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[mummyloveslucy]

Hi, my daughter has been having speech therapy for 18 months now. She used to have one to one sessions once a week but for the last 4 months she's been in a group of 5 children all learning the same sound. She still hasn't really mastered it. She's had a long break from therapy and the SALT says she dosn't concentrate and can't hear the differences in sounds. I know she concentrates at nursery so I'm not sure why she won't at speech therapy.
The therapist refuses to go in to her nursery to talk to them and give them some guidence, she says it's outside her catchment. She eventually phoned them once to give advice, but won't phone again as she didn't see eye to eye with the head of nursery. She has recently diognosed verbal dyspraxia, she told me that over the phone when she phoned to say that she'd spoken to the consultant paed who wanted a coppy of her assessment. She also said that she'd send me some sheets of listening excercises but I haven't recieved anything.
She is going for another acessment tommorow and I'd like to try to get the speech therapist to actually go to the school, and give them and us more guidance. She seems very laid back and I feel she needs a rocket up her arse.

Sorry, I've missed the whole point.

What I wanted to know is how to go about trying to get her to do what she says she is going to, and some how get her to visit the school or how to get another therapist that will.

verbal dyspraxia need intensive, regular 1:1 treatment to be effective. Have a google for apraxia kids. Lots of advice on there. The NHS is often hopeless with verbal dyspraxia, you may want to think about trying to get a statement (with SALT in part 2 and 3) as its about the only way to guarantee help. If you don't kick off you are unlikely to get much help.

Also search for Nancy Kaufman. She's American but does long distance consultation. She has developed an apraxia kit that is easy to use (we used it with ds2) if you want to go down the 'doing most of it yourself' route (which might involve less banging of heads against brick walls and might be more effective).

Bleedin' hell, she does sound crap laid back.
I know nothing about it at all, so I can't help, sorry. But you could try a new thread asking for 'SALTS - HELP' or, even better 'MOONDOG (who is a SALT and VVV helpful) - HELP'.
Moondog knows everything and is a great support on here.

I've asked her about a statement so that she can get the right level of support in school and she's basically said we don't stand much of a chance. She said that she knows autistic children who've been refused statements.
I'd just like to get everything in place for when she starts school. She is having another acessment with the paed in april as he's concerned with her physical development, so hopefully he'll be more help. I'd just like to know what exactly her needs are and how to get her the best help.

I actually feel she's gone down hill during this long break. She's even gone back to biting her tongue all the time when she eats or talks.

Have you seen the school SENCO? SALT doesn't sound very pro-active to say the least.

Have a search through the old threads here - there are lots about statement procedures. Don't think it's really for the SALT to say TBH.
this is a very helpful website. I learned so much from it and knowledge is power

Thank you for the link, I'll look at it in detail later.
The nursery she's at don't have a SENCO as far as I know but the school she'll be going to in january have one. We spoke to her when we went to look at the school a few months ago. She seemed very nice and I think she would be a good help.

I see, I thought it was same place IYKWIM. Have a good look round that website - there is LOTS of useful info on there - I just linked to the education bit.

Does she have a community paed?

It may vary locally, but my understanding is that they are best placed in the Byzantine NHS hierarchy to lean on therapists if they are not performing.

No, the nursery is linked to a private school who don't take children with statements. So she'll be going to one that are very inclusive and have a diognostic and support unit.

No, she saw a pead at the hospital.
We actually went about a problem we thought she had with her neck, and he was more concerned with her development and got her doing all sorts of tests. He's spoken to the SALT and wants to see her again soon.

Just because a child with asd doesn't get a statement doesn't mean your mightn't- its true that kids witrh asd vary and some dont even needd them,plus sadly lots come down to how much the aprents shrieks.

So,shriek loudest.

The girl in ds3'scalsswith verbal dyspraqxia gets 16 hours 1-1 a week. OK so her Nan used to work for the SEN LEA dept but heck, it can be done....

Have a look at the IPSEA website but never, ever let anyone tell you not to apply: lots will say that but many if not all have an agenda

ipsea

sos!sen if you email them they rock.

It seems that every child of Lucys age I see, I think wow, they are really advanced.
An old woman on the bus said to me recently
"She's such a pretty little thing, but is there something wrong with her?" I was mortified and said "no" probubly quite abruptly. I didn't think any one else would notice.

Luce I get that a lot (ds1 is AS /HFA ds3 has severe lannguage delays and ASD)

You do get used to it and there can be a big jump: at 3 ds3 had no speech,now he has enough. Only enough, but enough.

I think I'm going to have to be more clued up and more forcefull.
My Dad said that I should've kept phoning and asking where the info is she said she'd send and keep asking if she's spoken to nursery yet and why not. He said that I need to make a fuss and be really annoying to get her to listen to us.

I'm going to have to go now as my Husband is moaning that I'm hogging the laptop.
I'll let you know how I get on tommorrow.
Thank you so much everyone for all your help. xxx I don't know what I'd do with out Mumsnet.

how did it go? if it's any help, when i'm trying to get a salt appointment, i just swallow my pride and phone every couple of days until they get fed up with me and give me an appointment to get rid of me. i'm sure we'd still be waiting otherwise!

Hi, she had her acessment yesterday and the therapist said that her new sound hasn't really stuck. She said it's because she can't hear the differences in her own voice, like when she says "tatty" because she can't say daddy she can't hear any difference.
She said it's not her actual hearing, it's processing what she's heard in the brain.
She is going back to one to one once a week, for help with her listening to sounds. She said that untill she can do this, any speech therapy will be very slow progress.
I'm pleased that she'll be having one to one again. She said she'll give us some sheets to do at home next week.

Might be worth looking up the listening programme/AIT for an auditory processing disorder.

Thank you, I'll look it up.