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SN children

Here are some suggested organisations that offer expert advice on special needs.

Cant quite decide...

35 replies

misscutandstick · 25/08/2008 14:52

how much of DS4's behaviour is due to him being 3y/o and wether theres anything 'lurking beneath'...

He HAS to have his own way - major wobbly if things arent quite right, usually really unimportant stuff to 'us normal people' . If hes playing or doing something and we need to go, or change what hes doing.

Needs to have things just so, IE food on the same plate, blankets in bed just so, etc.

His need to have most of his words repeated, by the listener 2 or 3 times. Endless rounds of any particular song each day. 'Parrots' phrases used in programmes hes seen - but usually in some (sometimes obscure) context. IE dora the explorers "count with me" (exact intonation), but when he is counting stuff, thomas tank engines exclaimation "cinders and ashes!" if hes dropped something.

Hes really stroppy about most stuff and so uptight about everything! was quite a fussy baby.

No mannerisms to speak of (except likes stacking/lining BUT NOT excessively - but more than the others ever have. Also needs his blankie wherever we go), milestones on time, average illnesses, no allergies, just longsighted (wears glasses - with a fight!)

DS1 is ADHD, DS5 is Autistic... perhaps im looking too hard??? Is this typical stroppy toddlerhood, or something more sinister?

OP posts:
RaggedRobin · 17/02/2009 21:33

oops that should say "chewing clothes"

misscutandstick · 06/03/2009 14:02

wanted to add to this particular thread...

I have become increasingly concerned, as like your DS Robin, DS is repeating phrases over and over, is still mystified by most of the 'wh' questions tho it is getting better thru SALT, and now:

Hes covering his ears more and more often at noises that arent particularly loud (it was the milk expresso machine today in a cafe), he always talks at a 100Db's and tells everyone else to be quiet. He cant stand wet or 'dirt', wont drink from a cup thats wet, and refused and stropped over a bit of rain (it really was only a tiny bit) on a swing, then nearly exploded when i dipped his sandwich in his 'cheese dipper' when he ran out of sticks, evern tho it was a cheese sandwich. And howled/screamed when i touched ice with his finger to show him the ice on top of the water in a bird bath.

It was parents eve on Tuesday and i asked the teacher if she had noticed anything about him, and mentioned the problems we had encountered, she said not, but then school is really structured and always 'same-y' so he wouldnt really strop about anything. But she has asked me to see GP and refer him, and shes refering to Ed Psych, "just in case we need evidence for funding". Im not sure its a 'just in case' situation, but either way if they get more funding its all good.

At this point im reluctant to think "Aspergers", maybe theres something thats more mild than that... or maybe i should face the truth...

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misscutandstick · 08/03/2009 16:59

Going to docs on Tuesday to refer seems now that im down to 20% 'normality', ah well quirks are interesting... 'normal's for losers anyway

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misscutandstick · 11/03/2009 12:25

Went to GP, chatted for all of 2mins before he was organising a referal for the Paed (incidentally the same one as DS5 GDD+?autism), which is in 2wks.

OP posts:
sc13 · 11/03/2009 13:49

Good luck miss - at least the appt is coming up quite soon. As for normality, I'm coming to think that 100% normal is definitely a bad thing. I'd settle for, perhaps, 50%

misscutandstick · 11/03/2009 17:10

@ sc13

Unfortunately i was actually making a remark on having 5 sons... DS1 has ADHD, DS2 has dyslexia/dyspraxia (v. mild), DS3 the NT ONE!, DS4 is looking like Aspergers, DS5 GDD + ?autism. so... 20%

But anyhoo, they're all gorgeous people (inside and out!) and they're all MINE!

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flyingmum · 11/03/2009 17:14

Quirkies RULE!

misscutandstick · 11/03/2009 18:24

Thanks flyingmum - you made me

Incidentally sorry to hear about flyingboys brother ... hows he taking the news?

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flyingmum · 11/03/2009 20:11

Thanks miscut. How are the craft activities?

Well, he's just been pestering me for toast - having eaten a HUGE plate of pasta for tea plus sugar free jelly (not both at the same time ). He's done his blood sugar and it was 5.2 so yippeee he's had the toast and flyingboy made him some warm milk so hopefully the wolves in his tummy are asuaged. Flyingboy has coped really well - a bit pacing up and down on Sunday when brown stuff hit the fan but otherwise fine. He said tonight to DS2 - "you've not changed at all". I think he was worried that he might have changed in personality or be ill. However DS2 is being the life and soul of the party and is leaping around like a loon. He's coping really well and so far has done all the bloods and the injections himself. he only had hysteria when the crap doctor made a complete hash of taking lots of blood out of his vein - the 'magic cream' clearly not working or she missing the spot.
He's just asked to go back to hospital becuase it was fun (they had an xbox with a Star Wars game on it that he played for about 4 hours solid). It was quite sweet though - when the nurse came at midnight to do his blood sugar he woke up and did it himself and then said after she had gone 'Everyone here is so kind'
I am worried about when he goes to school and has to do it all himself. The lunch time injection hurt today so he was very sobby about that. All in all though they have both been pretty fab.

sc13 · 12/03/2009 10:59

Sorry miss I didn't realize. It's a real posse of gorgeous boys by the sound of it

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