Ds1 off chloral hydrate...any ideas on hw to make him sleep??

[mummyto2miracles]

Jack was at hospital yesterday as very drowsy, meds have bn increased too, so told to drop the epilim, and take him off chloral hydrate until he is more himself

But he is Much MORE alert today, had no chloral hydrate last night but only slept for three hours or so

Any tips on how to get him 2 sleep anyone??

He has severe epilepsy due to a genetic disorder and other probs

Anyone??

haven't really got anything beyond the obvious to suggest, such as blackout curtains/co-sleeping etc. Not sure if essential oils such as lavender are contraindicated with epilepsy, have a feeling they may be.Sorry I can't be more help.

Got blackout blind, he sleeps in bed with me, just dunno wat else to do, can't bear another night of practically no sleep for Jack and myself

does he watch telly? could you bring telly into bedroom so he can watch it and you can snooze? sorry I'm not helping as you will have I am sure thought of all the obvious things.

is he allowed Piriton or medised - both have drowsy properties and last about 5/6 hours for my DS?

he is allowed pirton as he has hayfever, but too young for medised, totalchaos, he does love telly, tried putting on "in the night garden" its his fave lol in bed but he stays up so he can watch it lol

Just want to let you know that Piriton is contraindicated if you take epilim and certain other drugs. It isnt necessarily dangerous but the epilim dosage needs to be adjusted (reduced) by a Dr. Your pharmacist should NOT sell/prescribe hayfever remedies if on anticonvulsants. (You can use the older type hayfever meds, begins with L I think-sorry I cant remember the names!!!! but with caution). Have you tried melatonin? Doesnt always work but its worth a try. Fortunately the body does get used to less sleep-its just hellish whilst you are re-adjusting! My son has Angelman Syndrome which inc epilepsy and a (no) sleep disorder so I do understand how you feel. Try a good dose of calpol and the usual warm milky drink etc etc?

No advice, but sooooo pleased to hear he is a bit better xx
PS - have been known to give a little dose of calpol to send our little nightmare off to the land of nod. Doesn't keep him asleep but is usually enough to tip him into it if he's fighting it (which he usually is) IYKWIM!

Thanks, am off to bed sn so will let u knw, he has just had a really bad nappy so maybe also the cause of his drowsiness last few days

calpol does put him to sleep it's gettn him to stay asleep lol

He has fallen asleep, but he will get bk up,ah well......

it might take a while. when I came off benzo's I had a horrendous time sleeping for a couple of weeks.