Sensory procesing Disorder - Visual processing - Tclanger??

[mumgoingcrazy]

DD2 (20 months) has just had a sensory profile done, her auditory processing was right at the top of the scale and the visual processing wasn't far behind.

The Visual processing problems were a surprise to me and the OT and not something I know much about. Does anyone elses child with SPD have Visual processing problems and if so what can be done?

Tclanger I saw a link on one of your posts about sound and vision, have you done the vision part and if so what did it entail?

TC that's great, thankyou so much...... again!! xx

Hi MGM just seen this and am thinking about you. My son has severe problems in all areas of dysfunction and I said your DD sounded similar to mine. Sorry if that has come out wrong. I didn't mean to highlight your DD problems, just glad you know about them so you can get help. What I was told was the tactile system is so primitive and needs to be helped before the other areas can be helped. Sorry I feel like I'm rambling. Havin a bit of a day. Hope your well anyway. Both of you and Tclanger. Take care.

Hi devie,I think you are right, our OT told us if you don't touch anything or be touched you can't develop properly and this is why DD2 is so delayed. Strangely though in our latest sensory assessment her tactile system is now within 'typical' range. The OT believes this was down to the deep pressure brushing and tactile activities we had to do. We're now on the auditory and visual processing. I guess we just have to work through it all and then assess her now and again.

Devie have you seen my post on Therapeutic listening? So far this is having a great affect on DD2. Wondered if it might help you??

Don't feel guilty TC, how could we possibly know our little kiddies were going to have these sensory issues. I knew nothing about the sensory system until DD2 was dx'd.

TL is going amazingly. We hada few awful days when the sensory system was dis-regulating.The OT said we wll get peaks and troughs with each cd but at the moment we are definately on a peak. her eye contact and interaction has come on amazingly, she's become very giggly and smiley (always happy and placid but real character showing itself now) and the interacion between DD1 and DD2 is much better, DD1 is finally taking notice of DD2 as she is getting more from her.

As far as I know the deep pressure brushing and joint compression therapy we did is to regulate the tactile system whether it's over or under sensitive so in theory it should work but you'd have to ask your OT I think. We still have to do top up months of this as even just being ill makes her tactile defensive again.

mgc- really pleased that tl is going well!
(was this with the ot in bristol?)

Hi, sorry MGC just realised I put MGM. Like Tc's OT isn't trained in body brushing I think our OT's haven't had much training in SPD!!!After Downsed diagnosed this in my DS at the age of 2. The LA hasn't diagnosed it until 6. Now at 8 we are still no further forward. There is a sensory diet in school but nothing for home!!!At the moment I am busy working on his statement as this has a lot of flaws. DS is very tactile defensive like MGC DD. I have now read your post and I am sure this was mentioned about a year ago but nothing came of it. At Xmas we went to see Ian Jordan at Jordans eyes (do a google) very interesting. DS is now supposed to wear Blue glasses But won't because of his tactile defensive. He also said he would benefit from the listening programme. Like the glasses if we can remedy the touch he will wear the glasses to help with the visual. Hope this all makes sense as I feel I am rambling again. The bad day was with DD age 11 who has went progressivly downhill since starting secondary school in Sept. Is now being seen by CAMHS who with the school feel she is ADHD,ADD and ODD!!!

Also meant to mention Tc on LOL at her dyspraxia. After whats been said about DD I done an onlie test for ADHD about her and she scored pretty high and was at risk. So I got her to do it onherself and she scored evem higher. So far a laugh done the test on myself and guess what!!! I am at high risk of ADHD also. LOL!!!

devie - what a day you have had.
coordination type exercises (crossing midline etc) are also menat to help adhd if htat is any help...

Sorry you're having such a hard time devie. Hope things sort themselves out with your dd soon.

IS, Our OT is here in Surrey, we havn't travelled to Brisol for anything so maybe that's someone else??

Devie, i think you might have told me before but what is the deal with the blue glasses and where did you get them from?

TC

Hi MGC, Our OTs put on a conference with Ian Jordan. He deals with visual processing. He tests (makes them into games) the child to see which coloured glasses help with the problems they have.
My DD had blue to help with her problems at school, reading and homework.
My DS has blue and yellow glasses to see which works best and for which problems, a bit of trial and error with him. Depending on the problem the blue or yellow might be best.
They are different to overlays, According to him overlays are a sustitute which only masks the problem rather than helping. E.g. hopefully DD won't need glasses at all in a year. He is Ian Jordan at Jordan's eyes. If i cam work out how to do a link I will.
What I was told at the conference was he is available in areas of England and can be refered by the NHS but waiting lists are long. To go privatly in England it's £400 rising. To see him quicker and free to make an appointment at his shop in Scotland, Ayr.
Anything else just ask and I hope this helps.
Take care.

Thank you very much Devie, I'll look into this and see what we can do for DD2. xx

Good luck xx

Hi mum, I have not had time to read the thread but wanted to recommend that you book an appt with a behavioral/developmental optometrist. Someone who has done classes with BABO. These docs do lots of testing and therapy integrating visual processing with sensory integration and can offer a customized program for your dd.

PS

chipmonkey is an excellent source for you on this!

Jabber, thank you I've never even heard of such a thing. I will speak to our OT on Wednesday as we are currently doing therapeutic listening and I know she won't want to introduce another technique whilst we are doing this but will definately try this once we've finished (10 more weeks). There are 2 practices less than a 45 min drive so very do'able.

Thanks for the tip xx

DD2 is only 20 months, is behavioural optomtry still an option or is she too young?

Good question! There are techniques that you can use on very young children. I think it will be something to definitely keep in mind after you finish the listening program.

Just expressing an interest in this area tho I don't have much to add thus far. I have a dyspraxic son aged 10 who has all sorts of sensory integration issues and visually he is quite unusual. Luckily we were aware of the visual issues a little in advance, as my mum has the same visual problem thus she could advise. We went to Ian Jordan for specs and we liked his approach tho the specs have not yet had a massive effect (although he adores them, which is a huge plus when children need aids). We also had a very nice OT (private, West London based) who I could recommend who appeared ahead of the game. We have been very disappointed with the NHS help in general. Currently we're looking for help with auditory stuff, the issue is that DS often shouts by mistake and does not really realise he is doing it, needs to learn a bit of self-control if he can before going off to secondary school. If anyone has any ideas on this I'd be grateful. Seems to me, after 10 years of this hard work, that children with these syndromes do keep improving but also the symptoms and issues change from time to time, so you have to be quite proactive to sort out interventions for each issue.

Hi plumbuddle, Therapeutic Listening has sorted out DD2's auditory problems now. We are 10 weeks into a 14 week program and she is a completely different child and progressing rapidly!! We are slowly ironing out all her sensory issues and I think we are almost there, what we need now is to give her a 3 month break when we are done to see what new skills she retains and then decide if she'll need another 3 month course.

Re the visual processing, as the auditory is pretty much regulated now, the visual has followed (which apparently is quite normal) so we're seeing big improvements here too.

Might be worth speaking to your OT about it??