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has ds got aspergers advice please

25 replies

mumsobusy · 18/01/2009 08:57

Ds is 3.5 has mild cp I ve started to notice certain things which has got me thinking has he got asperger or is it a toddler problem would appreciate if you could give advice, if so what do I do please
Ds is very social and friendly a very clever boy has been able to talk since 1 years and now count 1-20 recognise 90% alphabet know all main colours and shapes and animals is very good with computer
but
starting to have temper tantrum(maybe because hes toddler), has big problem in eating will not try different food keeps to same which must only consist of 5 different things,
hates costume dressing and people dressing up (e.g. christmas teachers got dressed up as elves and ds was very upset)Does not like crowds or noises covers ears, does not like face painting or geting hands dirty. does not like walking wihout socks.
Hates routine changes (e.g. if we go to granddad house only granddad can open door or aunties only auntie opens the door if someone else opens the door he gets very distressed so we have to retrace steps and grandad (or whoevers house it is) will open door then he will calm down this happens everywhere we go.
Has friends but gets very upset when friends make nasty remarks thats how he thinks to me their only kids (e.g. not friend dont sit with me he will repeat this to me so many times and show he was very upset about remark)
That is another thing he will repeat and repeat same thing over over again watch the same thing over and over again, He will only wear Jeans

Sorry this turned out very long would appreciate if any advice

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tipsycat · 18/01/2009 09:21

Has his nursery teacher expressed any concerns? Might be worth a quick chat with them, if they have also experienced his difficulties with routine change, sensory issues etc, i would recommend requesting a referral to a development paed via your GP.

If there is a problem, better to get help for him ASAP. MY DS (now 7) was diagnosed with ASD at 4. Good luck.

MaryBS · 18/01/2009 09:56

Your son sounds a lot like mine. It was the "hating dressing up" and the "need for a routine" which caused the pre-school to flag it up with me. He was eventually referred by the primary school, and was diagnosed with Asperger's aged 6.

It was following his diagnosis, that led me to conclude that I had it too, and I was diagnosed last September.

sarah293 · 18/01/2009 09:58

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Clarissimo · 18/01/2009 10:05

Hi Mumsobusy

It sounds like he may be. AS is one of those things where the kids can differ quite markedly: unlike Riven's son for examlpe, my ds1 often has quite good eye contact but he ahs very severe difficulties (on the AS severe anyhow) in various other areas.

He is yound, very few palces qwill dx at that age as in many ways it can be very like toddler behaviour (ds1 was 6 when he was given a dx).

The thing you need to look at is called the triad of impairments: the best one imo is on the NAS website, will fetch you a link.

Please don't worry; kids can grow out of these traits and even if he doesn't many As kids go on to have fab successful and happy futures.

here

sarah293 · 18/01/2009 10:27

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LynetteScavo · 18/01/2009 10:33

Oh bloody hell, I was about to post that DS1 did all those things at 3 had doesn't have a diagnosis.

Clarissimo · 18/01/2009 10:34
sarah293 · 18/01/2009 10:36

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sarah293 · 18/01/2009 10:39

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sarah293 · 18/01/2009 10:40

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Clarissimo · 18/01/2009 10:45

pmsl

ds1 has a lot of problems- possible anorexia (), various phobias, etc

of them all as is so manageable tbh- some of his symptomes are ess than typical but thats the thing- most kids with AS are great little people who just need you to adjust your world slightly to accomodate them.

the ones that hit the news etc are the nes with loads an loads of co-morbid issues IMO and that scares people a lot

sarah293 · 18/01/2009 10:47

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Clarissimo · 18/01/2009 10:51

Yes and I think ds1 is going the same way (but yo know him well enough to understand why I ahven't yet pulled him out with ds4 around).

Plus I might have ds3 home edded after the 1-1 fiasco at the school!

