Tremors - who knows anything about them?

[r3dh3d]

And I do not mean the film.

DD1 (age 4) seems to be developing a tremor. One of her conditions means she is at risk of intention tremors in old age (well, from about 60) but I'm guessing it's not the same thing. From a brief google, I think it is postural.

She's started twitching in her sleep too, though that may be unrelated.

Any idea? Is the sort of thing that does tend to come as a downstream effect of widespread/complicated damage in the brain, and just one of those things, worth mentioning to the consultant but he won't get excited? Or is it something new which needs investigating separately? No-ones mentioned/asked about it before.

What does it look like? DS1 has strange movements (muscle that contract then release) but I've never got to the bottom of them.

Dont actually know what causes them but kids with Angelman Syndrome (ds1) often have a tremor and they are usually regarded as harmless. They are not related at all to their epilepsy. Ds1 also twitches at night almost in a sequence-rt leg, then rt arm then left arm etc, its called Myoclonus and are different from myoclonic epilepsy (Jerks) which are also very common in Angelman kids especially at night. If there is a regular pattern I wouldnt worry too much, but if you dc also has epilepsy and the night time twitches are more of a 'jerk' than a twitch, ie you can see them as well as feel them, then I would mention it to the paed or neuro.

DD has myclonic jerks its like a twitch in her head, it happens when she put on weight and needs her meds increased..Pead said they arent dangerous, but they could be uncomfortable and take alot of energy out of her. She doesnt seem to do them asleep and they are more when she is either ill or has wind etc

I think its work mentioning, video it if you can, I did this for my Pead and she was able to tell me straight away.

Well, myoclonic jerks is about the only seizure type that I thought she didn't have!

It's more like comedy-style alcoholic shakes than anything - the hand or (more likely) the head trembles/wobbles slightly. Generally happens at breakfast. The twitches at night are definitely visible. Though they come and go - I only spot them every now and again.

I'll mention it. It's annoying because we had an appointment just a couple of days ago and I forgot to say anything.

Can you phone? My Pead always says to phone if im worried about anything not to leave it. She always gets back to me very quickly, if not there.

DD is like a tick of the head, almost like she is shaking it but only to one side. She is on clonazepam which keeps it under wrapps most of the time.

Ds has hypermobility in his joints and a tremor in one of his arms/shoulder. The OT picked it up when he was diagnosed as dyspraxic (as well as HFA/aspergers).
I'm still not great at noticing it tbh...although i've seen it when he is tired.
It's like a sudden sideways wobble/jerk..when he's trying to do something (that doesn't sound right but i can't describe it).
She almost described it as a break in the circuit as i recall.