Dietician advice, i think im a bit disgusted....

[misscutandstick]

The dietician advised that i "...coat everything in sugar or butter, to get a few calories in him..."

DS5 is 2.5y but only weighs 20lbs (for those who've forgotton, thats the average weight of a typical 1y/o) he has always been very slow to put on weight (was referred at 3mths for faultering growth), but is gluten/casein intolerant (as well as eggs, bananas, annatto - havent even tried nuts or shellfish!)

I actually went in to ask for some sort of 'suppliment' to add to his food, he will eat, but doesnt have a huge appetite and easily gives up on food ie. if its hot, too late, etc. Ive managed to persuade him to have milk (soya babymilk) more often than juice, in the hope of more nutrients...

But to coat everything in sugar or butter ... well, where is the 'lets get healthy' regime we are all supposed to undertake???

The thing is he isnt a sweettoothed child, so coating fruit (which he loves) in sugar , well the mind just boggles, i dont want to raise him not to eat unless its coated in an inch of sugar or butter! He also gets extremely tired very easily (had is iron/ferritin checked and its fine), im thinking maybe just not enough calories?

I am going to the docs tomorrow, and id really like to go armed with a good points why he should have the things im going to request on prescription ie. glutenfree bread, flour, babymilk, and some sort of additive powder just to increase the calories?

incidentally he had the blood tests for coeliac disease, which came back as raised levels but apparently not high enough to be considered coeliac - or so the dietician said...

can anyone help with valid points to mention to GP to persuade her what i want will be best to try for him - with regards to the prescription things i want?

also, when weaning at 7mths, i had learned to avoid babyfoods with milk, but he also had bad reactions to those with egg in, so i generally avoided egg too. A couple of months ago, there was a bit of a mix-up and he ended up with egg fried rice - now he loves rice, but this occasion he was very sick and very ill... hence still no egg too.

Missc&S- te NAS is for everone! besides 99% of their stuff s seachable online so you'd rarely ned to call.

Jimjams is fab o asd eating, btw.

It's just that with a coeliac diagnosis, the GF foods come automatically on prescription. They also get regular monitoring by the peadiatricians to check for anaemia, bone density, growth-all the things that can be affected by coeliac disease. (I have two coeliac sons who also have Asperger's by the way.)

Unfortunately as stated earlier in post, the results 'werent high enough' and the paed catagorically stated that he is NOT coeliac, but he also stated that he is not intolerant to milk either... both of which is totally untrue. The problem is they look at the results on paper, rather than evidence as presented by the child.

well, just got back from the GP's

total waste of time - i rather feel that because DS5 has a Paed they arent willing to do anything.

She kept saying that her 'hands are tied' and she cant prescribe anything at all for him. poo.

she said to go back to his Paed and tell him the same thing. doesnt she think i have tried?

At one point she said "well if you think hes better on gluten free bread, why not just keep buying it for him?"

if '...i think...' WHAT? does she think im making it up? this is sooo frustrating.

SCD = specific carbohydrate diet!

thanks.