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Dd's report from the comunity Paediatric Doctor

41 replies

Marne · 30/07/2008 11:24

Hi, as some of you may have seen in my last tread dd2 was seen by the paed last week and we were told she may have Autism. This morning i recieved a letter/report from last weeks apointment.

Feeling a bit as some parts are not quite true, anyway the letter says;

I saw *** in the presense of her mother at my community clinic, she is 2 years and 4 months of age and was refered by her health visiter.

Her mum is concered about her lack of speech. She can sometimes say 'mamma'. She is only doing noises like children of 1 years of age. She is copying noises she hears from others. She was refered to SALT and she is awaiting an appointment. She is also not responding to commands and she is not interested in listning to peoples conversations.

She is usually flapping her hands. She likes to line things up all the time, especialy toys rather than playing skilfully with them. She is lining the food up on her plate.

She is very obsessive with jigsaw puzzles and she could do them all day. She preferes to be in her own little world rather than communicating with others.

She is flexible with her routine and her eye contact is variable. She is sensitive to loud noise and physical touch. She has lack of imaginative play.

Otherwise she is healthy and well. She refused to be examined as she does not like physical touch.

I tried to do a developmental assesment and complete a schedule of growing skills. During this assessment she did not give any eye contact. She had difficulty to understand. I noticed she is still mouthing and her mum confirmed that she takes evrything to her mouth. She also did not engage in imaginative play. However she seems to be good in some of her visual skills, especially completing the puzzles and shape form board and the fish form board. She also matched four of the colours.

Her gross and fine motor skills are appropriate for her age.

Her hearing and language skills seem delayed. She could not point to the dolls body parts or her own body parts. She is not interested to know names for familiar objects or people.

Her self-care social skills are appropriate for her age.

Her congntive skills score at about 18 months of age.

It then goes on to say that she has been reffered etc..etc...

Anyway, i was upset as it stated that she does not like physical contact, this is not true as she loves to cuddle people. She said that she could not examine her, she did'nt realy try, dd was a bit wriggly but she could have examined her easily. She also said that i said she mouths at evrything, i told her that she does'nt do this much anymore but used to.

It all looks so much worse written down on paper and i'm realy worried about the future, i just hope SALT can help her.

OP posts:
anxiousmax · 30/07/2008 13:53

reports are always depressing reading as the others have said they do concentrate on the negative but in many cases the report is trying to achieve something - usually referal or access to therapy (another waiting list).

TBH i've got to the stage where i only bother to correct any mistakes if it is going to be of detriment to ds2 in terms of accessing therapies. For example one report wrote that he could ride a bike, swim & enjoyed playing team sport because he answered yes to everything despite me saying "well no he can't, he always says yes to everything".

I have often had home appointments to allow profs to see ds2 in his home environment, if it is not offered you can request a home visit.

TotalChaos · 30/07/2008 14:37

or ideally even have the pros observe both at home and at nursery or pre-school or school. however much I moan about local NHS SALT, at least they have come to observe him at nursery a few times.

moondog · 30/07/2008 15:06

They are crushing to read and I agree with point about accentuating what child can do. However important to state what difficulties are in a sensitive and civilised way.

nikos · 30/07/2008 15:28

Moondog, it would be really good if these reports did have a brief summary of the good points/improvements. Ds had improved hugely since the SALTs last visit (everyone involved said so) and this had come from a huge amount of input from us. But SALT's recent visit was full of negatives and it's the first time I've felt really crushed throughout this process.
I actually contacted the SALT as I've got to know her a bit (did a course with her) and have a lot of respect for her. She sent me a really kind email back. But these reports can have a huge impact on morale.

jimjamshaslefttheyurt · 30/07/2008 15:32

Part of the problem is that the assessments are often done in clinic settings with someone unfamiliar. Shared knowledge is essential if you are trying to communicate with a communication disorder. So for example left alone with me ds1 can tell me about a road up to his old nursery, can show me a church that has been knocked down, can tell me about a hotel, or even make reference to his last holiday.

In a standard assessment his expressive ability would score around the 12 month level (he's 9).

nikos · 30/07/2008 16:13

I think also that with the assessment of young children, a lot of professional in my experience tend to forget that a bit of reticience is normal when interacting with people you've never met before. Sometimes when I've been watching ds being assessed I find myself thinking my other 2 NT children wouldn't have responded, either because the question was age inappropriate or just natural hesitancy on meeting someone new.

Jimjams do you work in autism research?

moondog · 30/07/2008 16:56

I would reiterate that shyness and reticence with strangers is taken into account. If you want to convey the sort of useful and interesting info. that Jimjams cites then a communication passport is useful.

moondog · 30/07/2008 16:56

(I would link but have v dodgy connection)I guarantee that these are always read, unlike reports. They appeal to innate sense of nosiness in us all.

I have made or been involved in scores and they get a great reception.

jimjamshaslefttheyurt · 30/07/2008 16:57

yep nikos. But only for the last year.

nikos · 30/07/2008 17:08

Sorry for the thread highjack, but I've got the chance to start an MA in autism in September. I find the whole area fascinating. Jimjams, I've already got a science Phd as I think you have (?). Did you find it hard to get a research post?
Sorry for thread highjack

jimjamshaslefttheyurt · 30/07/2008 18:12

I decided to do a second PhD. Applied for various things, and a funded PhD came up. Big advantage in that it gives me free rein, and lots of flexibility (essential). It's full time, but if I was working properly I think I could only manage part time.

I've moved more into social sciences though so my previous work not relevant at all really.

jimjamshaslefttheyurt · 30/07/2008 18:13

Oh if you're going to Birmingham I know someone else about to start the autism MA!

nikos · 30/07/2008 18:27

It's at Northumbria. So can you work from home then?

jimjamshaslefttheyurt · 30/07/2008 19:05

Yes. I couldn't have done the first PhD now, too much lab work, but I can do this one anywhere.

cyberseraphim · 30/07/2008 19:25

Someone at a Hanen program meeting told us that there are more people in the world studying and researching autism than there are people with autism

jimjamshaslefttheyurt · 30/07/2008 19:34

but bugger all of them studying severe autism!

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