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Here are some suggested organisations that offer expert advice on special needs.

abba or hanen help please

20 replies

Phoenix4725 · 21/01/2009 06:23

ok i een seeing alot bout these on the board and though seems to be a lot bout using with kids on the asd .Does/has anyone used on a child with GD and sld though been told hes not on asd becuase he wants to communicte .

But he does lack imagintave play and struggles with interacting in groups and no understanding of danger .hess not agressive in fact hes extremley passive

But wonder if these could help at all

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Phoenix4725 · 21/01/2009 06:24

argh and sorry about spelling coffee and kb do not work well together

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TotalChaos · 21/01/2009 09:55

I only have experience of Hanen, not ABA.

hanen wouldn't help with understanding of danger - aba probably would (Hanen is geared to wards language and communication, ABA is more geared to behaviour - which includes language).

Would imagine you would be able to use ABA with a child with GD - and definitely you can use Hanen with a child with GD - as there were parents of kids with DS and GD on my Hanen course. If you e-mail me, you can have my copy (for free) of You Make the Difference. It's not the full Hanen course book - it's the book for the potted version Hanen course they give to kids who are at risk of/very slightly delayed.

TotalChaos · 21/01/2009 09:55

btw - DS imaginary play developed as his language developed.

Phoenix4725 · 21/01/2009 10:45

Hi Total chaos

How did you find out about hanen is there course somewhere would love to give it a shot as were not progresing with the normal approach , The salt we have is worse than useless

have done and thank you

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TotalChaos · 21/01/2009 10:49

The You Make the Difference course was put on by Surestart (it had a free creche, but wasn't run by SALT - it was run by an ed psych (bizarrely given they have long waiting lists too round here!), and a family support worker. The Proper Hanen course "It takes two to talk" was put on by the SALT department - had to wait several months on list for it.

I would contact your nearest Surestart (think you live in/near a city don't you?) to see if they do a Hanen or other course to help you help your kids communicate. And phone up SALT department to see if they do a Hanen course.

Phoenix4725 · 21/01/2009 10:56

thanks
have tried salt but they dont run one at all but will try surestart , were about 20 mins from large town so might be something in my own town surestart does not do much and what they do is aimed at under 16 months but got be worth shot.

unfortunatley theres s no family support worker available and because hes not agressive also i am considered to be coping

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Phoenix4725 · 21/01/2009 11:14

called sure start they had herd of itbut nothings been run in this area forlast few years,feeeling could mean need to hed up to london,do you know if there isanyway of getting help with fees

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TotalChaos · 21/01/2009 11:16

what do you mean by fees? there's no charge for the SALT or Surestart courses? or do you mean fees for finding a privately run hanen course? only thing I am aware of is cerebra scheme where if your child hasn't had SALT for at least 6 months you can apply for up to £500 towards private SALT fees.

Phoenix4725 · 21/01/2009 11:29

the private run course, there is none available locally through surestart or our salt just been on to them ,.we do see a Salt evry 3 months but shes admits he needs more help but there under presrew and been told that they need to do more with the easier cases to bring up there case closed loads , actually admitted to me of the record that where there is sld they been told to shelve us bascially

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notfromaroundhere · 21/01/2009 13:03

What PCT area to you live in Phoenix? I live in the Mid-Essex one and my DS1 was referred to what they call a multi-disciplinary assessment which involved a series of game play tests (ADOS) with a SALT, OT and Paediatrician. The critea for a referrral was for concerns about the child in possible areas of:
Communication
Learnining Needs
Social Internaction with peers &/or adults
Attention and concentration difficulties
Physical difficulties
Co-ordination difficulties

It was DS1's SALT that suggested he be referred but I had to get the paperwork done for the referral by a GP or Community Paediatrician. How would you feel about pushing for some kind of assesssment like that for your son?

Other than that I would write and outline your sons difficulties to the PCT, heads of dept etc asking how a SALT visit every 3 months is deemed to be sufficient.

electra · 21/01/2009 13:07

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electra · 21/01/2009 13:08

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Phoenix4725 · 21/01/2009 13:51

hi notfromoundhere
im in east essex nr colchester we have seen all the usural peple ot/pysio speech etc i pushed for this we just had our second 6 monthly team meetings,.
From physio point of view he has hyprmoblity and hyptonia , ot well we see them once and shes like your doinga ll right things carry on i will see you in another 6 months and now left so there is no ot at al for the moment.
Paedtrcian feels hes not on the asd sspectrum
(though he does tick a lot ofthe boxes and pesonall I think he is ) as he wants to communicate and will make eye contact but he has diffcultiess in all the areas you mentioned ,shes gone with Gd and SLD and a were just see how he goes and oh he such a cute an pleasant chap everyone loves him,like this is going help him

have just applied for statement as hes dueto go school in spetember we alredy get 1r 45mins in a 21/2 session after seeing the Ep and the second time shes noticing the gap beteen him and his peers is widening
mind right now he sat in the cupoard playing cars ,mind lol can imgine what DD 5 tells her school teacher about her brother and a cupboard

And sorry abut typos cofee and Kb not good mix

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notfromaroundhere · 21/01/2009 14:14

I suppose what you need is the right support for him and if they are just going to DX and not offer further interventions there's no point.. Could you GP refer him to a more specialist Paediatrician if you told your GP you weren't really getting anywhere?

He sounds very cute playing in the cupboard

Phoenix4725 · 21/01/2009 14:21

lol I changed my Gp after lst one would not admit there was problem , i had go round to get him even refered in first place ./though was a v good moment when demanded and got a appolgy letter and the words over anxious mum removed of his notes .But my current gp is another hands of he does not to arse kicking but i do.

But think your right time to get second opion even if only own peace of mind

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notfromaroundhere · 21/01/2009 16:18

Its hard to work out what you need to be pushing for when the options aren't exactly clear. DS1 was DX with ASD in December and I am struggling to find out if there are any specific programmes available that would benefit him. I hope you get something sorted.

mogwai · 21/01/2009 16:28

such a shame people want private hanen courses. We tried to run one, advertised it everywhere and only got two or three interested families - and it's great!

TotalChaos · 21/01/2009 16:31

mogwai - agree - not only is it a brill course, you also get 4 SALT home visits with it, so in that respect it's very much geared to the individual child. There was a huge drop off rate on the course I attended - apparently in my city the ASD course Hanen parents tended to be better attenders.

notfromaroundhere · 21/01/2009 16:40

I know they are based on the wrong side of Essex for you but it might be worth contacting SNAP
I haven't got round to it myself yet but I think I will

Phoenix4725 · 21/01/2009 18:21

Mogwai if there was run anywhere near
here by salt i would go but sadly there is nothing available

will chase up snap in the morning thank you all for your replies

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