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Not sure if this is a good idea or not? Your thoughts?

4 replies

Bumblelion · 11/11/2008 14:49

A lady from ITV has been in contact me with me, initially by e-mail and today by telephone (after I happily gave her my telephone number) about a TV programme that she is hoping to produce regarding 'tall' (giant) children.

My DD has Sotos syndrome which causes overgrowth and delayed development (development now more or less caught up), growth slightly slowed down.

My DD is estimated to be 5'8" (not a giant I know) but I am only 5'4" and her dad is 5'7" so she will be tall for 'our' child.

I had an initial chat with the lady and said I was more than happy to discuss my DD and the problems that overgrowth can cause from a physical/mental/other people's attitudes point of view but I am not sure whether I would actually want to be interviewed or filmed.

I think on one hand it is very good for these programmes to be filmed and I know for a fact that I love watching these type of factual programmes (does that make me shallow) but I am not sure whether I would want my DD to take part as it would not be her actual choice as she is only 7 and I am sure they can interview other/older children who will be able to give a more personal perspective of being tall rather than me trying to give my DD's perspective (or what I think it is - if that makes sense!).

If any of you had a chance to take part in a documentary about your child, would you?

On one hand I think it will be beneficial for other people to know that it is like to be 'abnormally' tall but on the other hand I am not sure if I want my DD to be featured.

P.S. The lady that rang me is genuine, gave me her ITV e-mail address and also her ITV telephone number in case I wanted to verify she was genuine (and she is).

OP posts:
bubblagirl · 11/11/2008 17:43

in all honesty i probably would do a programme

my ds has HFA and is often regarded to having odd behaviour or next moment nothing wrong with him if it raises awareness to your every day things and your childs conditions sometimes these things have to be done to inform others

i would happily raise awareness to my ds condition to stop ignorant minds and to make it more apparant of our every day struggles if you want to do it and your dd is happy to do it then do it x

Arabica · 11/11/2008 22:55

I think whether I'd take part depends on the programme. I was once pursued to be part of a show about natural births, but when I saw the previous effort (cheesy, chaired by some twerpy C-list sleb mummy with a load of pregnant women prevariously balanced on bean-bags) by the same team, I knew I didn't want to be part of it (had a C-section anyway )
Good luck whatever you decide, I'd like to know more about your DD's condition, but of course it has to be her decision (ie, yours!)

Arabica · 11/11/2008 22:56

eek, precariously balanced

feelingbitbetter · 11/11/2008 23:06

Hmmmmm! This is a difficult one.
On one hand, raising awareness of what must be a rare (?) condition is always a good thing, especially coming from someone living with it, rather than a bunch of healthcare professionals saying look what we know about this.
On the other hand, DD would be highlighted/recognised (can't find the right word) by her condition and she is too young to make a decision herself.
There have been some fantastic programmes on recently, very well handled, and if I was sure that that's how it'd be then I think I would do it.
Could you do it, talk about life with DD without her being featured?
I do think these programmes are important and if dealt with sensitively, do a wonderful job in educating people (myself included).
I think I am saying yes, do it, if DD is as protected at a level you are happy with.

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