speech delay

[Phoenix4725]

can anyone help my son is 3 years old but still has no speech or sound sother than ook , at and uck never baby babled and only learnt to point recently, he has been dignosed with global delay of about 18 months and suffers with hypermoblity issues

But im at loss to know why his speech is so poor we do have speech therapy well kinda of we see every 8 weeks mind just herd today shes leaving and none till feb now ,.They dont think hes Autustic though i have sxeen some traits that concern me .but is there any kinda other disorders that cause such speech isssues his understanding is lot less as well needs be kept simple

Do you have a nice understanding gp or hv? I'd def go back and ask to be referred to specialist. A friend of mine has just had her ds diagnosed with autism. She's been told he's at low end of spectrum although i think he's middle, easily. I think now a days, professionals are reluctant to 'label'children, which i can understand in one way, however it means some children can be left undiagnosed meaning they miss out on a huge amount of help.
Could he have a hearing problem?

ty for the advice, his hearing is fine and the salt hes been seeing*(1 visit per 8 weeks) thinks he may have something more than delayed laungage looking motre towards disorders,.But shes now leaVING and will be none now to february.just fell like going in circles and want to somedays just scream

Hi phoenix, my dd2 is non verbal, she's 2.7 and we have been told by paed that she may be ASD, she started a special nursery last week and they have told me it may not be ASD and my be a language disorder .

I am now realy confussed as she shows alot of ASD traits and does not comunicate when asked to do simple tasks.

Aparently at this early age it is hard to diognose ASD and language disorders as the 2 tent to be simalr in toddlers.

We have only seen salt once (about 8 weeks ago) but now she's going to nursery she gets to see a on site SALT evry monday.

Our local SALT (based at the hospital) were useless and short staffed so could'nt realy help dd2

It is so frustrating. We hear early intervention is important then all the professionals dilly dally!
It sounds like investigations are underway? If not you might want to go and ask the GP for referral to a developmental paed(with a list of your concerns).
My way of coping (Ds was preverbal at 3 and then no consonants either) was to do as much as I could myself or privately where funds allowed whilst I waited for the professionals to stop dallying!. (Do you know about DLA -disabled living allowance -it may help)
I followed the babytalk program by Sally Ward and paid for SALT to teach me what to do via play as I could only manage intermittant sessions (costly because NHS SALT was not available to preverbal children here then). Another book that I found helpful but wished i found earlir 'The child with special needs' by Stanley Greenspan. HTH

hi we are under a paed and the education team he attends playschool with a 1-1 aid.Yesi looked at private salt but just can not afford it and for DLA we finally got that on appeal.

ANnd yes our salt is useless as well even said well cant work with him when he has no sounds(uk ook and at)being only 3 he makes plus she says hes immature just worry as hes ddue to start school in a year and worried how hes going to cope.
and will look that book up ty

the other Hanen book is called "You make the difference" by Ayola Manolson. It's half the price of It Takes Two (it's £13), but it's more lightweight. Still useful. Have you had any advice about using signing and/or PECs in addition to speech with your DS? I would also look at getting an educational psychologist referral so that you have plenty of time to get through the system before your DS starts school.

I would (and did) complain in writing as well phoenix. Write to the manager of the SALT services, the chief exec of the PCT and your local MP. When I eventually got my complaint listened too properly they agreed they need some kind of 'triage' for these situations so that children with a severe need are not just forgotten whilst a post is filled. So keep at it, even though it feels like you are banging your head against a brick wall!

We were also told they were investigating for disorder or syndromes. Eventually he was diagnosed (with a syndrome) and whilst upsetting it has enabled accesing the correct help more easy.

DS2 is also hypermobile and we now know (aged 5) that he has a form of cleft palate that needs correcting. Does he speak nasally and can he blow out candles etc?

It is very hard when your child struggles in this way, but DS2, who can only make vowel sounds and m, n, p has just started mainstream school and is actually doing very well. He does have a full statement with fulltime one to one support. Whilst I know he has a long road ahead of him I am far more positive than I was two years ago.

hi no he cant blow at all and no speech at all ,have took all your advice but been told sorry will need to wait for new therapitst

I have no expertise but there is a book called "what to do if he's not talking yet" which is really much more specialised than its title suggests - very focussed on something called Apraxia. Anyway, one of the traits is that you can't blow.
Here is the website connected with the book.

The book is actually not that much use to me as DS2 has a much more general language delay so if you like I could post it to you. It's American so beware...

Here's the link.

cherab.com/information/speechlanguage/verbalapraxia.html

I think the Hanen book could still be great for you because it can help you make his and your communication skills (speech aside) as good as they possibly can be. It got me out of a few bad habits I'd picked up (too much "coaching", thinking he understood more than he really did, etc). I felt a bit like I was going backwards to go forwards but it was worth it.

Phoenix You say your son has normal hearing? If that is the case then it may actually be a listening disorder. My daughter suffers from a condition called Auditory Processing Disorder (APD). She has perfectly normal hearing but the brain does not always process the sounds. This made her talk a lot later than my other children and for a long time she was not doing well at school and no one could say why.

She has APD very mildly, so we are lucky that the strategies we use have worked and she is now doing very well. However, APD is part of a group of invisible disorders, which include ADD and dyslexia - she has mild dyslexia too - and can be a huge problem for some children.

The danger is that once one condition is diagnosed, the "experts" may stop looking for other problems. The other problem is that many health professionals and teachers either have not heard of it or have no experience in dealing with it. It's believed 1 in 10 children have got it, yet the majority are undiagnosed.

There are other web pages you can visit to get more info, including an article I have written about our experience, which you can find here. This article has links to other organisations and details our journey towards getting the diagnosis.