night time seizures

[thebellsthebells]

does any one have experience of silent night time siezures. my DS1 is on keppra and epilim and his siezures are as controlled as they will everbe. Several times I have gone into his room by chance at night and he has been having a tc but with no noise whatsoever. Is there anything that we can use that will alert us through the night. We use a baby monitor at the mo but it depends on him being noisy for us to hear and wake up. We were given a cctv for his room but you had to keep the light on for it to work and guess what he wont sleep with the light on, so I ripped it out and took it the tip. Is there anything out there to help?

The muir maxwell trust provide epilepsy alarms which will raise the alert after a few seconds of T/C juddering. If your child has seizures which stop breathing without necessarily all the jerking and twitching they will supply an apnoea monitor instead.

Any help?

Interested to hear advice. my DS has night seizures, and I only ever see them by chance.
No advice really.

Many thanks all I will look at the maxwell trust info unfortunately riven my son is not my birth son, I am his foster carer so co-sleeping is definitely not allowed. it is purely by chance sometimes that I see them. Thankfully he doesnt stop breathing or else i would never get any sleep I would be camping out at his bedside. You would think that in this day and age when we can send men to the moon someone would be able to invent something to help.

When my DD was born she couldnt cry, she only made movements which were very seizure like. I bought a slumber bear plus, which instead of activating to sound it also activates to movement, its really helpful to me, although DD does cry now.....she doesnt always automatically.

Got my alarms from The Muir Maxwell Trust this morning. An Apnoea monitor and a movement (TC) monitor combined. Brilliant, only took about 2 weeks

Hi thebells - my DS has nighttime seizures too. Some we hear them as they start with a huge gasp, but others are more partial types which we don't hear. We go through phases of having him in with us or even on an airbed in our room, but touch wood at the moment they are under some kind of control (compared to the 10-12 he was having over the last couple of weeks)

How does an apnoea monitor work monstermansmum?

They dont do a monitor for abscence seizures or very quiet/still types of seizures so the lady at MMT recommended a monitor that triggers an alarm if they dont breathe for 20 seconds. It is combined with a movement sensor pad for tonic clonic seizures. First time using it tonight and he is well at the moment so it may not pick anything up - hopefully!! (I'll feel terrible if it turns out he's been having loads of fits that we have been missing