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SN children

Here are some suggested organisations that offer expert advice on special needs.

Could really do with a friendly ear :-(

52 replies

Blossomhill · 01/03/2005 16:28

I am just sitting here with tears running down my face (sorry to sound so dramatical). Went to pick dd up and saw her SALT who wanted a quick word as she had received some info from Bibic. Anyway she said that she had re-tested her language skills and that they were really good. So I asked her if she still had a language disorder and she said "not, really". She then went on to say that dd's problems had changed and were all in the social/communication area. She said she had a communication disorder. Again I feel this is a dressed up word for asd. As I have said before I am fine with asd, absolutely. What I am not fine with is people chopping and changing there minds about what is going on with dd and her difficulties. Although I also appreciate that this is a very grey area too.
I just feel sick today, sick to my stomach.
I have also been very aware myself that dd has been displaying a lot more autistic traits recently, such as:

humming
covering things over with her hand when she looks at them
still eating weird things
fingers in ears (although not as bad lately)
generally talking/singing to herself
She also seems socially to have got worse, to the point that I have to prompt her to say hello to people

I think I as a mum have always known it and have been open to it but have listened (stupidly ) to the professionals. Do they not realise the enormous strain this has on us as parents.

I have been dealing with this for nearly 4 years and I have seriously had enough. I am so scared of the future. I just have this vision of dd walking around as a loner, being poked fun at for being weird.

I just want to run away from it all. I really don't think I can take much more to be honest

OP posts:
coppertop · 02/03/2005 18:49

The coffee mornings sound like a brilliant idea. It should really help you all to get to know each other.

JaysMum · 02/03/2005 19:24

Bloss....I did post a bit further down what happened last night......I got locked out of the bar....I disappeared to see if I could find us a quiet spot to natter in.....I got lost and couldnt get back to you all....when I left and came back...I wasnt allowed back in because the bar was full!!!!!!!!!!
Finally after queueing to get back in.....you had left!!!!!!!

Will be going down the pub later if you want to meet up for a quick natter....D is coming too....shall we say abot 9 ish???
JM.

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