Writing a short article about my experiences around the time of my DDs diagnosis(and birth!) How to be open but not upset or scare new parents?

[used2bthin]

Sorry for the muddled sounding title, couldn't think how to word it. I have recently become more involved with the support group for my Dds condition which is great. I need to write a short peice introducing myself and talking about my experiences for new parents. I am fine with the bit where I say how lovely and happy she is but am a bit worried about writing about the first year or so because it was very hard. I need to say something about it being hardand how I felt but also need to not frighten people whose baby may be very small still. Any advise on how to word it? What would you have liked to hear about if your child had just been diagnosed?

Time to shout loudly about the discrimination bandwagon maybe? They cannot refuse to have a child due to medical conditions, they would just have to get someone in qualified to do it - honestly,some people who should help you sometimes act like they don't want to, but there really are funds set aside in Education Dept of Council to allow kids with special needs to be included in preschool edcuation. Was the person you spoke to the SENCO? Special Ed Needs Coordinator - you can argue that a medical need is equally as valid as any other SN. My kid was tube fed at playgroup. Ed Auth funded 1:1 trained person to do it so I didn't need to come in to do it. Took time to organise and recruit person but worked in the end. (She went with my dd to School in the end )

Thanks LGoodLife the person I spoke to was the secretary and also told me they only take potty trained children which completely wound me up anyway so DD won't be going there. I visited a nice one today but got to go back thursday for a chat with the senco. I got the impression that it is just to discuss how they would deal with it all rather than whether or not DD is welcome. DD will just need someone to say that if she needed it they are willing to medicate or inject her and that they will be responsible for keeping an extra eye on her really. So not a huge deal. The first place I looked at really put me off but this place was lovely, they said they would even do some of her SALT stuff there too, they offered I mean, which is so nice. Only problem is this place is a short drive away and I'd rather she went to one near or linked to the school she will go to really, also somewhere walkable but they don't take them till 3 round here. Might ring the HV tomorrow and see if there are other options. I just want an affordable break for myself really while she is having fun and learning, once a week(or twice if thats what they need, most want them to do two sessions which is ok).

They can't refuse to take an incontinent child!!!! I'm outraged!!!! Hope the second place turns out ok for you both.

On the nappy thing, my dd2 is in mainstream school and still in nappies. Its not a reason the exclude someone.

Thanks yes I was so upset about it that I rang the local children's information service who said I should speak to ofsted, they said something like technically they could say that, but they were on shakey ground and that they couldn't really say no to DD if I wanted to send her there. Thing is I don't now anyway after that! It was a very small private school (DD could have had her funded sessions there if I paid a little extra it was very little so I was considering it for the small class sizes. But not anymore! Shocking that they could say that to me without any knowledge of DD. As it happens DD may well be potty trained by then, but many wouldn't be and theres no way I'd say a definate yes even if she didn't have other reasons for possibly struggling with it.