Don't really want to go into too much detail its very complicated but dd needs at least one operation. She is booked to have the first in October. This is already controversial in that our surgeon wants to do it in two stages but the support group leader for dd's condition thinks this is possibly not right. So I've now got a second opinion or will do after the appointment which is being squeezed in so that we can then decide whether to cancel the op or not.
The whole thing is controversial anyway because one op is almost cosmetic but the other/s are essential. Then there is the decision about when to have it all done, some say early some say wait till the child is older.
Sorry so hard to explain but my point is how do I continue with normal stuff and not let this totally take over? I am already under stress with the day to day management of dd's condition although I am used to it now it is still a worry and there are so many unknowns. And then there are these huge decisions to make and if she has surgery sooner rather than later I will know it was my decision and probably feel guilty when she is recovering. It is all just getting me down and I find I can't concentrate on other things very well and find myself talking rubbish as I'm not concentrating!