Anybody i need some advice pllllllease

[mummytopebs]

My dd is 3.10 she has a few health probs chronic constipation, poor immunity, asthma, anyway she has been complaining of flashing in her eyes, we have seen consultant who is doing some tests for epilepsy but now thinks may be something autistic or aspergers

At first i thought this was a silly suggestion but reading into it see lots of aspergers symptoms in dd.

Loves routine (if we go on holiday she is a nightmare cos it is different)

Has rituals has to do a poo in a specific place, has to have her library books in the woom with her when she poos

very fussy eater

eats in order

very emotional if she got up on the morning and something was different would totally freak put

delay in speech

seems a little bit behind her peers

no eye contact with strangers, keeps head down

sits on outside of group

own little world when playing, will play for hours on her own

hates noise

What i was wondering was about this flashing in her eyes, have noticed she doesnt like bright light and think she may be colour blind but has anyone noticed there dc complaining of black and white flashing and also do the above sound like aspergers

sorry about the spelling am typing in the dark x

lots of things can co-habit, also can be a nightmare to diagnose as they are so similar in the way that they present. my ds1 also has most of these things and he is severely dyslexic. I teach students with asd, and yes all of the things you note are true of them too.
Your best bet is get through to your local paeds consultant and get into the system.

Do any of the children that you teach complain of flashing in their eyes?

DD went for a 24 hr eeg on wed but the sedation made her violent so they saif they will try again soon, however i dont know wether it would be beneficial to see someone who can see about asd before going through the 24 hr eeg

well no - but on the whole they wouldn't have the language ability to describe it. what we do observe with most is that they appear to be hypersensitive to noise, light (especially fluorescent), fabrics touching their skin, and temperature.
Another thing worth remembering is that there is a high correlation between epilepsy and asd.
Have they ruled out anything along the line of migraine? I don't know about this affecting children - I only got it during pregancy, but that can show as flashing light and visual disturbance too.

hopefully you will already have looked here?

They think it has been going on to long for migrane, she gets it nearly every day for about 60 seconds a day for about the last 4 month, also think she is a bit young for migrane. They have said it might be an overload of emotion coming out as flashes! Does this sound plausible to you? She doesnt like bright lights at all and still doesnt know her colours, leading me to think she is colour blind. She doenst like hand driers and hoover and if we go to soft play she is always saying its to noisy, and constantly saying the radio/tv is to loud

try not to jump to too many conclusions - ds1 was the same as this too, also thought he was colourblind as at three and a half he knew no colours at all, also thought he was colourblind Later on he knew the entire colour spectrum - his learning pattern is nil to 100%, no learning curve or steps or anything. Having said that, for years until he got his dyslexia dx, I was convinced he was on the autistic spectrum, All i'm saying really is keep your mind open, because even as a 'specialist' in this it can be still really confusing as so many things overlap between various disorders. The mums of the children who have asd are the gals you need - will keep bumping so they will see?!!!
How does she do with creative play - does she play alone with anything - like house/dolls/lego or anything?

I assume she has seen an paediatric ophthalmologist/eye specialist to rule out eye problems?
When do the flashes occur -is is associated with movement or getting up? Is it when she holds her breath? I'm just guessing!
The visual system is not perfect so there are lots of oddities that adults and older children no longer notice. I imagine a sensitive child may find it harder to ignore such things.

have you seen immunogislt about her immune system my dd nt, but has immune defcieancy and A1AD

might be worth asking next time has blooodtest if they can look at her iGA and iGG levels

Gigglewitch she loves playing barbies and hospitals will play for hours on her own

magso the ophthalmologist has tried to look in her eys but once again she went into meltdown, she has another appt on wednesday so fingers crossed she will let them look

phoenix she has had immunity tests done when she was a baby but nothing significant was found, she hadnt built up immunity for any of her baby injections so had them all again and has been put on long term antibiotics to ward off infection

Please do keep bumping cos would really like advice from asd mams and anyone really who has any ideas cos i am getting past myself now

Anyone dd goes to have her eyes looked at tomorrow and i am really getting stressed just want a dx, any aspergers mams about can read this thread and give a point of view?

anyone

I have an autistic son :
He had asthma
He had eczema
He loves routine
He had rituals like to hide behind the sofa and have a poo
eats in order
delay in speech
no eye contact
played on his own for hours

We have made a number of changes and the biggest impact was the diet - GF/CF. Within 1 month the eczema disappeared and he has not needed his inhalers since October 2007 which is when we changed. You have to plan very carefully to start with but now it is routine for us - the eye contact has improved and he just seems more aware of what's happing.

