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Autism / ASD/ AS should I push for a dx or wait??? Opinions please!

33 replies

KaySamuels · 29/07/2008 20:16

Here is my old thread here if anyone not familiar with my ds.

The nursery/school haven great, we have a toilet visual timeline thingy set up at home, a photo info booklet to talk through with him about going into mornings in september, head teacher found me books etc, school senco/salt working with him sept too.

When I spoke to head she said that EdPsych said he would rather wait until around age 7 to dx, but he is definately on the spectrum. he also said if ds can manage without one to one then that is best for him in the long run. But he will have termly IEPS and edpsych can see him if anything changes.

I feel a little strange as his key worker has already told me she feels he needs one to one and I agree - I am a cm and he is exhausting and takes a lot of my emotional and physical energy (feel bad saying that).

I don't know whether to push for a dx or not. I don't want him to just manage I want him to be happy and moving forward.

I don't know what to do for best.

I was talking to DP last night too about how exhausted I am working FT cm'ing with DS, and don't know if a DX would help with this in terms of benefits?? Feel terrible about thinking that too as he is my son.

Felt ok a week or two ago but seem to have even more questions now!

Can I also ask other parents, do your ASD kids get exhausted? DS seems to find some tings so tiring bless him, he got in the pushchair at 5pm with a blanket and slept, had cried for about an hour before hand at the drop of a hat.

Thanks for getting this far.

OP posts:
LeonieD · 30/07/2008 09:00

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Seuss · 30/07/2008 09:12

Hi Kay, hope you have a better day today. Just wanted to say we were in a similar situation when my ds was your sons age and I would say get a dx. Our nursery and school were fine until ds got more challenging and our statement was turned down and then we didn't have a leg to stand on. With hindsight I wish we'd got a dx and schoolaction/statement sorted a lot sooner and it might have been easier when things did get tricky with school.

nikos · 30/07/2008 09:22

Kay, I haven't used them yet but apparently local authorities have people called parent partners who can help you navigate the system. If you look on your local authority site there should be a contact.

KaySamuels · 30/07/2008 09:42

Wow I have written my list, sent my IPSEA letter, booked ds a GP appointment and also booked one for me for something else I have been putting off both this Friday.

I am so glad I came on here last night and you all verified my concerns with what has gone on so far.

Off to make a cuppa now.

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Tclanger · 30/07/2008 10:06

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KaySamuels · 30/07/2008 10:14

Oh no, just needed to gather my stubborn, arguementative side.

Had a tough day yesterday and really could have just hid under the bed and refused to come out.

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twocutedarlings · 30/07/2008 10:17

WOW!! what a morning Kay, can i have some of that determination please!! ive loads to sort out this week and the pile never seems to get any smaller LOL

KaySamuels · 30/07/2008 10:22

The only thing left on my list is a piece of college work (always put this off).

I wrote small list on a small post it, think I will do this once a day, 5 or six little things seems much more manageable.

I have piles of childminding paperwork, piles of ds paperwork, household/bill paperwork, TBH I am trying to ignore them!

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