sick and tired of having no sleep........................

[lourobert]

and having to hear him winge and cry and moan all bloody night. Hes not in pain im sure. only now at 5.32 has he stopped.

weve tried melatonin, phenagan and valerian. we have a routine BUT NOTHING WORKS.

anyone have a child who has had sleep problems but simply grown out of them? hes 3 btw

Im desperate to hear some positive stories.

well, im getting up and getting ready for work,no point going to sleep now

Wish I could help .
Sending you a virtual double espresso to help you through the day. Take care xx

Really sorry to read your post, lourobert.
My twins are just over 2years old, and although I'm sure we don't have it as bad as you, we never have an unbroken night's sleep. Mostly we can put the night waking down to being ill (they catch EVERYTHING from the creche, and so are ill a lot), and then there is teething, which disturbs DT1 mostly. But sometimes it seems just turning over is enough to wake them. DT1 cries when she turns over, and it's a toss of the coin whether she can fall back to sleep or not. I got up for DT1 twice last night, and once for DT2. That wasn't a bad night.

However, bit by bit, when they are not ill, and the teeth are not moving, we have the impression that they are starting sleep better. DT2 slept though the night before.

We also have a routine, but it doesn't make a difference.

Do you have to get up and comfort your son, or does he fall back to sleep on his own?

Lots of sympathy though, you are amazing for having made it this long with such disturbed nights.

Lou

I can't pretend its got any easier for the boys to sleep (tbh ds2 just copies the others, can't really blame him) but after almost 9 years we are finding it gets easier to deal with and we become more skilled at finding ways to cope / systems that help. I dont know if that offers a small bit of reassurance but it does get easier if only because it becomes normal and your body adjusts.

louro - dd was like that at 3. She would scream for 6 hours straight. It has got better - its rare she wakes during the night to yell uncontrollably like she used too. Instead she starts screaming when taken to bed and if not drugged with benzo (I do that every 4th night) she yells till midnight or so. Buggered if I know why.
Her sleep has always been worse when her epielpsy is worse. The neuro said the electrcical actvity buggers up brain rhthyms and sleep patterns and makes them feel 'bad' inside.

Hope you're surviving the day Lourobert. I know exactly what you're going through, I've had some dreadful nights with DD3. Touch wood we're going through a good phase. This however is, because the house is being rewired, all 4 of us are sleeping on mattresses on the same bedroom floor. The girls love it, its like a sleep over every night, and I swear to god I've not slept so well for weeks. Am sorely tempted not to move us all back into our own rooms when the work is done!
Incidentally I'm loving his first school photo - how cool is that boy?

oh your posts mean alot. Just to know that someone is listening. Im doing okay at the moment, not a particualrly productive day but staying awake which can only be a good thing.

Now Its not 5am I can maybe think a bit more rationally. He has had a cold lately and this ALWAYS makes things worse, very phlegmy and just cant shift it. Before he got ill he did have one week straight of being good (only waking a couple of times but settling himself!)

SOmetimes he will settle really well with his lights and music on but wake frquently- sometimes settling himself back to sleep, sometimes me needing to go in and pat his bum but he can also take an age to settle but generally sleep right though. No pattern to what he will do.

I can understand what you said NMC about the brain activity and stuff. DS had IS but been SF for sometime however I think his brain activity is a bit higgelty-piggelty which prevents him from sleeping. Sometimes hes desperatly tired.

I feel bad now for getting so at him last night.

THG- thankyou, I have that photo on my desk, cant help but smile when I see it. little bugger

he is a little heartbreaker, isn't he? Glad you are feeling better now - everything seems so much worse in the early hours, especially after no sleep! 'Twas my double espresso that did the trick, I'm sure . Fingers crossed for a better night tonight x

..................and the screaming and general whining has begun. cant believe the neighbours havent said anything yet, although I think they know better than to breathe a word about it!!!

I know this is behaviour and not pain anywhere so im better to just ignore,right!? Easier said then done i know but maybe that way he'll either just get bored or completely tire hmself out!! got to break this habit somehow

the only time he sleeps with few problems is when hes had medised which he has when hes bunged up as its a decongestant guess its a bit of a seditive too. Shame he cant have it everynight!!

Would it out of the question to give him a little dose anyway? Ignore me if it is.

lourobert, our experience might be completely atypical and I don't want to give you false hope, but I have noticed with DS3 (now 4 1/4) that the nights when he has a long wakeful spell during the night seem to be a lot less frequent,

When he was 2 or 3, it was quite common for him to have a long wakeful spell in the night of about 1.5-2 hours - probably 2 nights a week.

Now they are very much the exception rather than the rule. Maybe one night in every fortnight.

He still takes ages to go to sleep - is often awake later than his brothers, and they don't have lights out until about 9.30.

well last night was a good one...,..I ignored him and it seemed to work!!! Im not silly enough to think that it will work all the time but last night it did....and boy do I feel refreshed!!

I do give medised one night a week if I am so shattered.

thanks all

you thought about melatonin Louro? Thats what we had when dd was going through the same thing. Now we just drug her with her epielpsy med couple of times a week. 0.1 (0.5 is the dose for status) sends her to sleep within 5 mins. Doc isn't happy but he'snot the one crying with tiredness.

Lourobert, sorry your having very little sleep , its so hard to keep going especially in the middle of the night, when your so tired.
I'm going to hijack your post if you don't mind . My DS has DS and is 13, he has had no sleep routine all his life and so i am up every night . No reason for his waking , he just doesn't stay asleep . He goes down with no problem , he just wakes up once i,ve gone to bed. He either sings or winges or calls out , no one thing . he also walks around the house. He used to come into our bed , but he really is to big now. My partner is now at the point where he is saying enough. Im already on AD because it has made me so depressed and he says there must be an answer . so mn's what do i do , do i give him drugs?

oh , does nobody have any idea,s what i should do or prehaps should i start my own thread . sorry lourobert for hijaking your thread.