things. It can be quite infuriating as a teacher/ parent/ adult when you have repeatedly asked them to stop and they continue but I really don't think most children do it deliberately.

When I have worked with children with ADHD (and also fidgety children in general), giving them a piece of blutak that they are allowed to fiddle with really helps. Somehow, having something to play with enables them to focus better and means they are fiddling quietly and not distracting anyone else. Could she try something like that for the pledge?

SuperBunny · 27/02/2009 03:34

My concern is not necessarily her fiddling/ not hearing instructions but that the constant nagging and telling off will put her off school and learning permanently.

ohmeohmy · 27/02/2009 09:11

sounds like there might be a sensory prob - ds needs to touch everything and all too easy to tell him to stop fiddling all the time another book might help is www.amazon.co.uk/Answers-Questions-Teachers-Sensory-Integration/dp/1932565469/ref=sr_1_1?ie=UTF8&s=b ooks&qid=1235725698&sr=8-1

Tclanger · 27/02/2009 09:56

This reply has been deleted

Message withdrawn at poster's request.

kickassangel · 27/02/2009 13:21

many thnaks to people. i 'm getting an idea of what to say at the doctors.

bumping at a more 'normal' time, but about to go out on school run & shopping so won't be around for a while, will check back later

OP posts:
kickassangel · 27/02/2009 13:50

tclanger - just a quick not before i have to get the week's shopping, but thnaks for link to SID sight. Not everything matches, and dd isn't an extreme example, but some of those descriptions, it feels like they've watched my dd & written about her. complete meltdown at teeth cleaning time? oh yes, and i had only vaguely wondered if that was 'linked'

i feel 'armed and ready' to see a doctor - i just had a vague waffly idea of what to say before, and i am still open minded about other possible diagnoses, but seeing lists that describe her has really focused me.

and sb, yes i have blu-tak. thanks, a good idea.

OP posts:
SuperBunny · 27/02/2009 17:57

Am bumping this for you.

jabberwocky · 27/02/2009 19:33

Just remember, kikckass, that a pediatrician may have very little knowledge of sensory issues. What you are going for is a referral to an occupational therapist. That's the person who can really give you some answers.

Tclanger · 27/02/2009 19:57

This reply has been deleted

Message withdrawn at poster's request.

troutpout · 27/02/2009 20:03

Apart from the food phobia and putting things in mouth and touching people...the rest could have been written about my boy at about 4 or 5
He has a dx of aspergers/High functioning autism

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