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Newbie here, not sure I am in the right place...

40 replies

connorsmum · 06/02/2005 14:47

Hi All,

I have bee lurking on this board for about a week. I have wanted to post before, but really am not sure if this is the right board for me. I guess the problem is that I don't really feel like I fit in anywhere else.

Anyway, my name is Kerry, I am 26 and have 2 sons, Connor who will soon be 4 and Jamie who is 7 1/2 months old. We have had alot of problems with Jamie almost from the outset. He has been under the paediatricians care for 7 months of his life. He had prolonged Jaundice, then a UTI at 4 weeks old. He had to undergo tests to check for urinary reflux and kindey damage (he has to go back in april). The his weight gain slowed down at about 10 weeks and completely stopped at 17 weeks. He weighs 14lb even and has done for coming up to 16 weeks now. At Jamie's last paed appointment (13th Dec 04) he was diagnosed as failure to thrive. He had bloods done, urine,stool and sputum samples and a chest x-ray, but so far, nothing has been found. We have tried the sweat test 3 times but have had to give up each time as Jamie has severe eczema. I still exclusively breastfeed as Jamie has issues with food and still doesn't eat solids. He has so many consultants and appointments that I am starting to lose track. He has a dietican, as well as a SALT, a dermatologist as well as his paed. I feel like a
complete failure as a mother. My dh & I are going crazy with worry, our baby is nothing more than a bag of bones, it makes us cry to see him naked. We have to take him back to see his paed on the 14th Feb, and I am dreading what he is going to say, although I am feeling like I should refuse to leave the hospital until they can tell me what is wrong with my precious boy.

I really don't want to cause anyone any offence by posting here, especially as Jamie is not techincally a SN baby, but like I said, I really don't feel like I fit anywhere else.

Kerry & Jamie

OP posts:
chonky · 06/02/2005 21:41

Hi Kerry - just wanted to say hi & welcome to the board. I've found it invaluable for support since we started to realise that dd was having problems - you will get loads of support here. I hope everything goes OK for you on the 14th, and please keep posting.

Hi to 1980louisiana too.

Merlot · 06/02/2005 21:46

Yes, sorry, forgot to say welcome to 1980louisiana too

coppertop · 06/02/2005 21:48

Hello to 1980louisiana too.

MrsFROSTgetful · 06/02/2005 21:57

Helloooo 1980louisiana

My son has ADHD/Asperger's
my middle son has Asperger's
I reckon my youngest son has ADHD/AS too

and then there's me...99% certain i have ADHD/AS

Dingle · 07/02/2005 11:21

Hi there and a HUGE welcome to MN/SN!

I have been posting since last August, and when I first found MN, I wondered how I'd coped beforehand! Whatever your children's "needs"
are, some are more intense than others. You will find a wealth of support and advice here.

I have a ds of 5 and a dd(3)who has DS. At times I can look at my dd and think I have absolutely no issues regarding her SNs, other times, unfortunately the "system" makes me think otherwise and I turn to MN for support, they will always be her for you, whatever your son's "needs" are.

amynnixmum · 07/02/2005 11:36

Welcome Kerry,
I found mumsnet last oct and for me its been a lifeline. Had loads of support and I'm sure you will too.
Welcome 1980louisiana too,
My ds is 4 and at the moment he doesn't have a diagnosis. The paediatrician has said he doesn't think it is ADHD although ds certainly exhibits some of the behaviours. Have just asked Paed for another appointment to discuss whether it could be ODD.

Saker · 07/02/2005 12:56

Welcome Kerry and 1980louisiana

I found mumsnet in June last year and it has been brilliant to find so much support plus I have learned so much about special needs that I would never have known. My son has developmental delay especially with his motor skills but we don't have a diagnosis yet.

Good luck with your appointment next week.

connorsmum · 07/02/2005 17:24

Thankyou so much everyone! It is nice to be able to offload some of my thoughts and worries, that in itself has been helpful. This seems to be such a wonderfully warm and caring board....I think that I will feel right a home here!

MrsF: Thanks for arranging for me to "talk" to your friend, I appreciate it.

TC: I know that I am not really a failure as a mother, heck, I wouldn't be here if I didn't care right? I also think that I am doing the best by Jamie by continuing to breastfeed. I sometimes feel like I am being judged by others, and even some of my family have hinted that maybe it that my milk isn't good enough for him (incidentally coming from family member who have never breastfed ANY of their children)

Well, we did make a bit of progress today with regards to solids. I tried him with a jar of apple and banana and he seemed to quite like it, he probably had about a teaspoon full (hard to tell as we are still at the stage of him taking it off my fingers, he has an issue with the spoon). That is the most I have been able to get into him for months.

Once again, thankyou everyone for the warm welcome. I will certainly keep posting as I am sure that emotions will get the better of me before next monday

OP posts:
piffle · 07/02/2005 17:28

I too got loads of hassle about continuing to breastfeed when dd was a baby, I knew it was not my milk causing her poor weight gain - she drank little but enthusiastically.
I was under allsorts of pressure to wean her early and supplement her with this and that
I am glad I refused and today she is a really happy little 27 mth old, tiny but perfect!
And she eats like a horse (a small one)
I hope your next appt brings you some much needed answers.

ThomCat · 08/02/2005 10:20

Connorsmum, Exactly, you are obvioulsy a VERY caring person, I just hated to read that you felt like a failure. Anyway glad you had some success yesterday. You sound like you're doing a wonderful job. So glad you found this webnsite, look forward to chatting to you more.

MrsFROSTgetful · 08/02/2005 13:01

My friend has emailed me this reply:

oh my god this poor woman sound like she is at her wits end i will try and help as much as i can the only thing i will say is that coeliac does not present itself until the child actually has gluten based foods it doesn't effect the person until it gets into their system but i would gladly help if i can. she mentions her son has had blood tests i can only assume that the docs would have already tested for coeliac only because they have tested for systic fibrosis ( symptoms very much alike because of the lack of food and nutrients being absorbed in the small intestine).
let me know how she gets on.

If you contact me via the mumsnet 'contact a talker'

i will pass your details on to her.

keep with Mumsnet- we are a bit crazy at times- but THERE 4 U

sharon
x

MrsFROSTgetful · 09/02/2005 12:27

connors mum....hope you are ok

ThomCat · 09/02/2005 12:29

yes i keep checking in to see if you've been on, I hope you're ok too.

connorsmum · 09/02/2005 21:58

Thanks for checking in on me! I am still here, have just had a busy day as ds#1 is off school as well, plus I have the builders in as well, so life is busy, busy, busy (as I am sure that many of you can appreciate!!)

Jamie is ok, still snotty (been going on for nearly 2 1/2 weeks now ) but seems to be holding steady with his weight for now or may even have put an oz or 2 on, hard to tell on my scales. I think that my dh & I are going to sit down and make a list of questions that we have so that we don't forget anything (any suggestions more than welcome, for those of you with similar experience) and also pack our overnight bags incase he gets admitted again.

MrsF: Thanks for contacting your friend. That was the one question that I did have about coeliac disease, as Jamie is still exclusively bf with the odd taste of fruit puree. I always make sure that anythig I give him is gluten free. I will contact you tomorrow!

Once again, thanks for thinking of us!

OP posts:
MrsFROSTgetful · 09/02/2005 22:18
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