Can someone please stop me freaking out

[alfiemama]

Not sure what to do.

As you know ds is 4.5 in ms school, has suspected Aspergers and Dyspraxia.
Dh went to pick up ds from school and the teacher came over to him and said that Alfie looked like he was going to collapse today.

They said he went blank and vacant looking.

Tried to ring the dr but they are shut today, arggghhh WTF

So rang the school to see what time, as dh hubby didnt ask this they said he wasnt going to faint it was like some of the children they have with epiliepsy, OMG, I thought maybe naively that epileptics fitted?

Alf has not been himself for a few days, seems quite pale and has been very disturbed, banging his head a lot.

Not sure if I should ring primary care, or hold on till the morning.

Dont know if I can handle anymore, still got this damn pleurisy and not on full cyclinders.

Another possibility is what happens to me - 'shutdown'. I just blank out if I'm totally overloaded. Whether it's in any way related to epilepsy I've no idea, but if he's not been well and is coping with school on top of that, that'd maybe do it. We're just SO bad at working out if we're ill and doing something about it (er, like telling someone...).

don't panic.
not all epileptics have fits, some just have absences. that does not mean your ds has had a "fit" but I would get him to the doctor, it might just turn out that he has an ear infection or such like.

hopefully it's just he's a bit overwhelmed as amber says. at one of his SALT assessments after 1/2 hour DS had had enough, and became nearly unresponsive - I could almost literally see his eyes glazing over!

sorry you are still unwell, pleurisy is nasty and takes a while to recover from.

Hi alfiemamma.

Don't panic, my ds1 does this too, it might not necessarily be eplilepsy. Ds1 jsut blanks out altogether and was tested for possible epilepsy but all was clear. Like Amber says, it can just be a method of dealing with sensory overload.

Dd1 (ADD) spaces out and goes off into her own world from time to time. She really does look as though she is not at all with it in the same way a petit mal episode would look. It gets worse if she is tired, anxious or coming down with something. If you've been quite unwell, then this is likely to be bothering your ds.
I'd definitely get it checked out ASAP, though.

Ah thanks you guys.

I knew you could calm me.

I dont think an ear infection, although you can never tell, but when he bangs his head its in melt down.

For example the other day he had his helmet on, which he is happy to wear but it was freezing so I put his bobble hat over the top. But it fell off in the wind and in a puddle, he of course wanted it back on but as it was wet I couldnt. He was horrendous, worse than ever, banging his head, shaking, screaming and crying. I got in the car and cried, it was one of them moments, Im sure we have all had, when you think shit, this is bad.

So you dont think I need to take him to primary care, but hold on till the morning.

He seems ok in himself at the moment.

Is epilesy a cor morbid? off to google

I can understand your worries, but don't panic!
Worth a trip to the doctor though, I think headbanging is sometimes associated with ear infections - so it could be as simple as that, especially if he's a bit out of sorts too.

Blimey, I'm a slow typer! There were only 2 replies when I started!

Alfie is a head banger anyway feelingbetter, he does it alot.

Just spoke to the teacher, she said more like a petit mal than a dizzy do. She said she would be happier if I kept him of school, and that she doesnt think he is coping at all. Luckily they do seem on the ball.

She also said the LEIS have been in today to see another little boy but he was off sick, so they showed them Alfie, she is coming back next week, finally, we may get some where.

Going to ring the drs tommorow.

Ok, been to the Drs this morning with Alfie, he said that he didnt look anaemic, even though ghastly white. But says does sound like a petit mal and has referred him to a nuerologist. Ive to ring back in a while for an appointment.

We even had a eureka moment last night, could this be why he falls and not the dyspraxia.

What happens at the nuerologist, are they seen quite quickly then?

If it's children, they're normally pretty quick. Good luck....!

Thanks Amber, just got an appointment for 20th Feb. I feel like I live at the hosp at the moment.

alfiemama it really is hard to spot absence seizures if you are not used to them, especially I think if your child's behaviour is often 'unconventional'.

DD was diagnosed with Epilepsy in early January after having falls. The paed said that from her EEG report, he suspected that she was having lots of absences that we were just not noticing. Soon after starting her meds, DD went 'vacant' after my Mum asked her for a cuddle, and just held her hand up to her mouth. Several seconds later she carried on as normal. It was the first time that we clicked that what we have been thinking is quirky behaviour is actually the absences that we haven't been noticing!

In some ways, it would be not a bad thing if it was the reason for his falls because then with the right medication, they should improve.

Hi Lou, thanks

Yes we did think that, and whether there were times when we said he seemed in his own world. Its just so scary isnt it, I just see my little boy deteriating before my eyes.

Like you said if it stops the falls, then its got to help.