I've decided I'm not keen on Amsterdam, and would like the first available flight back, please [sad]

[lou031205]

For those that don't know, I am currently taking DD through the gamut and maze of assessment for undiagnosed delays, and collapses.

Today has been so hard [exhausted]

I went to our church toddler group, and whilst generally well behaved, DD got obsessed about being 'sore' down below, but nothing amiss and then saying 'not sore now', only to resume her 'sore' mantra. I eventually put sudocream on her in the toilets, which did seem to help.

Then she managed to get into the bookshop, and pulled cards off of the displays, with the finale of finding a big pair of scissors. I turned around to see her holding them, open, against her forehead, about to cut her nose and fringe off.

Walking back to the car park was a nightmare (it is only 25 yards away), as I was carrying DD2 (14 mo) and DD1 was stumbling more than usual, and resisting walking to the car. She fell over in the middle of the car park, and only the wrist strap I use saved her from really hurting herself, but she wouldn't get back up, and all I could do was grab her wrist and haul her to her feet because there were cars coming.

I had the health visitor for a visit today, and I spent the time having to explain why she had been seen by the doctors, then she asked "have you been concerned about her, then?"

Er, yes:
-When she didn't gain wait well.
-When she was puking all over me so much that I didn't change my top unless I had been puked on 4 times (couldn't be reflux because she wasn't losing weight ).
-When she only had 2 sounds at her 8 mo check.
-When she didn't crawl until 11 mo.
-When she didn't cruise until about 18 mo.
-When one foot turned out as she cruised (finally referred to physio).
-When she still wasn't walking at 19 mo (almost got pierdo boots, but physio decided against).
-When I couldn't control her and she was a whirlwind in public.
-When no method of discipline seemed to have an effect....

Anyway, you get the gist. So the health visitor mentioned Homestart, and said she could refer, but last time they tried to refer there were no volunteers.

She made no mention of portage, even though with 18 mo delays DD surely meets the criteria, so I had to specifically ask if she qualified for referral. Good job I have MN .

DD was tired this afternoon, so clingy, so HV said 'but she's not hyperactive, is she.'

YES SHE IS - it is part of the reason she is having 1:1 at preschool, and her assessment report says that she is very active and hard to focus, and I saw that the HV had a copy with her!

After the HV left, DD went wild, running, screaming, squealing, even climbed up the bannister but got stuck half way up. Fortunately the stairgate stopped it being higher.

Then I was late picking up DH from work because the phone rang and DD wouldn't allow me to put her tshirt back on or trainers, and I couldn't catch her because I had a phone to my ear.

Then on the way to get DH DD got obsessed with seeing the moon, and got hysterical every time we changed direction or there were trees hiding it.

Can I get my plane to Paris, now, please

That still sounds like a tough day, but at least you got a nap.

I hope the scan goes OK. Let us know x

Hi all

Sorry for not updating sooner. Yesterday's CT scan was an unmitigated disaster.

DD fell asleep in the car & weed herself on waking, so a trip to the children's ward came first, but then she got upset because we couldn't play with the toys for very long.

When we got to the unit, she developed an intense fear of the noise made by the electric double doors (2 sets of them), and they were adjacent to the waiting room so no escaping. Obviously lots of traffic, and each time crying with a desperate hug. Scanning running 25 minutes behind. She also kept saying "No want to sore mouth" Don't know what that referred to, but no amount of reassurance pacified.

Then complete meltdown in the scanner, DH couldn't hold her still enough, and I wasn't allowed in to help because I am pregnant. So unlikely that the pictures are good enough quality to be useful.

Today, Grandad took her with him for an appointment he had at a vocational advice service, for a ride on the bus and they asked that he didn't bring her again because it wasn't a suitable environment A sign of things to come, I suppose.

I hope your days were all good.

Oh, bless you. You are having a tough time at the moment. If you don't mind me asking, how pregnant are you? I find the appointments, waiting times etc. difficult with my only, very easy to control 5 month old. Can't imagine how you are coping so well.
Another question, please feel free to ignore but as it hasn't been very long at all since you were alerted to a problem with DD - do you find you are looking at her behaviour in a different way?
I found it difficult to seperate with Gabe, what was normal baby stuff and what was part of his condition. I overanalysed everything he did. It made me miserable - so basically, I don't anymore. I have to make a real effort sometimes, especially when there are other babies about - but as the weeks have passed, at some point I accepted his condition and that he is who he is. I feel quite relieved not to be examining books and checking milestones. I try not to think too much (with great difficulty sometimes) about what the future holds for us, but know exactly how you feel 'sign of things to come' .
Todays nearly over - hope for a better tomorrow. I am thinking of you, though I'm in a different position, those first weeks/months were so hard for me.

Thank you for your care.

I am almost 17 weeks pregnant. You are right, feelingbitbetter, that I am probably looking at her behaviour in a different light. But in some ways it seems that the light has only just turned on.

For instance, DD has this week started pretend play at the age of almost 3. Yet DD2 is already at 14 mo 'speaking' into the telephone. And a lot of the obsessive and fear related behaviours have all developed in the last couple of months. So whilst I am overanalysing, it is also the case that it is all new territory. Why those behaviours have come now, I have no idea.

Having said that, I couldn't want things to be different either, because surely a lot of what makes my DD such a sweet, affectionate, funny treasure is her unique makeup, so take any of the delays away, and she wouldn't be Millie.

On a brighter note, she fell of the top of the sofa today onto the new laminate flooring. I had gone to bed with a bad head, and mum was looking after her. She later told me "Millie did big jump" I said, "hmm, you can't jump yet, can you Millie?" She replied, sagely, "Nooo" "Is that why you fell onto the floor?" "Yes, oh dear, Millie fall over"

Classic, DD decides to jump when she can't infact...jump

Bless her.

Hiya,

Just a thought - if your dd speaks of being sore down below and of having a sore mouth, Maybe she's in pain. She could have yeast - many kids with asd have yeast and bacteria. With my son this always caused night waking, trouble settling, and 'humping'.
Ask your GP to do a urine sample to rule out infection.
hope you all feel better soon.
jane