I cannot believe that we still don't have a diagnosis for DS.
Age 3: I noticed odd speech and repetitive behaviours. He had a great vocab but was not conversational AT ALL. GP and health visitor laughed me right out of their office because he hit all his baby milestones early.
Age 4: Reception teacher concerned about lack of eye contact, non existant social skills and abnormal speech. She gets school action plus involved. FINALLY the GP agrees to refer us to the paed.
Age 6: Finally sees the paed. He does a 5 minute fucking assesment and says DS has adhd. He says that he needs assesment for autism. Questionairre filled in by ourselves and the school scores high for autistic spectrum disorder. DS doing barely average work in school and not too disruptive...unless there are loud noises.
Age 7: DH and I are pretty sure this kid has autism or aspergers. He is bright yet it is very very obvious to everyone that something is very very different. Has all the hallmark signs. Best we can get from paed doc is a 10 minute review every 6 months and an apology for the fact that they are so backed up. Eventually we are promised a review by some multidisciplinary team.
Age 8: DS still isn't getting any help in school as there is no diagnosis. He is angry and won't communicate his feelings. I demand a psyche referral. He is smart enough to know he is "different". He has no friends. I am told that the "team" is catching up and will see him in the next year and he will see a psyche then.
Age 9: I am still pushing and they are still ignoring me. No one has done any sort of decent assesment on this child in 5 years. I just got told that we are looking at another 2 years before he is assessed properly but he is probably on the spectrum. Well no shit.
I can't take anymore. My son is 9, acts like he is 3 but with the reading and problem solving skills of a teenager. Everytime we take him out people point and laugh at him because of the way he talks and behaves.
I want some answers. I just don't know how to get them. I want someone to spend time assessing him and his abilities/disabilities.
Rant over. Thanks for reading if you made it this far.
If this is not easy to read it's because I am hitting the wine up tonight.