I am just feeling my way through this and trying to handle DS - I am so totally overwhelmed

[senatorvass]

I have been posting recently about problems my DS is having, emotionally. He is getting EXTREMELY upset and totally unable to be reached and I am so so so upset I just dont know how to help him. We see Peadiatrician tomorrow so will be in the process of getting a DX but for now all I know is there is something really wrong and I dont know how to cope. You know... he just loses it. I put his cheerios in the "wrong" bowl and he flipped for about an hour and ended up rocking back and forth in the bathtub.

Today - same thing. He is so upset and crying and everything is wrong, the order of everything is wrong its just awful. He is 2.6.

He has just stopped crying after crying for about an hour and a half and it all sparked off because of little things, like a cheerio fell out of his bowl and one of his little play people fell over and its just been awful. I just cant get through to him. I am so upset.

This has been going on a long time but getting worse very quickly now but we are probably still a while away from getting a DX and help and I dont know what to do in the meantime. How do I cope?

He is now throwing things at me and shouting "no!" and I dont know why.

I think they are happy to perform the test before diagnosis (if that si what you want to do). I had dd1 test post-diagnosis, but she was diagnosed very young at 2.8 (after nearly a year in the system)

What is your ds's diet like? Does he like lots of milk? or have a huge liking for cereal/pasta/bread? quite often (although not always) if there is an issue wih gluten and casein thn the children are self-restricting to foods which contain these things, as they are delivering a high for them

very strange again!

Well we are veggie so he has no meat or fish. He loves milk - we really struggle to keep him from drinking WAY too much. He loves bread, quorn nuggy things, quorn roast, cheerios, pasta, some fruit like bananas, red grapes, of course adores chocolate (it was the only thing he asked Father Christmas for!) and liked cous cous.

tbh, if you are suspecting ASD, and your ds is addicted to milk, and likes gluten foods (a lot of the quorn prodcts have flavourings in them, or milk and/or gluten - I can't buy any of them ofr my dd) then I would do the test.

At least then you'll know whether he is just being toddler fussy or whether he may have gut issues.

Sometimes people find it doesn't make a difference, but we did, and there are a few of us on the SN section who do a GF/CF diet (gluten free/casein free). Others do just GF OR CF, depending on what the results showed/what they found when they excluded foods

I thought it was worth a try, and it has really cut down a lot of dd1's seemingly irrational howling over it raining/not raining/need for total routine/anxiety etc