please, can anyone help![sad]

[kail]

My daughter is now 17 weeks and only weighs 10lb 14 oz eventhough her birth weight was 9lb 4oz! I started off breast feeding for 6 weeks but there was no weight gain so i swithched to bottle feeding, things just got worse we found out at her 8 weeks check that she was very floppy for her age and her weight gain was extremely poor. (maybe due to her being sick alot?) She never really took more than 2ozs of feed at a time. She was admitted to hospital in January and after spending a week there with hardly no weight gain. She now has a nasal gastric tube in and is fed high protein milk with thick n easy in it and she is on anti sickness and anti acid drugs.(she can no longer feed from a bottle).She has has all sorts of test including MRI scans, ultrasounds of brain, digestive system plus many more test all results have been negative!!
I am in such a state and nobody can seem to offer me any help or support. Is there anyone out there was has been through anything like this? I just need to know that i am not the only one!!
Thanks Kail

our son spent 4 terms in mainstream with full time 1:1 (having done very well at a mainstream nursery) and it was disasterous. He's now in an excellent special school and thriving. I think inclusion can work, sometimes for a short time, sometimes for long term, just depends on the child, their needs and the school.

There is something about having staff that are very understanding. The environment is right for him as well, he takes part in everything and gets pushed to achieve in the areas that are important for him.

Hi Harrysdad - welcome.

I posted further down as Potty1 (had a namechange recently ) Sounds like Harry is doing well.

Hi Harrysdad and welcome to MN.

I think Piffle is still around sometimes - her dd has Noonan's and I think is now about 3 or 4.

Good luck with finding the right school. My dd is in an SN nursery which has proved to be fantastic. She has Aicardi Syndrome (GDD and epilepsy).

No help, knowledge or experience to offer, but welcome to MN, and don't feel intimidated, the site is teeeming with dads! Elswhere you will find AntEater, DaddyCool, HappyDaddy, Hub2Dee, WheresMyFroggy...and loads more!

hi my daughter is 19 weeks they said she has a heart murmer ductus and have put her on water medication to help get rid of fluid .i was just wondering if anyones child has had this and how long they leave her until they decided weather or not they will close it .x

Hi there

I'm sorry, I don't know anything about heart murmurs, but I didn't want you to go unanswered.

Your post has been tagged onto a very old thread from 2006 and you would be more likely to get some replies if you start a new thread.

Just click on 'Start a new thread in this topic' - its at the top of the page just under the title Topics.

I hope you manage to get some answers and support for yourself and your little girl soon.