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Which would you choose - Ambulatory EEG or OT appointment?

8 replies

lou031205 · 14/02/2009 23:33

We have had our OT appointment through after a wait of 5 months.

However, we have just received our appointment for DD to have a 24-48 hour EEG on the same date, half an hour after the start of the OT appt, in a different hospital.

It is absolutely impossible to do both.

Which would you ladies say is most important? They obviously both have huge waiting lists, so rejecting either means that we will probably go quite a way back in a very long queue.

I'm kind of thinking EEG diagnostic, which is important because the Epilim has so far not stopped her drop attacks, and I think she had a seizure on me in her sleep a couple of weeks ago, plus she has had some absences.

But OT useful for helping DD now.

Not sure what to do.

OP posts:
TotalChaos · 15/02/2009 09:23

I would say - get your paed to twist arms so that you don't end up with a massive wait if you knock back the OT appointment, given it's a clash of NHS appointments.

notfromaroundhere · 15/02/2009 19:50

If push came to shove then I think I'd go for the EEG over the OT but I would hope that you would get a sympathetic response to rearranging without dropping too far down the list.

Shylily · 15/02/2009 20:55

You shouldn't have to make a choice where you have been given appointments without consultation. Either phone or send the OT department a copy of the letter for the EEG diagnostic and ask them for another date. It'll be easier to move the OT appointment.

magso · 15/02/2009 21:30

If you ring to reschedule immediately after receiving an appointment it should not delay the appointment excessively (you should still be at the the top of the list - just in the next batch of appointments released. Agree with shylily the OT should be easier to reschedule

lou031205 · 16/02/2009 08:53

Ok, will ring OT & see what they say. Thanks once again.

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feelingbetter · 16/02/2009 20:24

May be a bit late for this now Lou, but I would ring both.
In our trust, they keep a slot or two back every day for emergency EEGs (we have been lucky (IYKWIM) to have had an emergency slot more than once) so they may be able to jig you about on the same day - take your existing slot as an 'emergency' slot and offer you one of the 'real' emergency slots as your new appointment.
Hope that makes sense
You would definitely not go back to the bottom of the waiting list for either service though - if their clinics are organized correctly, they should have appointment slots available for the same week - week after at latest!

lou031205 · 16/02/2009 21:40

Thanks fbb, I might just do that

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lou031205 · 17/02/2009 17:21

Well EEG said they can do 11.30, giving space for an OT appt. But OT secretary said assessments can take up to 2.5 hours! She is going to speak to the OT on Thursday & see what he says.

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