Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Seeing a Paed tommorow but are there diff ones

37 replies

alfiemama · 26/11/2008 10:41

We are seeing a paed tommorow for my ds who is 4, we took him to the dr's for his feet as he seems veryflat footed and keeps falling at school.

Since being referred as you wil may recall the school have suggested Aspergers to us and we have all agreed that something is not quite right.

The school have told us to tell the paed about everything tommorow.

My question is are the different types of Paed or will this paed acknowledge all the info that we give him.

Hope that makes sense.

I have wrote a list of symptoms and traits that I am taking with me.

OP posts:
alfiemama · 28/11/2008 11:38

Hi Niecie (hows the crochet going)

No we havent got anything like that.

We had as meeting with school and senco over 2 weeks ago (since then ds has had 3 falls) they said they will refer him to speach therapist and the I think the educational board, we really dont know what the school can offer if you know what I mean.

Gonna ask dh to ring them now as he sounds more authoritive than me (I know sad when you have to do this)

OP posts:
Niecie · 28/11/2008 12:17

Hello again - crochet is still in the planning stage. Well I am in the process of knitting two hats, a scarf and a jumper so shouldn't really be doing anything else at the mo.

I am still waiting for my Ravelry membership as well. How are you getting on?

The school could be helping with more one-to-one things like extra handwriting practice or hand strengthing games at least imo. DS also had one-to-one for the SALT exercises too but you could be waiting a long time for this, if it is anything like our area. I think in Yr R they made a conscious effort to warn DS of any change in routine as well and he had a visual timetable - little things like help smooth the day and make things a bit calmer.

Perhaps get your DH to ask them outright what they are going to do in school rather than what they are going to get other people to do. Better still, think of things you would like them to help with. They are aware of the problems - they should be prepared to help too.

The falling over is difficult isn't it? You would love wrap him up in cotton wool I am sure but realistically he can't be watched all the time. I feel for you on that one and am thankful for all DS's difficulties, he usually manages to stay upright!

alfiemama · 28/11/2008 12:29

Hi Niecie

Ive just rang the school but HT is on a course and to ring back.

Booked in for the Dr's on Monday so hopefully that will get things going, also videod him hand flapping and rocking, oddly enough to a diving programme, just trying to get as much evidence as possible.

Will try the school again after, just feel sick with worry and Ive got to work.

Could idea about asking what they can do, they do seem very good in some respects, ie they have given him a special book to write his days events in and we write things that happen at night.

Just wish they wouldnt let him play out but then thats cruel isnt it.

My concern is he has never fallen on his knee or hands so surely like the paed said yesterday he hasnt got the relfex to stop himself, which to me is a major worry.

OP posts:
Niecie · 28/11/2008 13:11

The OT has worked on my DS1 to try and help with some of the reflexes he had left over from when he was a baby that should have gone and some he was behind on developing (although I can't remember what they are now) Sounds like your DS is the same.

It strikes me that your DS could do with an OT appointment more than anything else. I know you are supposed to go through the paeds to get all these referrals but I wonder if there was a way of going direct.

I am always tempted to suggest going private to cut the horrifying waiting time but I think, when I looked at it, it cost about £250 for an assessment and then there would have been a course of therapy afterwards. Very pricey - we didn't do it as the NHS came up trumps just in time but I was sorely tempted.

Where does your DS injure himself the most? Could he have some sort of protection when he is out in the playground? Some sort of helmet or shin pads or something?

alfiemama · 28/11/2008 13:27

Hi Niecie

If it comes to it, I will have to go private as cant have all this, dont have the money like

He always lands on his head, so he must go with a bit of a somersault, which is even scarier, getting worked up thinking about it. He has ended up in A & E twice (and not through me being over cautious) massive egg head bumps and he was falling asleep in the car

Dont know how a helmet would go down, I think he have a massive meltdown and wouldnt wear it, hates anything like that, we struggle with hats lol.

You will like Ravelry, im a bit addicted, just finishing a lovely crochet pattern for my mum for xmas (really modern aswell) really getting to enjoy it, bit of a stress reliefer, that and Celebrity Jungle

OP posts:
Niecie · 28/11/2008 13:37

Oh dear, poor head!

I was wondering if there was a particular sort of helmet that is trendy but probably not. A boxer's one would be the softest, a cycle one would look daft, as would a riding one. I wonder if there are SN helmets even.

Would he wear it under a woolly hat which would be very acceptable this time of year, maybe not in the summer though. Perhaps you could crotchet him one in his favourite colours.

Sorry, wasn't meaning to be flippant. I am just counting my blessings that for all DS's problems this isn't one of them. I wish I could solve it for you.

Niecie · 28/11/2008 13:39

How about something like this

It is a US site but maybe you could get something similar over here?

Niecie · 28/11/2008 13:42

Or this - a rugby style helmet. You could get a wooly hat over that.

dustystar · 28/11/2008 13:43

I got an OT appointment through my GP when i siad I thought ds was dyspraxic. They saw him 2 or 3 times and then decided it wasn't dyspraxia. I'm sure that all the referrals pretty much came at once for us. I saw my GP and he referred us to CAMHS, the community paed and the OT.

alfiemama · 28/11/2008 13:51

Ah Niecie, thanks

I think at nursery he could maybe have got away with it, but at school when they are new and trying so hard to fit and be the same as everyone, I think ds now realises that he is different than everyone, as much as I am so desperate to stick one of those on his head, just dont know if I can, ifykwim

DustyStar, thanks yes, Im hoping that the Dr will be able to work wonders, wish I could have seen him today arghhhh, at least its Friday and then he is home with me.

I find myself gzing at the clock though wondering when he will be playing out, cant your mind work lovely tricks on you

OP posts:
Niecie · 28/11/2008 14:37

It is probably a good thing you don't live in a house like ours. I can see the infants playground out of DS1's bedroom window. I used to check on him all the time and then worry if I couldn't see him which is silly as I couldn't see the whole playground and he'd just be over the other side. I used to end up clock watching until the next play times and then try and see if I could spot him then.

The helmet is probably a bad idea anyway. It might tempt him to take more risks and cause more problems than it solves.

alfiemama · 28/11/2008 15:00

Omg I bet you got obsessed, bit like keep stepping on scales, have a brew, step on scales, have a wee, step on scales lol

Im on count down now to go and get him, whats the betting I have a bumped head letter in his bag.

OP posts:
New posts on this thread. Refresh page