My dd has all symptoms you have mentioned except eye contact she makes eye contact with people she knows but not strangers until she gets to know them.

Has your son ever had flashing experiences in his eyes?

Do you think myy dd sounds like asd or do you think i should push for eeg again, i didnt even think bout aspergers or autism till the consultant mentioned it

The flashing eye - no but as it's a spectrum disorder - each person presents differently. For example he was constantly flapping and this has reduced dramatically.

I think you need to understand what the issue is for your dd and that may or may not be asd as I am a mum not a doctor but i have spent the last 18 months devouring all of the information I could find as the NHS did provide support it was just a battle and I was desperate to help him ASAP. So, I would recommend that you pursue a diagnosis but prepare for a long journey it's a marathon not a sprint. You need to know what the difficulties are as soon as possible.

I am happy to talk about it whenever you need to and just take things one day at a time.

If you want to feel that you are doing something I would recommend the dietary change as you have nothing to lose - try for a month and see whether it makes a difference. It doesn't work for everyone but it won't do any harm.

Sorry all the sentences are jumbled but I am shattered and off to bed.

My dd has had flapping when she is excited or anxious since she was a baby

Thanks for being there it is all very confusing

What where the dietary changes you made? I didnt know what the abbreviations where

been reading a bit about binocular instability which seems to be linked with some children with asd type difficulties. not sure if this would apply to your dd or not.

interesting to read about your dd's digestive problems and agree with bricks that diet may be a good place to start. we are tentatively embarking on a gluten free diet for ds and do feel there may be benefits. other things to try might be dairy free and cutting out additives especially aspartame found in sugar free things amongst many others.

lots of people have good experience of fish oils in terms of improvig dc's concentration and eye contact, but we've found it impossible to get ds to take them!

DD went to the opthomoligist today they couldnt find a reason for the flashing that is eye related, however they did find that she has poor sight in her right eye, which concerns me a bit as she had an eye test in june and was given an all clear perfect vision. So they are writing a letter to the consultant to add to her huge pile of notes- will this ever end?

Glad to be of help - GF/CF. GFCF stands for "gluten free cassein free." Gluten is found in wheat many wheat based products but you need to check the labels of everything, cassein in dairy.

You will find that Sainsburys and Waitrose have a great range of GF products eg pasta, bread, muffins, cakes etc. It is not an easy change but the younger they are the easier it is as they don't realise the difference. My son has exactly the same diet as before - there is even dairy free ice cream, spreads etc. The problem is when you are out and about you can't just buy a sarnie. Just take it slow and you need to plan a little - so buy all your products first and then start the diet chane. I agree about the sugar we have cut that back too. His digestive problems are dramatically reduced. You can get tests done at the Uni of Sunderland/Cambridge. But I think I would start anyway. Give it a month and try not to get too stressed.

.......'she has a few health probs chronic constipation, poor immunity, asthma...'

mummyto - you'd be amazed at the number of asd kids with these problems. We were just talking on another thread about a great book that I believe you should read -- Kenneth Bock 'Healing the new childhood epidemics'
When you realise that illnesses like asthma and excema has risen something like 400%in the last 20 years, never mind simple allergies (don't even get me started on anaphalaxis re eggs, wheat or nuts)
Autism too is on the increase (not to say your baby has it)
What i do mean is that it wouldn't hurt to clean up your childs environment, diet, maybe run some tests.
My ds has, allergies, bowel loading, inflammation of the gut/brain, mercury and lead poisoning, viruses, vitamin and mineral deficiencies.... oh, and the docs lump it all under one name .... 'autism'
Bricks - we had high readings from Sunderland and cut out gluten and casein 2 years ago.

j
x