Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Claw3 are you there please

16 replies

alfiemama · 08/01/2009 19:43

Hi Claw

I have been reading with interest your posting on your ds and the snow. (sounds a very sweet boy)

I noticed that you mentioned that your ds was dx because of food issues. A lot of what you have been saying has started alarm bells with me. You see my ds who is 4 is going through the process of dx for Aspergers/asd but has major food issues and will not have milk on cereal etc, doesnt like food to be spilt on him, only seems to eat a very beige diet.

I suppose what I am asking in a muddled way (2 year old rushing me for his bath) is there a big connection with food and this disorder?

I have googled and a lot of the symtons seem to tie in with Alfie.

We are seeing the community paed 12 Feb and want to be armed with as much info as poss.

OP posts:
Tclanger · 08/01/2009 20:37

This reply has been deleted

Message withdrawn at poster's request.

alfiemama · 08/01/2009 21:21

Hi Tclanger

Sorry I think I prob havent explained my posting properley.

Ds's issues are more with what he will and wont eat, however I am interested in your link as he does get child hood reflux, which I do believe there is a connection with gastro probs. thanks

OP posts:
alfiemama · 08/01/2009 21:21

Childhood even

OP posts:
Tclanger · 08/01/2009 22:32

This reply has been deleted

Message withdrawn at poster's request.

alfiemama · 08/01/2009 22:47

No probs Tclanger, the link is good to me for a diff reason lol.
How did you get him to eat new foods please, please tell me.

Something happened at school today, which I should be jumping for joy, but well feel a bit of a failure to be honest.

Ds as you prob no, will only eat a beige diet, very very selective, but today the teacher put in his special diet he ate a carrot. WHAT! why can I not get him to do that, and believe me its not through no trying.

sorry rambling now Tc

OP posts:
Tclanger · 09/01/2009 08:15

This reply has been deleted

Message withdrawn at poster's request.

alfiemama · 09/01/2009 08:33

Morning Tclanger

To be honest we have tried that, even my 2 year old says lick it now, kiss it to him.

Dh says its because he may find it hard to show the fear at school, but at home can show us. Usually runs into the downstairs loo crying his heart out.

Alfie absolutely loves baking, but still will not lick the spoon, or actually eat what he has baked.

OP posts:
Tclanger · 09/01/2009 09:22

This reply has been deleted

Message withdrawn at poster's request.

alfiemama · 09/01/2009 10:17

That will be the first thing on our list

Alfie will gag also, you can see the fear on his face, awful isnt, but you have given me hope, because I know you have struggled from when we have spoke before.

OP posts:
Tiggiwinkle · 09/01/2009 10:24

Alfiemama-you may have noticed my posts on one of claw's threads. My DS5 has AS and has had severe food issues too. He is 9 now and still has a very restricted diet (definitely a beige one! ).

His diet largely consists of cereal and milk, bread, youghurt, a very occasional banana and not much else. it is further complicated by the fact that he has coeliac disease so has to have gluten free food and can only eat rice-based cereal.

Food issues are very common with Asperger's.

alfiemama · 09/01/2009 12:43

Hi Tiggiwinkle.

Yes we were thinking of Aspergers, but, god this is going to sound awful, I was told that Aspergers tend to me really clever. Although I think he is, I would not say he was exceptionally. So have become to think he is more Autistic Spectrum Disorder. Just when I saw Claw3's post I thought I would look up the disorder, to be honest though, now I think it was sensory interogation disorder (hope thats right) (pops off to find the link I had)

OP posts:
alfiemama · 09/01/2009 12:46

www.incrediblehorizons.com/sensory-integration.htm

oops just noticed I put interogation, should be integration

OP posts:
Tiggiwinkle · 09/01/2009 13:33

Hi alfiemama-they do not have to be exceptionally bright to be given an AS diagnosis. The diagnostic criteria state that a child should be of average intelligence or above.

The sypmtoms of AS tend to overlap with those listed in the sensory integration link. (there are a group of Autistic Spectrum disorders known as co-morbids and a child on the spectrum may have one, or several of the disorders. They include such things as Obsessive compulsive disorder, tourettes, dyspraxia as well as Asperger's. It is a very complicated field and needs an expert to diagnose which, it any, a child has.

Does your DS have any issues with routine, obsessive interests etc?

alfiemama · 09/01/2009 13:42

Yes he does Tiggiwinkle.

Very obsessive about little objects (feathers, pieces of cotton etc) has to take his shoes off all the time. Will only go to bed following a strict routine.

He ticks all the boxes with the traits of Aspergers, stacking, lining up toys, hand flapping, food issues, echolalia, speach is strange and adult ifykwim, sensory issues with water and tooth brushing etc. everything apart from the above average intelligence, although this could come in time.

I am almost sure ds has an asd of some description with a co morbid of Dyspraxia and perhaps tourettes, because of the hand flapping, although I have seen on some disorders the hand flapping is evident.

However a chap I spoke to once, whos grand daughter had tourettes as a co morbid of asd, only became apparent when she was 9 and she started with the hand flapping.

I know I should just wait for the paed to see him, but cant help researching, just think it helps me understand him more.

OP posts:
Tiggiwinkle · 09/01/2009 13:47

They just have to be average intelligence Alfiemama-not above average-to get an AS diagnosis.

The hand flapping does not indicate tourettes necessarily. It is very much part of Asperger's. I have two DSs with an Asperger's dx and both have hand flapped (one is 20 now and no longer does it, but the 9 year old still does it a lot.)

alfiemama · 09/01/2009 16:08

Thats good to hear Tiggiwinkle, that co morbid does scare me, Im ashamed to say.

OP posts:
New posts on this thread. Refresh page