Just got DLA through

[alfiemama]

Well I can understand how you all feel now when you get this, bit like a bitter sweet pill. Pleased but sad.

Got middle care for Alf, but says we can claim for higher or lower when he turns five.

And that I can claim for carers now, How do I do this?

Anyone else I need to inform?

any help appreciated, as usual head in a whirl bit lost.

I agree electra, but not to blow my own trumpet, I really researched into how to fill the forms in, I included 7 pages of extra notes and I was very thorough, always putting suspected Aspergers etc, compared to a child of Alfies age.

Oh well I know he will get it when he is 5 and things will probably change when he gets his dx.

very good point electra, I agree, I have tried holding jobs down with Alfie and sadly will have to give up my job for the Charity, but his needs have to come first. I suppose this is why I need to know I am getting what I am supposed to, as we will just have one wage coming in.

dla for us mean the chance for ds1 to do things that other children of his age do. He wants to go to swimming lessons. The leisure center have said he needs 1:1 - £14 for half an hour (as opposed to £4 for a NT child in a group. I agree - it isn't about greed at all really.

J is vvvv high functioning and gets high rate for both now. See www.mumsnet.com/Talk?topicid=special_needs&threadid=608504-stupid-tribunal-aaaaaaaaaaaaaaaaaaaarrrrr rrrrrrrrrrgggggghhhh#12401328

Thanks Givemesleeporchocalate, sounds all sooo stressful and tiring, without wishing to sound mushy, poor you, I just dont think I could do it, I really admire you. Like I said I am happy with the amount its just the mobility, with Alfie having so many issues.

Perhaps once he has been seen and I am better again, I will have the energy to put up a fight, I have just so much going on at the mo, that my brain is frazzled and think he is aware of mummys stressed vibes.

Its like you said, why should we alway be fighting for them, why cant people just do there jobs properley and make our lifes a little bit more bearable.