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Just got back from Treating Autism conference in Manchester....

10 replies

runikka · 29/06/2008 00:33

did any other mums/dads here go?

What did you think? We enjoyed it although it was quite emotional at times and we have a daunting path ahead of diet changes.

Kirsty
xx

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PipinJo · 29/06/2008 12:19

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PipinJo · 29/06/2008 12:19

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runikka · 29/06/2008 23:13

Hiya

It was the first one I have been to so pretty much everything was new. It was quite an emotional day, realising you are not alone, but also that there is still a long road ahead. We have just properly started on the gfcf diet and have ordered in some supplements. Daniel is just such a fussy eater so we have a bit of a battle on our hands.

OP posts:
12345678910 · 29/06/2008 23:54

runikka

i dont suppose you could share some of the knowledge you learned about diet etc sometimes i feel like we have been left out in the cold by doctors etc after a very recent diagnosis.

PipinJo · 30/06/2008 02:56

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runikka · 30/06/2008 16:54

Good afternoon

We are seeing a DAN trained practitioner in West Sussex and she put Daniel on the gfcf diet immediately. We had already had the Sunderland urine tests and it had been inconclusive as we already had reduced Daniel's intake of both gluten and casein. She still recommended taking both out of his diet. I am seeing her tomorrow as the conference has raised a few questions about the order we are doing things.

Basically, the biomedical approach states that diet and medicines, vaccines can have a significant impact on autistic behaviours. Daniel had a lot of anti-biotics when small so we were naturally interested. It is all very new to us and I am rubbish at explaining but www.treatingautism.com has been great as it is gives a guide at where to start. Like you have both said, Doctors we have met on the NHS, have given no real advice on how to cope or what we can do to help Daniel but at least we now feel we have something to try.

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knat · 30/06/2008 18:08

this is interesting as i have started dd on gf/cf diet. I had researched into it and thought it must be worth a go - and didn't thnk it could do any harm. Dont know where to start re supplements if any? Havent consulted GP about change in diet a syet as dont know how receptive he would be and i feel it has to be worth a go

jimjamshaslefttheyurt · 30/06/2008 19:28

TA are pretty good at not promoting a one size fits all approach. They're an excellent support group for parents in the UK doing biomed. Are you on their yahoo group runnikka?

runikka · 30/06/2008 22:42

Hey Jimjams, we signed up to the yahoo group last night, just reading the messages on their now

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jimjamshaslefttheyurt · 30/06/2008 23:16

Your inbox will be overflowing It is well worth reading. I'm on web only at the moment so miss a lot of the messages, but as soon as I have a biomed question I go there.

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