my dd is perfect and she is normal, she is not a sodding alien

[2shoes]

I am so fed up with the
words normal and perfect used to describe nt dc's when comparing them to disabled dc's
well All our dc's are normal.
They are beautiful and perfect
they are not aliens..

rant over

I can't bear it when people say "i had an amnio and everything turned out ok. I now have a perfect, healthy baby boy'.

I want to scream 'yeah, well I had a perfect, healthy beautiful baby too, she also happens to have Down's syndrome.

And wtf is normal anyway?
I have a perfectly, healthy normal child with Down's syndrome.

I think this is why I have started socialising more with my sn mums than my NT mums.

DD2 is perfect in every way, and I wouldn't change her for the world!

xx

agree. wanky fucking smug bastards.
I had to say it at the SLT meeting. My dd is fucking normal I said.

I tend to lurk on this thread because I my sister was SN and I feel a pull toward the topic.

But I'd like to post now.. to say I don't think there is any such word as normal no matter who the child.

( i'll quietly slope off now)

sorry popping back on.. sister wasn't SN.. she was just her with some different medical issues to others and I love her to bits.

If normal means average, my DS is far from average, and my life is all the richer for that. Perfection is overated - it suggests conformity and lack of individuality.

What child is 'normal' or 'perfect' because the definition is so subjective?

BCNS lovely post, kind of thing ds would say about his pefectly horrible sister

I half piss myself when people say about my ds 'oh, he is just perfect, and so healty isn't he, all glowing' (they do, really )

And i say yes, he is isn't he
And i think 'just a shame his brains look a bit like someone fired a shot of hail into it (those holes should not be there )

but to be honest it makes me feel grateful too, the fact that people do not notice anything is an indication of how little cr*p we have to deal with relatively speaking.

should add shame to list of hated words as well

well I have just had a look on all your profiles and agree you all have gorgeous little ones (lovely house too NMC )

but Thomcat...what a stunner

when testing dd for her delays, hate how they say how is she to a normal child her age grrrrrrrrrrrrrrr

Even the most perfect diamond has imperfections.
Don't we all?

madmouse he i gorgeous .

ds3 is my angel. It breaks my heart to know the things he wn't do but in some ways that makes him more perfect to me. he's mine if that makes sense? He doesn't have a bad or mean bone in him and is literally a waling mass of joy.

ds1 is harder but i did pmsl when the sn mum I now had a convo about how beautiful he is, you wouldnt know- until.. er yes.

ds1 is perfect for him, he is exactly what sam is meant to be. normality is just that surely?

ds2 is normal, ds4 is normal.

dh-

i'll get back to you lol

What about your perfection Peachy?

Sadly lacking I believe.

This is botrne out by the pile of mess in which I am sitting with no otivation to solve and the Paed appt for Bas in 90 minutes anyhow.

Kids think I am perfect though LOL

Fingers crossed it's good news with the Paed.

sorry hijack over

Well, she is rather loopy

Sorry 2shoes!

What is normal?

Surely normal is whatever you become accustomed to?

So if your children have severe disabilities and your life consists of wheelchairs and ramps and switches, or tantrums and obsessions and routines, then that becomes your normal - and who is anyone to say differently?

Maybe people should start saying to the patronising parents of "perfect" children "oh, I see he's running around, that's not normal is it?" .

i loved our old slt, who wrote yards about specific issues etc, but always started with 'dd2 is the picture of health and a delight to be with'. (despite being unable to chew and occasionally swallow lol, dd2 was somehow rather, er, plump.)

i like when she crashes to the ground for the fifth time in as many minutes and a hundred mummies rush to her aid 'to see if she's alright'. oh, believe me, she'd let you know if she wasn't... quite normal behaviour.

i did laugh at the paed physio secretary the other day though. i rang up to ask if the physio could go into school and check over the walking frame, as the handle kept falling off, and dd2 kept coming home with 'i bumped my head today' stickers. the secretary said 'oh, is it not supposed to do that then?' er, no. it's supposed to keep her upright. normal, eh?

Oh Romy, that made me laugh