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baby at risk of cerebral palsy, how will it pan out?

27 replies

madmouse · 13/09/2008 21:30

My ds was born with brain damage, which we found out very early (ie 5 days old) due to seizures. He is now 7.5 months and has been off meds for 3.5months and no more seizures. His head growth is very slow and his head very small, but consultant is happy with his progress and says that is more important than head size.

She has identified him as at risk of cp though, as he is a bit stiff in his limbs, particularly on the right, and he forgets he has a right arm and dislikes using it.

He has had physio for a month now and he is making some progress already, his physio is pleased. He is also remarkably determined. He wants to crawl and because his right arm is not strong enough he pushes up with his left and with his head (!), which he tries to bury in the carpet. All this screaming with frustration. He loves bouncing up and down and standing and he can stand with you holding his middle, but he curls his toes. Consultant seems fairly convinced that he will walk, but maybe late.

He can sit up for a bit if you put him in sitting and he is not distracted too much.

I have a feeling that his arm is holding everything back.

Not sure what I expect, but how serious a form of cp does this sound? How long before we know what he will be able to do?

I have a feeling that we are fairly lucky as these things go?

OP posts:
Romy7 · 15/09/2008 10:12

and hours and hours of holding the 'good' hand still so that she was forced to try and use the right hand

sarah293 · 15/09/2008 11:30

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