dd is 2.5 and has spastic diplegia. She can crawl and has starting cruising. she does not appear to have learning difficulties and has really good speech for her age.
We have always felt her emotional maturity is not where it should be. She has had kind of 'tantrums' for want of a better word since she was tiny. She will go on and on crying, we tried crying it out at bedtime once or twice and she cried on and on for over an hour. She would never have given in, she has capacity to keep going for hours and can't stop herself. She also produces loads of clear mucus and drools it every where until she is sick. She can cry on car journies for ages and there is nothing we can really do to stop it. It's like when she starts she just cannot bring herself back. The tears start over random stuff like not wanting to take off a dirty t-shirt or having the 'wrong' socks or wrong dinner. We live with this all of the time and it is hard but we have never known any difference.
dd started at playgroup last week and did an hours settling in this afternoon. After 50 mins I had a frantic phone call and they basically said that dd had lost it and was doing the full drooling routine. They were really shocked and said they had never seen anything like it . They actually dealt with her really well and managed to finally distract her with singing songs so I have no actual worries about them looking after her. But was shocked that they felt her behaviour was so unusual and they told me it must be part of her CP.
It makes me realise that life with dd is bloody hard, not just with her physical difficulties. I'm hoping that they will see how hard things are and maybe pull their finger out and get me some help - I'm trying to start the statementing process but they keep fobbing me off as dd is 'not known to the ed psych' for some reason. So do you think it is worth me asking the nursery if they think it worth asking for ed psych to observe? Does anyone else have experience with this kind of behaviour in a child with CP?