What should I do?

[devientenigma]

Yet again I have had to meet OH in a dodgy car park to get help changing DS nappy. Son is 8 years old ds, spd, heart condition and so on. He has also not long came out of hospital with double pnuemonia. Both me and his nanna could not get near him for him headbanging, hitting etc. He also had a dirty nappy. Does anyone have any advice or been through similar. Thanks for the vent.

Hi, the physio mentioned drugs about 3 year ago but nothing came of it.
Do you mean the CBF or our local behaviour team.
He is under our BATS (behaviour) team however he has too much going on they are dealing with one thing at a time.
e have worked on dressing (clothes) which has the same effect, for the last 2 years to no avail.

P.S thanks

fiofio i think it has to be a paed that prescribes the medication .

If the challenging behaviour team has a psychiatrist, they can prescribe Rispiridone. Have had lots of similar experiences with ds1 12, but he's going through a good phase now (except he hit me this morning when I changed his nappy, so I shouldn't speak too soon!)
He started a v. low dose of Rispiridone last year and it's made a slight, but important difference in that he is less aggitated at noises etc. I'm also going overboard on praise for every good thing he does and it's working well. Ignoring bad things as much as poss.
Sometimes, if he's very aggitated, I give him regular painkillers just in case. Is he worse since having the pneumonia? Maybe he's still groggy and tired and headachey?

He is always aggressive for nappy time , dressing etc. The point I was trying to make about the pneumonia was that its just too cold to be taking him to car parks to get hubby (who has an outside job) to help. I guess I am also fed up with the profs calling him challenging and complex but getting nowhere. It's not doing us as a family any favours. I feel in quite a predicament in quite a few areas of DS life. Feeling like Iv'e tried everything to no avail. Even the profs tell me thats a good idea. I suppose I also wanted advice from other people who have been through this in case anyone has done something i haven't. Anything is worth a try. Thanks for the advice so far everyone.

Sorry haven't got any advice, but just wanted to give you a . You sound so downtrodden by it all. Hope you can get some help.

Thanks for the advice and hugs. Take care everyone. x