Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

someone come and tell me something nice, ive had a sh*ty day!

19 replies

dsrplus8 · 27/01/2009 14:58

dd4 was up at stupid o clock again-cant get her to bed , cant get her to stay in bed....screams on and off all night...just need some sleep. few weeks ago her educational support suggested melatonin for her as shes been missing some of her nursery days because all this escalates into meltdowns(cant get her out house at times),didnt want to go that route but today i had enough. so off we go to doctors-was rewarded with "im not sedating your child".i didnt want her sedated, just asked about geting her help for the bad sleeping.bloody hell, whats the point of being told about help, if you end up begging and get told to "feck off"(not excact words used, but gets the point across!).shes had 3 meltdowns today, and i dont think i can cope anymore, its not her fault, and i feel awful saying this but today i want my "old"life back .

OP posts:
Novacane · 27/01/2009 15:18

No words of wisdom luv, and don't feel guilty for wishing things you don't really mean- we all do that from time to time.

My OH has mental health issues (long standing, hang over from abuse etc) These issues rumble under the surface but now and again he has an acute phase where he is very volatile etc under periods of stress. All his Dr offers him is a relaxation CD. Sometimes GP's are so removed from what is going on, they dont have any empathy for what we are going through.

I would try another GP, tell them how you feel, how you are exhausted and it is affecting her nursery.

HTH

MannyMoeAndJack · 27/01/2009 15:24

Not entirely sure about this but I'm not certain that G.Ps can prescribe melatonin - you may need to see a paed/developmental paed. for this (though I could be wrong).

Good luck - you need enough sleep at night to cope with whatever the day brings, so don't feel bad about wanting some help.

dsrplus8 · 27/01/2009 15:26

novacane thanks for posting,feel less of an island now! sorry about your OH and what you both are going through. you are right about GP's ,think im just goind to go direct to dds consultant peadis now....at least they should have some idea what to do(?).id put the sides back on her cotbed in a flash if i thought she wouldnt jump out and hurt herself falling.need cot bed with six foot high sides!- anybody know any carpenters?

OP posts:
dsrplus8 · 27/01/2009 15:29

Manny ,that a decider then im defo going to ask the peadis ! two weeks before we see them again( its the one for her growth, not the developmental ).thanx x

OP posts:
5inthebed · 27/01/2009 15:31

My past two weeks have been like this, so totally sypmathis with you.
DS2 has gone from a generally good sleeper, to a non sleeper

You can join me if you like on my half asleep island, its very spaced out

dsrplus8 · 27/01/2009 15:41

im there already 5inthebed, and its not fun.am so desperate i bought medised,.im gonna get flamed for admiting to that!never given her before so not sure.

OP posts:
dsrplus8 · 27/01/2009 15:45

in fact just thought of a plan....wait until 6 when DH gets home from work,i will have the medised and leave DH to enjoy quality time with DD !- and i go to bed early!

OP posts:
Novacane · 27/01/2009 16:07

I could not possibly advocate any use of a certain (wonderful) drug to be used in the manner it is not intended

I have never resorted to it after 4th or 5th night of no sleep, nope, not me, ever.

Infact a GP (that I work with, so not on the record) recommended medised for 3 nights, reducing dose, to get sleeping pattern back after he had a pneumonia and a hospital stay had turned his waking hours inside out and upside down.

MiniNova has been sent home early from school they say he's poorly, but hes just soo tired, he only been sleeping a few hours a night. hes curled up on the lounge floor, snuggled into a duvet, he will be asleep soon and then up all night!!

misscutandstick · 27/01/2009 16:09

i have had the same brush off in the past from GP, they wont do a thing for DS5 as 'he has a Paediatrician, have you seen him?' I know how infuriating it is.

incidentally, have you given tixylix nighttime a try? its meant for night time coughs, but it does calm a little. Childrens benylin does the same - but DS5 has a problem with that one so not sure how effective, if its anything like the adult one its worth a try

5inthebed · 27/01/2009 16:24

I've never tried medised, but know people who have. No flaming here. We aall know how hard it is without sleep.

Heres hoping you get at least a few extra hours tonight.

PeachyBAHonsPRSCertOnRequest · 27/01/2009 16:26

I of course would never tell you that melatonin is freely available on ebay

PeachyBAHonsPRSCertOnRequest · 27/01/2009 16:27

(we didnt even manatge to get ds3 through the school door today BTW! And he headbutted a sales assistant in JJB on Saturday! Fab.

feelingbetter · 27/01/2009 16:55

I have been known to give a little dose of Calpol to DS when he won't sleep has a slight temperature. He's still so little, it is enough to tip him off into the land of nod. Me, on the other hand......... He's had 2 nights of good sleep now and I feel worse if anything - even more sluggish than usual.
What are you supposed to do though? At least DS is contained in his cot, but I can't stop him squealing and kicking and playing for half the night, then sleeping all bleedin' day!
Your plan for tonight sounds exellent - quality time with Dad is vital!
Hope you get some sleep and feel better soon x

dsrplus8 · 28/01/2009 12:31

hello ladies! today is much much better than yesterday! DD4 slept from 9pm last night until 7am this morning, FANTASTIC!i have to admit i did resort to the medised , but she has had a brilliant day so far (coincedence?).got her out to nursery on time for the first time in ages, she ate her breakfast no problems, and had snack at nursery,no major meltdowns today at all!(wee tantrum in bath this morning,doesnt count as she hates getting her hair washed lol).cant believe the difference in her!what a result!.thankx to everyone who posted yesterday-you got me through a difficult day xxx

OP posts:
dsrplus8 · 28/01/2009 22:06

massive update! ...it official, my HV is a hero!...HV came to vist today, was arranged last week, and i mentioned the brush off from the GP....my god she was furious!!!!....ed as she's so not the angry type!anyway HV took it to visit dd4's peadi(SN)and she phoned me, told me she wold personaly make sure that the gp is to prescribe melatonin for dd4, on repeat!, and she was sorry we had the lack of help we needed!. what a star!. i love the peadi, i love the HV!....so have been grinning like the chesire cat all day!

OP posts:
Seuss · 28/01/2009 22:13

well done! hope you all get some sleep!

Novacane · 28/01/2009 22:13

aww that is good news luv, I did wonder about the HV the other day but it seems loads of ppl on MN think they are a pile of pish. I have had some rubbish ones, but a liason HV that has co=ordinating Mininovas assesments came today to see me and she was fab, gave me loads of new ideas and advice.

SOOOO glad you got some sleep, Medised can be a lifesaver IMO, yeah you could get all judgey, but I bet the judgey pants people get more sleep than we do :-)

dsrplus8 · 28/01/2009 22:37

judgey pants people can judge all they want Nova- when theyve done 72hours with no sleep/ and three years of broken sleep! .great about your HV too, hows mini's assesments going?

OP posts:
Novacane · 28/01/2009 23:17

Well after loads of assements since the beginning of December we had a case meeting and they have deferred the decision on ASD till Oct 09 to give him a chance to catch up or not lol. His biggest downfall is his comprehension of language, the SALTy type people think its just a language disorder, and the psychology type ppl think he shows ASD.

So we are left in limbo for another few months.

I know deep down its more than a language thing, but Im not no where near ready to face that or accept it atm, i'm finding it all rather bewildering.

I just want to know hes going to be able to live an independant life, and no one seems to be up to promising it. I could cope with anything if I knew, but its the uncertainty that drives me WILD.. (and to citalopram lol)

New posts on this thread. Refresh page