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Parents of dc with Aspergers..............when did you explain t them about thier cnditin?

10 replies

whoingodsnamewasi · 01/12/2008 14:53

DS is almst 8, I rearly think its time I tried explaining to him about his condition, but I dont know hw to start or what to say, he has never asked any questions, but I worry that he is aware that he is different but cant express his concerns to me, it looks like he will be moving schols soon to attend an Autistic centre, so I need to have this talk with him pretty soon. Would appreciate any tips, thanks

OP posts:
whoingodsnamewasi · 01/12/2008 14:56

will check back later, did'nt realise it was school run time already

OP posts:
ThePeachyPlumFairy · 01/12/2008 14:58

DS1 was 6 when diagnosed and is 9 Wednesday. We've never hidden it tbh- he was diagnosed with him present and we've always just gone from there.

In many ways i've been happy with this but in other ways- he likes to use it as an excuse I think. But by now he would have noticed he has a 1-1 etc so would have known it ws something.

From a perpective I get eprsonally, as a child who was forever the odd one ut for various reasons, I desperately didnt want him to fee3l like being different was a 'fault' or because he was bad. I think having a reason mkes it easier, iyswim?

Webstermum · 01/12/2008 15:28

DS1 is 9 now was dx at about age 5. When he was 8 was having real struggles at school & i was recommended book called 'Can I tell you about Aspergers Syndrome' by Jude Welton. We read bits of it together then one day he asked me what the book was called and when I told him he said 'is that what i've got, is that why i'm different?'. I think he's happy to have a reason for feeling different and this was so much easier & less stressful than sitting him down & telling him - it just sort of happened & so didnt seem like such a big deal to him or that it was anything wrong or bad just a reason that makes him different. Hope this helps

Buckets · 02/12/2008 11:00

My DS is only 3 but DD(5) is very perceptive seems to know all about it! We got the books 'All cats have Aspergers' and 'My brother is different' this summer as she was already noticing that he was different. She had wanted to write to Nina & The Neurons to ask why little brothers didn't understand! When I first read her the books I missed out the words autistic or Aspergers but now she reads them herself and has asked about them. The cat book is really nice (although some of the Amazon reviews seem to have been written by Aspies who thought it should either be about cats of Aspergers LOL.)
It's nice to order any books through NAS wwebsite so they get a little commission.

Buckets · 02/12/2008 11:01

Sorry cats or Aspergers

dustystar · 02/12/2008 19:09

We waited until ds(8) got a dx this aug and then told him. We have read Kenneth Hall's book together which helped him to understand he wasm't the only one and also that different children with AS can be very different from each other.

webstermum is the can I tell you ... book good? I have read Kenneth Hall's book with ds but think ds would benefit from reading another AS book too.

Webstermum · 04/12/2008 09:34

I found it good for my ds as the boy in it has quite similar problems to him. It deals a lot with feelings & situations & also has tips for teachers & school - i lent mine to his school support & she found it really useful. It's only about £6-7 not as bad as some of them. Have used it with younger sib too. Dont know Kenneth Hall's bk is it a good one?

needmorecoffee · 04/12/2008 10:20

about 9 or so. ds1 was home educated so it wan't a 'big deal' cos he could do things at his own pace.
Now he is 15 he explains his messy room, stinky feet, bad temper, etc etc by 'I have aspergers dontcha know'
He likes being different.
Apparently its also why he needs an iPod. To block out 'noises'

Webstermum · 04/12/2008 10:35

Hey that's a good one - can't wait til these excuses come my way!

Buckets · 04/12/2008 13:42

Surely every 15yr old needs an iPod? Then you can just tell people to get them iTunes vouchers for Xmas and birthdays

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