Anyone else's child gone from totally toilet trained to nothing.

[alfiemama]

As the title says really.

Ds who is (asd)nearly 5 has gone from fully toilet trained for a while now, to well, nothing. I have had to take him out of school as the trauma would be too much for him.

We had already taken him from full days to half days as he couldnt cope, we have now spoken to the school who agree he should have a break until we get some kind of help for him.

He has had an accident everyday now, I really dont know how to deal with it.

It all seems to span from that suspected petit mal and has regressed massively.

Do I go right back to basics, or will the paed help us with this?

Any advice appreciated

Harry did this for asd reasons; its only in the last few months I have trusted him dry, and even then if we go anywhere unusual he will have and need a nappy, and if we go away he will lose control completely only for it to return when we get home.

It's hard on the parents (DH ahtes it) but I am nto sure that AHrry (5.5, asd) is bothered

Hi Peachy

Was Harry toilet trained and then regressed? if you dont mind me asking.

He hadnt trained when he regressed the 'big' time but has had many mini regressions since which are always linked to changes such as half term, and for a while it was always his toilet training.

I have that book on topiletting and ASD JimJams recommends if you want it?

Ah thanks Peachy, I have got some on toilet training, trying to do ds2, so should be ok, thanks very much anyway.

When you say big time, did it all happen very suddenly with you and ds? We just always assumed it was there with Alfie, but we didnt see it.

I just don't get how he can go from fully to nothing.

This is asd specific=- holler if you ever want it, its just on the shelf

DS3 had a full regression, after MMR but I don't know if it was that or not, it might have been. He was talking at 2 better than now, at 5 but his asd seems to become more pronounced- I dont now if thats a peer comparison thing but certainly he gets harder to manage. he's got a palce in SNU soon after everyone swearing he'd be OK in MS.

DS1 was just born the way he is, I remember saying in hospital he was inordinately independent! Didn't want to be hugged or kissed, just to lie on my chest.

Thanks Peachy, he is at the paed on Thursday so you never know may have a few ideas for us.

Hmm I did think about the mmr with Alfie, but I can remember him hand flapping from an early age, so think he is probably like your ds1, he was the same always like to held on my chest, not much eye contact etc.

DS1 (5.6) did this. I think some of it was definitely related to ds2's birth. He did have a rubella jab (singles) just before and ran a really high fever for several days so I guess you are never really sure what the cause is. As it turned out, he wound up with a major fecal impaction. We did an enema to clear then miralax for the next year and a half. Every time we tried to wean him off of it he had another impaction. Finally I decided to try some supplements and slowly reduce the Miralax. He's been doing well for about 6 months now but is still not dry at night and he definitely was at the age of 3. He still has the odd wee accident but at least we have the poos under control.

Hi Jabberwocky

Thanks for replying, with the fecal impaction, was he going at all or totally constipated, was he in pain? (as it sounds like he would be) Its just as per another posting, Alfie's is very small, smelly and quite frequentm but doesnt seem to have tummy ache at all. Im not sure if he is constipated as seem to be lose enough (sorry don't know how else to word it).

I was wondering if there was something wrong with his digestion. I know that gastro problems can be connected with ASD.

Good question. That's what made it so hard to figure out. He was going pretty regularly but it started looking kind of fluffy for lack of a better word. Then it seemed rather pale and what finally did it for me was a rather explosive episode. I was confused because it seemed like diarrhea but he only went once per day. The pediatrician said it was loose poo going around the impaction. He never complained about tummy ache with the first one although he did with a subsequent impaction.

We now do a daily dose of cod liver oil, mega omega 3's, large amounts of probiotics and magnesium glycinate along with a dairy-free diet. It has made a world of difference.

Thanks Jabberwocky (lovely subject lol)

I will mention it at the PAED tommorow and hopefully he may suggest something.

Its just Alfie also suffers with reflux, if he doesnt eat at night (if he had his way he would'nt) he is physically sick bile in the morning, which means we have to starve him until lunchtime, but then he comes out of it. Dr said it was childhood reflux and if it got too bad could give us something for it. So he obviously has other gastro probs.

I do think is diet needs looking at, and I want him to be referred to a dietician, however my fear is if I start cutting things out of his diet (his safe foods) he would eat nothing.

What a worry they are eh.

lol, I know, I never would have thought that I would become so knowledgeable about poo

Good luck tomorrow. Diets and gastro stuff are so hard. I feel like ds1 could probably use a trial of gluten-free but I just don't have the mental strength atm iykwim.

Thanks Jabberwocky, very interesting about the impaction. Fingers crossed for you also