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Getting a Dx for dd1 today, what to expect? Wish us luck

35 replies

Marne · 03/12/2008 12:02

I have an appointment with the Autistic dx team at the hospital today to discuse dd1's asesment for AS. Hopefully we will be getting a dx for her. I am going on my own (dd not allowed to go and dh looking after dd2).

I assume i we will all sit around and discus dd1, is that right? I don't realy know what to expect but i hope all goes well and we get the dx we want for dd1.

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lingle · 04/12/2008 10:31

Hijack: "one of the things i do thats always surprised people is i hear a tune and then i can play it straightaway on a piano,recorder,organ whatever"

Jenk1, - me too. Three hundred years ago this talent would have made us rich! (or got us denounced as witches: or possibly both at the same time).

bubblagirl · 04/12/2008 11:22

hi marne just read what you said about your dd2 with alphabet and being non verbal my ds at the age of 2 was non verbal but did know all the alphabet he is 3.6 now and is great with letters numbers and shapes

he was dx with HFA at 3 cant read but but can write the alphabet can write up to 34 now and can recognise numbers up to 36 and then he can recognise 100

just reminded me of him his speech came along properly at 3.5 over night was talking in sentences before that the odd word but no real understanding for them xx

Marne · 04/12/2008 12:02

Oh i dreem of the day where dd2 will speek , we had portage today and dd2 decided he would talk in (babble) for an hour which she never does when i'm on my own with her . I might atempt writting with her soon but she doesn't handle a pencil well. I have a feeling she might be able to read small words, she runs her finger along words/letters as if she is taking it all in.

Bubbla- your ds sounds very bright, dd1 was good with numbers at 3 but has only just learnt the alphabet at 4.

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bubblagirl · 04/12/2008 13:37

he knew all that at 2 which is why we knew something wasnt quite right his brain has always needed to be stimulated with difficult things

we had to keep correcting my ds with his pencil alot and now he can hold it properly his fine motor skills arent so good he cant use scissors but can now at least hold a pencil correctly

my sons main thing is computer he learnt so much emotions sign language from c beebie games he now plays games directed at 6 yr olds so definatly high functioning end of things

my ds cannot break down words to try and read he doesnt get it and his speech sounds are atypical he needs alot of speech therapy but they will get there with the right help your dc sound adoreable xx

lingle · 04/12/2008 15:38

Hey - that babble's pretty exciting isn't it? My DS2 is now using babble when he wants to "talk" about something that's beyond his speech - like a play date that happened today.

Marne · 04/12/2008 17:16

dd2 seems to babble all day one day and then nothing for a few days but today she seemed to be going for it like a full blown conversation that only she could understand, it was great .

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lingle · 05/12/2008 08:57

What do you say in response? I've never managed anything more creative than "really!" or "yes darling" but I try to look enthusiastic and to concentrate on him.

He says "Mummy?" before the babble starts with a rising intonation so it's quite clear he wants to tell me something that's presently beyond his language skills.

Marne · 05/12/2008 14:48

Yes i find myself saying 'oh really' and 'yes darling' alot.

Today i was lifting her by her hands and saying 'jump', after around 10 jumps i stoped and she looked up and said 'jump' so clear, i gave her loads of praise, i think all the mums outside school must have thought i was mad /

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lingle · 07/12/2008 19:26

would you still describe her as non-verbal then? sounds to me like there's real progress going on.

TotalChaos · 07/12/2008 20:06

Hi Marne, sounds like your DD2 is making good progress, hope your family are being supportive following the DX.

Lingle - one of the Hanen strategies is to try and say what your child would say if they could - so if you can guess what he's going to say, model it back - eg. yeah we did x/y/z today

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