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Bedding for disabled children

22 replies

NicPatch · 16/02/2009 14:55

I've just become a full time step mum to my partner's children one of whom is disabled. Physically he can walk, feed himself etc but no talking and very difficult to engage with, and at 8 he is still wearing nappies. He sleeps well but when awake he keeps pulling the bedding of his bed and has just managed to rip the mattress protector on his new mattress. I've tried looking for a protector or sheet that covers the whole mattress ie you put the mattress inside the sheet. I'm hoping this stop him pulling it all off and wetting the bed. I've looked for sites specialising in bedding for the disabled but to no avail.Is there really nothing out there for special needs kids? Any help appreciated!!!

OP posts:
lou031205 · 16/02/2009 15:52

here you go

lou031205 · 16/02/2009 15:54

or here Sorry the one in my last post is out of stock.

NicPatch · 16/02/2009 19:03

Thanks for the link, at least I have the option for the non-waterproof one and now I know they do exist too!!

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magso · 16/02/2009 20:20

There are a couple of small companies that source/stock useful items for children with additional needs (including waterproof matresses and fully enclosing covers)but my brain can't get the names! I will post as soon as I remember! Raffetys is one but I've probably misspelled it.

feelingbetter · 16/02/2009 20:39

Fledglings are also good. Probably who Magso was thinking about too.

magso · 16/02/2009 23:05

Thanks Feelingbetter! Twas Fledglings I was thinking of (halfterm energy slump)

magso · 16/02/2009 23:09

Ps meant to say I use several protectors - a fully enclosing one with a washable skirted type over it, then a washable pad and a sheet. HTH

FioFio · 17/02/2009 07:55

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NicPatch · 17/02/2009 09:53

Thanks all for your suggestions, its the first time I've used MumsNet and I'm grateful for the help. I've not heard of incontinence support and actually I was starting to think about the nappy situation. At the moment the size 6 in Tesco's own range just about sit. Whats the best way of getting in touch with them?

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FioFio · 17/02/2009 10:16

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TotalChaos · 17/02/2009 10:23

have you looked into claiming the appropriate benefits now you and DH are looking after your step-son full time? thinking of DLA and possibly Carers Allowance if you don't work.

magso · 17/02/2009 15:09

(You may need to know that some areas do not provide continance products to children who are mostly out of nappies by day).

FioFio · 17/02/2009 16:37

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NicPatch · 17/02/2009 18:23

Thanks for your thoughts. He does go to a special school and we have his annual review next week so I can ask about the nappies then. We've looked into the carer's allowance which I don't think we're entitled to as we both work full time. Despite the fact we're both having to juggle our days to fit around school runs!! Luckily I have a job which is flexible and allows me to work from home and we have a supportive family.

Coping so far so good, luckily I'm a very organised person so sorting out the school days and activities not too bad. Not so great when the nappy has been pulled off and there's poo all along the carpet.

Obviously not having grown up with the kids from babies, it still a bit of a shock to the system and having to plan everything like a millitary operation. But i realise I'm preaching to the converted...

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FioFio · 17/02/2009 18:30

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NicPatch · 17/02/2009 19:36

Yes he does, so that's not so bad but he's brother goes to school elsewhere so we have to do a school run anyway.

His dad is really hands on with them both so at least we can share responsibilities but I feel like I need to give them both a stable and structured environment, sadly their mum wasn't able to. So i'm probably trying to do too much too soon.

So far we've looked at DLA, carer's allowance, family tax credits and mobility allowance - is there anything else? Not entitled to two of those though...

OP posts:
Mitchell81 · 17/02/2009 21:01

Direct payments. (Social services gives you money to pay for someone to come help look after DS) Hours per week, depends on your situation

magso · 17/02/2009 21:22

It may be worth writing to social services ( I was told to do this to help with their planning) if they are not already aware of your sons needs and you are new to the area. There may also be a local additional needs list/ news letter with a card for local discounts for amenities, (high rate DLA gives the same thing but is a bit more cumbersome to carry around). Some sn holiday and Saturday clubs start at 8 (for instance those run by Mencap).
Best wishes. Most of all be gentle to yourself!

pillsthrillsandbellyaches · 17/02/2009 21:39

was wondering what age your child has to be to qualify for free nappies from incontinence support? mines is 3. do they still class this as too young?

Mitchell81 · 17/02/2009 21:51

Re free nappies, we got them at 3, but I know some areas the child needs to be 5

Phoenix4725 · 19/02/2009 05:39

in essexs its not to they are 4 for free nappies they uppedit from3 s not aallchildren are dry by 3

FioFio · 19/02/2009 09:32

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