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SN children

Here are some suggested organisations that offer expert advice on special needs.

Can I join you??

61 replies

delllie · 19/02/2005 14:17

I have been lurking on here for a while and think its about time I joined in!!

Now where to start!! DD is 3.1yrs old but is probably at around 18-24mths level at the moment. She has mildish hypotonia, Reflux, DD was severely failure to thrive at one point because of this, thankfully that has now been resolved since her Reflux has been properly treated but she still has feeding difficuties, although she will have anything in her mouth, she will only swallow fluids and purees, any lumps/funny texture she will gag on. She took her first steps at 18 months but it took her a LONG time to master walking, she is still quite unsteady and walks with a wide gait and struggles with kerbs and steps. She does struggle with her fine motor skills although she has made a lot of improvement of late. She has very little speech, probably around 20 words at the moment and most seem to start with B ie Ball, Bus!! Receptive language came very late, it is only the last year that she has started to follow instructions and understand what we say. She is very socialable, loves playing with other children, she is very cheeky and is very independent despite her lack of speech.

She has had numerous tests which has all been negative apart from the barium swallow which showed severe reflux. We are under a geneticist, who hasn't really come up with a lot, she does want to test DD for Prader willi syndrome next time she has any blood tests, but she said that she would be very surprised if DD has it, but that she cannot ignore the feeding difficulties and FTT that DD had as a baby and now has practically doubled in weight even though she needed to IYKWIM. DD's development peadiatrician suggested that her problems could be down to her feeding difficulties as a baby as she may not have been getting enough nutrition to develop properly and she certainly has made tremendous progress since her FTT has been resolved.

DD currently attends a special needs nursery 3 days a week and our local preschool group for the other 2 days, but I am considering sending her to the SN nursery full time in September.

Anyway, I could go on typing for days and I don't want to bore you all just yet!!, Looking forward to getting to know you all!!

OP posts:
ImuststopdrinkingBlossomhill · 19/02/2005 23:43

I need to get a laminator. Got my mu one for her birthday from Tschibo. It was only £17 and had some pouches with it too!

ImuststopdrinkingBlossomhill · 19/02/2005 23:44

mum I mean. I haven't even had a drink tonight.

MrsFROSTgetful · 19/02/2005 23:44

i'm off to bed soon- i saw a new psychiatrist on friday and he's changed my antidepressant to a nighttime one- which helps me sleep- or so he says!!!
I think it must help as i'm yawning like mad here!!!

he also said i should get my thyroid levels checked again!

THAT would annoy people too- if i get dx of 'Low' thyroxine problem as i would then get ALL my prescriptions free.

Apparently - low thyroid can cause ALL the symptooms i have- Anxiety,depression,forgetfulness,aches,heavy periods,over weight etc

ImuststopdrinkingBlossomhill · 19/02/2005 23:46

Honey - you've got nothing to prove on here. Please don't let it all get to you x

MrsFROSTgetful · 19/02/2005 23:46

Give my love to your 'Mu' BH!!!! (does she share a field with davros's donkey?)

CT.... trust you to remeber my 'slicing' into the laminator!
DH asked me why i'd bought a spare one....he doesn't know what i have done to the original.(it still works....but smells of scorched plastic !!!)

coppertop · 19/02/2005 23:46

You can't leave us without visiting your fanclub thread, MrsF!

FineFigureFio · 21/02/2005 11:10

hello dellie, nice to meet you my dd is 5, with mod/sev global development delay, hypotonia, hypermobility, microcephaly, long sighted, squint etc etc etc

ladyhawk · 21/02/2005 11:18

hi dellie welcome from me too
my ds2 has dx of ADHD/ASD also some concerns about my ds3

theres great support on here always someone to listen..

Dingle · 21/02/2005 11:19

Welcome dellie! You'll find yourself wondering how you ever coped before MN!
I have a ds (5) and a dd (3.3) who has DS.She is attending a combiantion of both SN nursery and mainstream ATM.
I must also mention I find it really weird reading your "name!" In RL I am always being called Del or Dellie, so I take a second glance every time I see your name!!
Huge welcome once again!

piffle · 21/02/2005 11:26

Golly Dellie I have a dd with Noonan Syndrome, she sounds very similar indeed with problems in the same areas.
DD is now getting better with physical skills since alking at 26 mths and her hypotonia has improved immensely with physio - speech too has been better with a lot of work from us and her SALT and playgroups.
my dd is 28 mths.
Welcome to the board!!!!!
Piff

MandM · 21/02/2005 14:29

Hi Dellie
I'm a newcomer as well - only started posting a couple of weeks ago, after lurking for a while! It really is addictive and I've already had some brilliant advice which has given me the confidence to start fighting a few new battles!
I have one dd. She is 3 (4 in April), has cp and William's syndrome and is a real sweetie! She attends mainstream nursery with one-to-one support and is starting school in September (I can't believe my baby girl will be going to school!)
Your dd sounds gorgeous. Look forward to hearing more from you on the boards. x

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