I am also starting to go through the statementing process for my youngest DD who has a diagnosis (now confirmed in writing) of Sotos Syndrome.
She is now 3y 4m and has global development delay and overgrowth (due to Sotos Syndrome). She goes to a private nursery twice a week when I work.
We are involved with SALT, Educational Psychologist, Portage Worker, SENCO, etc.
Her Ed. Psych. has said he wanted to start the statementing process now so that when she is due to start mainstream nursery in September (fingers crossed), a statement will already be in place for when she starts.
He sent me a copy of his report that he sent to the Education Board and I have received a reply from them saying they have received the request. They said they would respond in 6 weeks. That same week I got the diagnosis in writing so my Ed. Psych. said to send that to the Education Board as it will work in my favour. Two days later I got a reply from them saying they will carry out the statutory assessment of special needs. I have to fill in the forms they have sent me and return them within 28 days and they will let me know in about 6 months if she has got a statement or not.
I am not sure of the process and anyone that is going through the same thing that can help would be appreciated.
The SENCO is already involved and gives my DD Individual Educational Plans (IEPs) to work towards.
The Education Board have given me a group to contact (Parents in Partnership) and recommend that someone attends the meetings with me who is independent of the panel. I have already been invited to 2 discussions regarding the statementing process.
It seems a very long winded process (and at the end might not even get the statement) but I feel I have to do as much as I can to get my DD the help that she will need at school.
The one thing I am finding hard at the moment is, in the forms I have to fill in, they ask about what I think her educational needs are (but she hasn't started school/nursery yet) so I don't know what her needs will be. It is hard to know what to say as obviously she will need assistance but I am not sure to what extent.
My friend's son gets help in school (after being excluded for behaviour problems and having to go to a special school in the afternoons) and they rushed through an emergency statement (and finaly 18 months later he is now back in school full time but only because they shut the special school at Christmas due to lack of funding) so although my friend's son has got a statement she has not gone through the same process that I am going through.
Although I have the diagnosis of Sotos Syndrome for my DD every child, whether they have a syndrome or not, are individual. Reading about the syndrome, I can see some of what my DD is like (and obviously what she will be like in the future - i.e. she interacts more easily with older children/adults than children her own age, but I think this is because of the size of her).
Perhaps the best thing to do will be to include all the various reports I have received from the SENCO, Ed. Psych. They have said they will be contacting various professionals, but I think these contacts will be the people that I am in contact with anyway.