Glitteryboy home safe and well!

[glitteryb6]

All went really well and we got out this morning!

Operation was on Wednesday afternoon at 2.30pm, took a wee bit longer than they thought it might as they were trying to get the fundo just right for him, i was called down to recovery at 5.30pm as he was "distressed" and they were a bit worried about him.

I went down, had a look and told them he was just being his usual drama queen self and was really annoyed cos he was lying on his back which he hates!

Took back up to the ward on morphine, fluid drip and a bit of O2 and pretty much whimpered and moaned till 3 in the morning when i decided i was going to flip him onto his tummy, thought it might be painful lying on it but he was snoring within 5 minutes!!

Thursday he had his meds thru the tube and dioralyte then later started having milk thru it and they showed me how to do it myself.

Friday he started having all his meals orally again while ramping up the milk thru the tube, docs came round that night and asked how he was and how i was coping etc and said they would see me in the morning.

Came round this morning and said we could go home but we would need to go back up the hospital on Monday to get his stitches out and they will show me how to change the water in the balloon.

Quite suprised we got home so early as we had been told by the nurses on the ward its usually 5-7 days for a button and fundo and we were only there three and a bit, but i had told the docs i didnt fancy staying too long and ds was getting a bit fed up just watching dvds and getting woke up by machine beeps and screaming babies!

Anyway ds now snoring happily in his own bed and im putting my feet up, hopefully all will continue to go well and he'll soon be a fat wee git

oh no, sorry if i've made your decision harder!

see ds was just skin and bone, he had lost all his fat, the dietician told me it would do him more harm in the long run not to have it and if he'd lost anymore weight he wouldnt have been fit for the surgery so we had to make the call

on the reflux front it might not be a problem if she has the fundo, ds surgeon will be stopping his reflux drugs at his next appt

dd is not quite skin and bone. she's 12 kg and abut 101 cm long and 4.8. Nothing to pinch on legs and arms but a tiddly bit on her tum.

ds is only 86cm and had slipped down to 9.7kg when we made the decision, every one of his bones were visible and he was starting to look quite unhealthy, dark circles under the eyes etc and although he was eating he had in the past gone thru months of not eating a thing particularly in the winter and he never drank enough fluids so the decision became really quite easy

fluids worry me. DD has milk dripped into her by syringe cos she stopped drinking from the bottle abruptly about may. It can't be enough.

to be fair after the decision was made to get the tube ds put on a kg in a month but i couldnt guarantee he wouldnt stop eating again and its soooo much easier with the tube for meds and i can easily get over a litre of fluids into him in a day.

the way i see it is once he is at his "proper" weight, we are aiming for around 15kg, it will be a useful back up for non eating times and extra fluids in the summer etc and i will probably always use it for meds as i know he is getting the full dose rather than him spitting it out or it running out his mouth

the idea of easy meds rather than spending an hour twice a day dripping it in while she gags is appealing.
Are you aiming for proper CP weight or non-CP weight?
I want dd on the charts (non-CP) but thats all. No point having her weigh what a non-CP 4 year old does or I wouldn't be able to lug her about!

totally understand that....ds 5 meds were down his tube within a minute or two this morning

dietician uses a non cp chart and she just wants him to follow the line he had been on previously which was around the 10th centile

so we are aiming for 15kg over the next few months which will put him just under the 10th non cp