But I know in my heart that at some point I will have to pull him. he's lost almost a stone and it's getting too much by far now.

sarah293 · 18/01/2009 11:02

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mumsobusy · 18/01/2009 20:17

thank you for all your replies clarissmo thanks for the info

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mumslife · 18/01/2009 20:38

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emsylou · 18/01/2009 21:14

I havent read all the responses, sorry. it does sound like your son has alot of as traits. not just normal toddlerdom. because of the structure and routine of childcare placements and the volume of children to adults and lack of awareness or understanding of AS, they may not highlight any issues. Wehad a late diagnosis, age 8 and although i went to his school voicing my concerns at age 4, I was told he was too young to diagnose and because he was making friends I was made to feel like a neurotic parent. You know your son better than anyone and the earlier you get the diagnosis the better. speak to everyone, GP, health visitor etc. Good luck.

mumsobusy · 19/01/2009 11:34

someone is coming to talk to me next week I ll let you all know in what happens I ve started to write everything down so I dont forget to mention certain things. only I dont know there is something that came to mind which when we speak to him in a different tone (tell him off) he starts crying and say we hit him. should I mention it Im uncomfortable it will be taken wrongly is that important

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emsylou · 19/01/2009 16:22

i would mention everything, when my ds used to get in uncontrollable rages he used to say the most awful things which werent true and he would be deeply ashamed and sorry later when he had calmed. professionals are trained to understand these types of issues and you are asking for help, you dont have anything to hide. They will know when they meet you that your ds is loved and cared for. Be upfront i always think but I have only had positive experiences with professionals. Will look forward to hearing the outcome.

mumslife · 19/01/2009 20:25

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mumsobusy · 04/02/2009 15:07

Today someone came to assess ds before deciding she said she'd have to go to nursery and see him there but at the the moment she doesn't think ds has any aspergers traits because he is social and very friendly and makes eye contact. I feel a bit guilty for making a fuss

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mumslife · 04/02/2009 19:41

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amber32002 · 05/02/2009 09:39

A lot of the problems of diagnosis happened because schools only referred the children who were really disruptive and really unco-operative, nearly always boys (since girls tend to rebel in quieter ways, or tend to be better behaved though there are exceptions to every rule).

So...they developed a checklist that matched the behaviour, not the cause.

We can be friendly. Many of the people with ASD I know are very friendly indeed and would like to have lots of good friends (perhaps one at a time, though). But we're not able to use body language, tone of voice or facial expressions very well. We're not able to see others do those things, so we miss 85-90% of the communication and can make terrible mistakes about what's meant.

Consider the phrase "Thanks very much!" If there's a with it, we can guess that this means thankyou.

Consider someone saying "Thanks VERY much"

We can't hear the difference, we can't see the sceptical face. We'll probably still think it's a nice thing for them to say

We're not good at remembering who's who, or getting quick information about that person out of our brains. It means that if we're somewhere familiar with one familiar person to chat with, we can cope in a friendly way. But put us in a mixed social group with a lot of noise and unexpectedness and watch us panic after a while. We can't handle it. As adults we get better at handling it for longer, but it is SUCH a strain.

Friends get very fed up with us getting it all wrong. They don't bother after a while. Well, some do (bless them)

What's needed is very sophisticated body language monitoring to see how different that is and whether there's natural copying, natural understanding of tones of voice, but none of the tests even look for that stuff yet. They've hardly begun to look at the sensory issues, and those are such a huge thing for us.

Like I say, the old ways of assessing an ASD were based around "is this a badly behaved unco-operative boy who won't look at me and is defiant about change". Not a good way to spot the rest of us.

claw3 · 05/02/2009 10:20

mumsobusy - I recently started a similar thread to this about my ds!

I found this quite helpful, its a detailed kinda check list. You have to scroll down a bit. Hope its of some help to you.

en.allexperts.com/q/Autism-1010/2008/9/4-year-old-Autism-1.htm

mumslife · 05/02/2009 19:03

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