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I'm being a twat, I know I am, It could be much worse

33 replies

VictorianSqualor · 28/07/2008 21:30

but DD had her paed assessment today and he said he is 99% sure it's dyspraxia, but he can;t do anything more than refer her to Occ Therapy who will make arrangments wrt either one-on-one therapy or group therapy

I don't think DP understands at al, he just keeps saying at least it's not worse and now I can#t stop crying, I feel like a selfish cow, there are many others in worse boats, but surely I'm allowed to be upset?

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VictorianSqualor · 30/07/2008 13:11

Scotch eggs and sausage rolls
I did the wine thing, and sobbed even more.
I think DP understands a bit more now.

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VictorianSqualor · 30/07/2008 13:13

kanx, was the 'changed my name again' aimed at me?

If it is I'm assuming I know you? was your previous name 5 letters? (not sure if you've changed and want to keep it quiet?)

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AttilaTheMeerkat · 30/07/2008 16:53

VS

You have every right to cry and be upset at the injustice of it all and no you are not a selfish cow.

My friend's DS has dyspraxia and she has cried more often than I care to remember. We've supported each other through the appointment times (of which there have been many).

I sighed at his specialist SALT report report the other day; did not cry only because it confirmed what I've always known so that's one in the eye for the school. Still hard to read it though.

Did want to break down though at the private peadiatric's dietician's place last week; especially when she told me that my son's food phobia now officially diagnosed is not my fault. I've finally found someone who has properly listened!. Now she's going to work with him and support us too.

BriocheDoree · 30/07/2008 17:09

Ooh, I miss scotch eggs! (Used to live in Edinburgh before I came to France, but on the plus side wine is dead cheap here). Anyway, I digress. I think it's very upsetting to discover that there is something "wrong" with your child. I wish I could take DD to the play park and not have to watch her like a hawk, I wish that she could make friends. Even so, when I read about some of the DCs on this forum, I do feel lucky...she's a least physically healthy...and guilty for the times I've worried myself sick about her. But she's still going to struggle, and your daughter will no doubt struggle at times, but if she's intelligent, and gets good help (which you are now well on the road to, let's hope!) then I'm sure her prognosis is good. Attila, glad you've found someone who believes you - does make it easier doesn't it! I remember feeling so reassured first time I saw DD's neurologist, because she didn't think DD was a freak, then wanting to cry when I came out because I realised it was all TRUE.

MetalMummy · 30/07/2008 21:43

My DS (4yrs) was diagnosed with dyspraxia a couple of months ago and I'm fed up with people saying "it's just Dyspraxia!". He gets so frustrated when he tries to talk to somebody and they can't understand what he's saying, or when he's trying to keep up with his friends at nursery and he can't because he can't run as fast as them and keeps falling over. It breaks my heart. DS had SALT today and she told me that he got less than 50% on the Nuffield Assessment for verbal dyspraxia. Individual sounds were 90% which is really good but once he starts saying words and especially sentences it goes right down . He has his first OT appointment tomorrow, my neighbour asked me what they would do there but I told her I've got no idea. The paediatrician did say that he may need some extra support for his ankles because his joints are so loose, but what kind of support he didn't say.

Could I also ask if anyone knows if Dyspraxia affects social development. DSs teacher says that he is socially immature and acts and seems like a much younger child. It is more noticeable when he is with a group of other 4yrs olds.

Expat, I am going to ring up to get the DLA forms and see if DS is entitled to it, any advice you could give on filling out the forms would be greatly appreciated.

I find chocolate and wine works much better than scotch eggs and sausage rolls

BriocheDoree · 31/07/2008 07:33

I've a friend whose son has dyspraxia and she said it really affected him socially when he was younger (he's now 7 or 8). Apparently in a big group of children he just used to scream because he had no idea how to behave. Now with therapy he's getting on a lot better.
Can't advise on DLA I'm afraid as not in the UK...

MsDemeanor · 31/07/2008 12:04

It made me cry when my ds (also has dyspraxia as well as Aspergers) said, 'I suppose my picture isn't on the wall because I can't draw nice things like everyone else'.
I was, I think, quite seriuosly depressed for about a year or ore after his diagnosis. I still get alternately angry and upset.
And it could be a LOT worse and he's a wonderful child.

VictorianSqualor · 01/08/2008 10:58

Yeah, I know that feeling MsDeamenor

One of DD's friends that she spends a lot of time with is a great gymnast and DD would love to be able to do it too.

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