Scoliosis

[mitchell81]

I had some good and bad news today, we had to travel 120 miles each way to go to Edinburgh yesterday to see a specialist that deals with spinal surgery. I have been so worried that DD would need surgery for her scoliosis.
Well after a 3 hour wait and many xrays they told us that her spine was 1 being the best and 10 being the worst (She was a 10) it is
curving both ways forward and backwards. But seeing it is so bad but not affecting her and shouldn't get any worse because of the position it is in. She won't be needing surgery. I am so happy, the best christmas present ever. God I sat here crying again, I don't think I realised how worried I was.

They explained the surgery would have been life treating because they would have had to expose her whole spine and they could never have got it straight. She would have had two metal rods down her spine and they would have been attached to her pelvis. Because it doesn't affect her as she is not in pain and her breathing isn't affected they don't need to do anything about.

Thank you for reading just wanted to share it with you.

yes that's quite a mixed result, but good that she's not going to go through the risk, pain and recovery period of an op for the scoliosis.

What a relief for you...I have a spinal scoliosis, but it's never needed surgery. The one bit of amateur advice I'd give you is to use some sort of joint supplement to keep her joints healthy and well lubricated through life, as it can cause arthritis later (as it has done with me). Worth talking to doctor or chemist about, I think.

Amber Thanks will do that is good advice.

Mitchell that is great news.

I have a colleague who has what your dd has. I think she had some surgery, but it has not fixed the problem. Yet she has successfully carried a baby full term (despite being 4ft7). It was tough but she did it. So everything is possible for your dd

Thank you for your comments, it is interesting to hear about other people who also live with scoliosis.

Hi, Just a message of support. My DD has just been through several years of brace treatment and other DD has to have her scoliosis monitered as its a milder case. I'm usually on this site about DS though who has AS/Autism!

Hi Mitchell, good news, the relief must be immense!
Have you ever looked at specialist scoliosis physio.
There is an award winning centre here in Suffolk (i'll try & find a link), they have fantastic results both in long term improvement & preventing surgery.

Unfortunetley we live in Scotland and there doesn't seem to be any specialised physios up here.